Living with Mild Cognitive Impairment (MCI)

Posted by Janie @dougjanehaltom, Nov 20, 2020

I have recently been diagnosed with MCI and I'll be attending Mayo Clinic group on this. Each day just seems to bring me challenges. I have days when I get depressed because I feel like I'm being a burden to others. I will be attending MCI seminar at Mayo Clinic in January. I need help and support in this area.

Interested in more discussions like this? Go to the Brain & Nervous System group.

@slynnb

If I were you, I would ask my doctor to see if i could get off of any drugs unless you absolutely must take them for a critical reason, especially Klonopin… Klonopin is now known to have anti-cholinergic properties and increases the risk of dementia. I have had many conversations with doctors interested in this subject and concerned that, in fact, elders are sometimes diagnosed with dementia when, in fact, it is the drugs they are taking that is causing the memory problems. However, klonopin and other drugs with anti-cholinergic properties are linked to a worrisome increased risk of cognitive problems including dementia – not only fleeting memory glitches. A rare but still documented side effect of venlafaxine is confusion and anxiety which can contribute to memory problems. You do not mention taking any bladder control medications which can be especially problematic for producing cognitive impairment (drugs like Versicare) and these drugs are frequently prescribed quickly and often for older women. Americans are the most drugged people in the world. I am certainly not against medication but one must be one's own advocate and it makes sense to see if your drugs are part of your problem. Here is a article from Harvard that mentions benzodiazepines like Klonopin . https://www.health.harvard.edu/mind-and-mood/two-types-of-drugs-you-may-want-to-avoid-for-the-sake-of-your-brain

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I have taken Clonazapam for years: diagnosis of cervical dystonia. I never knew! that you could develop a dependency on this pharmaceutical!!
AND it affects your mood and MEMORY!
I have never sued anyone in my life BUT I am tempted.

REPLY
@dorty

Hi,
I am 63 yr old female and have been reading the boards relative to effexor xr withdrawal (highest dose 2015 375 mg), slow taper to May 2018 took last dose of Effexor XR 37.5 mg May 28th 2018, I started to have some balance dizzy issues in April and then by first week in June I had horrible anxiety (not my usual, had to be from the Effexor withdrawal), nausea, jitters, balance, dizzy issues, depth perception problems, was sensitive to light and sound, thought I was losing my mind –long story trying to make this shorter. Over summer through present time I have had gradual relief, still have some balance, dizzy issues, depth perception and mental challenges, which brings me to my latest diagnosis in subject line. (I was and still am taking wellbutrin XL 300 mg/daily for depression). I am not depressed and my anxiety has been reduced greatly (I think in part due to stopping the Effexor quite honestly), not taking any additional medication for anxiety – don’t need it! Praise God!

One of the changes I noted as Effexor was tapered was cognitive decline. Having difficulty multi tasking , making financial spreadsheets, challenging to make sense out of complex situations or interrupting the difference between 3 different options for scheduling (as an example–these are all things I have been really good at — until April/May of this year). Met with neurologist, (primary care ordered brain MRI which was neg), he ordered over 20 labs and they were all within normal limits and he referred me to neuropsych for testing – showed deficits in visual spatial ability, graphomotor reproduction of complex visual figural information, weakness in divided attention in verbal fluency format, block patterns and abstraction ability. “not severe enough to warrant a diagnosis of dementia but not normal, so mild neurocognitive d/o; predominately executive and right hemisphere pattern of deficit present etiology not clear in light of normal MRI. They are thinking perhaps i am having ophthalmologic migranes/seizures (only experience in right field of vision) and this may be part of what is impacting my cognition.

I will have follow up more specific/detailed MRI in May 2019, in mean time I am “to remain concerned but not consumed over these results”, call or make appointment if symptoms increase, (balance, dizziness, cognition etc).

Long story shorter I know that wellbutrin is typically not prescribed for people with known seizure d/o; from what i have read and know (i am RN behavioral health) wellbutrin can lower seizure threshold. Can you help me find any research or information that may relate to effexor withdrawal and or wellbutrin potential impact on cognition or correlation with optical seizures impacting brain function. I will have follow up more detailed MRI..not until may 2019, . I have been trying to put most of this puzzle together myself, I had to request initial MRI in June, request referral to neuro, self referred to opthamology and found my prescription was way to strong — leading to some of my depth perception and balance problems — new script/glasses now helping somewhat.

I appreciate any feedback you may have. Thank you, Barb

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I too have taken Klonopin 0.5mg daily for many years, it is a small dose but it’s the only way I can keep my emotions in control without crying at any unexpected time of the day. I also have memory problems as I’ve written about before.
What will you do, stop the Klonopin? It’s not a choice I have made so far.
I tried taking Buspar, it didn’t help me.
Have you been formally tested for your memory problems? COVID 19 delayed my appointment for testing and now I have moved to NY and have to start over again.
I hope you can find an answer to this dilemma and would be interested to know what it will be.

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@emyliander

I too have taken Klonopin 0.5mg daily for many years, it is a small dose but it’s the only way I can keep my emotions in control without crying at any unexpected time of the day. I also have memory problems as I’ve written about before.
What will you do, stop the Klonopin? It’s not a choice I have made so far.
I tried taking Buspar, it didn’t help me.
Have you been formally tested for your memory problems? COVID 19 delayed my appointment for testing and now I have moved to NY and have to start over again.
I hope you can find an answer to this dilemma and would be interested to know what it will be.

Jump to this post

If I had known( famous last words?) I would have asked for a smaller less frequent script (of Clon)for my head tremor.
After taking Clonazepam for several years, I began to have a memory problem.
Recently I was evaluated by a neurologist ( mild cognitive impairment). He was not the prescriber, was retiring. ..and took me to the office of two new neurologists.
He assured me that I did not have Alzheimer’s and one of these two new neurologists would help me.

My research: MCI(mild cognitive impairment)can lead to AD. I hope I can delay it!

I will let you know about my evaluation.

Please do not see anyone who is not a neurologist (who can answer ALL your questions or calls him self a rehab doctor). I am tritrating from Clonazepam half a tablet decrease each week.

I thank God for my gastroenterologist. She told me that I would have ab pain when I began decreasing this pharmaceutical. I do. The prescriber denies this and says that it is caused by GI issues which are wonderfully under control!! ( I have celiac disease. A diet corrects that!)

Please let me know if you have questions. If I can help anyone titrating off of Clonazapam
I will. I am praying that these new neurologists know of a support group… or perhaps start one!

Look first for research based information on the Mayo website.

All the best!
Ellen
(Write any time)

REPLY
@dorty

Hi,
I am 63 yr old female and have been reading the boards relative to effexor xr withdrawal (highest dose 2015 375 mg), slow taper to May 2018 took last dose of Effexor XR 37.5 mg May 28th 2018, I started to have some balance dizzy issues in April and then by first week in June I had horrible anxiety (not my usual, had to be from the Effexor withdrawal), nausea, jitters, balance, dizzy issues, depth perception problems, was sensitive to light and sound, thought I was losing my mind –long story trying to make this shorter. Over summer through present time I have had gradual relief, still have some balance, dizzy issues, depth perception and mental challenges, which brings me to my latest diagnosis in subject line. (I was and still am taking wellbutrin XL 300 mg/daily for depression). I am not depressed and my anxiety has been reduced greatly (I think in part due to stopping the Effexor quite honestly), not taking any additional medication for anxiety – don’t need it! Praise God!

One of the changes I noted as Effexor was tapered was cognitive decline. Having difficulty multi tasking , making financial spreadsheets, challenging to make sense out of complex situations or interrupting the difference between 3 different options for scheduling (as an example–these are all things I have been really good at — until April/May of this year). Met with neurologist, (primary care ordered brain MRI which was neg), he ordered over 20 labs and they were all within normal limits and he referred me to neuropsych for testing – showed deficits in visual spatial ability, graphomotor reproduction of complex visual figural information, weakness in divided attention in verbal fluency format, block patterns and abstraction ability. “not severe enough to warrant a diagnosis of dementia but not normal, so mild neurocognitive d/o; predominately executive and right hemisphere pattern of deficit present etiology not clear in light of normal MRI. They are thinking perhaps i am having ophthalmologic migranes/seizures (only experience in right field of vision) and this may be part of what is impacting my cognition.

I will have follow up more specific/detailed MRI in May 2019, in mean time I am “to remain concerned but not consumed over these results”, call or make appointment if symptoms increase, (balance, dizziness, cognition etc).

Long story shorter I know that wellbutrin is typically not prescribed for people with known seizure d/o; from what i have read and know (i am RN behavioral health) wellbutrin can lower seizure threshold. Can you help me find any research or information that may relate to effexor withdrawal and or wellbutrin potential impact on cognition or correlation with optical seizures impacting brain function. I will have follow up more detailed MRI..not until may 2019, . I have been trying to put most of this puzzle together myself, I had to request initial MRI in June, request referral to neuro, self referred to opthamology and found my prescription was way to strong — leading to some of my depth perception and balance problems — new script/glasses now helping somewhat.

I appreciate any feedback you may have. Thank you, Barb

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@helenfrancis . You are so right . Research is most important with any problems . I look it up if the Dr doesn't give me a satisfactory answer . I use the pharmacist for med information and interactions since they have all my meds. Very good source also . Drugs.com is a good one online

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@lioness

@helenfrancis . You are so right . Research is most important with any problems . I look it up if the Dr doesn't give me a satisfactory answer . I use the pharmacist for med information and interactions since they have all my meds. Very good source also . Drugs.com is a good one online

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Thank you, lioness. I never heard of drugs.com
I usually ask the pharmacist but that is not always convenient for me or them.

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@dorty

Hi,
I am 63 yr old female and have been reading the boards relative to effexor xr withdrawal (highest dose 2015 375 mg), slow taper to May 2018 took last dose of Effexor XR 37.5 mg May 28th 2018, I started to have some balance dizzy issues in April and then by first week in June I had horrible anxiety (not my usual, had to be from the Effexor withdrawal), nausea, jitters, balance, dizzy issues, depth perception problems, was sensitive to light and sound, thought I was losing my mind –long story trying to make this shorter. Over summer through present time I have had gradual relief, still have some balance, dizzy issues, depth perception and mental challenges, which brings me to my latest diagnosis in subject line. (I was and still am taking wellbutrin XL 300 mg/daily for depression). I am not depressed and my anxiety has been reduced greatly (I think in part due to stopping the Effexor quite honestly), not taking any additional medication for anxiety – don’t need it! Praise God!

One of the changes I noted as Effexor was tapered was cognitive decline. Having difficulty multi tasking , making financial spreadsheets, challenging to make sense out of complex situations or interrupting the difference between 3 different options for scheduling (as an example–these are all things I have been really good at — until April/May of this year). Met with neurologist, (primary care ordered brain MRI which was neg), he ordered over 20 labs and they were all within normal limits and he referred me to neuropsych for testing – showed deficits in visual spatial ability, graphomotor reproduction of complex visual figural information, weakness in divided attention in verbal fluency format, block patterns and abstraction ability. “not severe enough to warrant a diagnosis of dementia but not normal, so mild neurocognitive d/o; predominately executive and right hemisphere pattern of deficit present etiology not clear in light of normal MRI. They are thinking perhaps i am having ophthalmologic migranes/seizures (only experience in right field of vision) and this may be part of what is impacting my cognition.

I will have follow up more specific/detailed MRI in May 2019, in mean time I am “to remain concerned but not consumed over these results”, call or make appointment if symptoms increase, (balance, dizziness, cognition etc).

Long story shorter I know that wellbutrin is typically not prescribed for people with known seizure d/o; from what i have read and know (i am RN behavioral health) wellbutrin can lower seizure threshold. Can you help me find any research or information that may relate to effexor withdrawal and or wellbutrin potential impact on cognition or correlation with optical seizures impacting brain function. I will have follow up more detailed MRI..not until may 2019, . I have been trying to put most of this puzzle together myself, I had to request initial MRI in June, request referral to neuro, self referred to opthamology and found my prescription was way to strong — leading to some of my depth perception and balance problems — new script/glasses now helping somewhat.

I appreciate any feedback you may have. Thank you, Barb

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@helenfrances Yes I found it as we can't get out now so I use it every time I get a new med .

REPLY
@lioness

@helenfrances Yes I found it as we can't get out now so I use it every time I get a new med .

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Many thanks!

REPLY
@helenfrances

If I had known( famous last words?) I would have asked for a smaller less frequent script (of Clon)for my head tremor.
After taking Clonazepam for several years, I began to have a memory problem.
Recently I was evaluated by a neurologist ( mild cognitive impairment). He was not the prescriber, was retiring. ..and took me to the office of two new neurologists.
He assured me that I did not have Alzheimer’s and one of these two new neurologists would help me.

My research: MCI(mild cognitive impairment)can lead to AD. I hope I can delay it!

I will let you know about my evaluation.

Please do not see anyone who is not a neurologist (who can answer ALL your questions or calls him self a rehab doctor). I am tritrating from Clonazepam half a tablet decrease each week.

I thank God for my gastroenterologist. She told me that I would have ab pain when I began decreasing this pharmaceutical. I do. The prescriber denies this and says that it is caused by GI issues which are wonderfully under control!! ( I have celiac disease. A diet corrects that!)

Please let me know if you have questions. If I can help anyone titrating off of Clonazapam
I will. I am praying that these new neurologists know of a support group… or perhaps start one!

Look first for research based information on the Mayo website.

All the best!
Ellen
(Write any time)

Jump to this post

I also have Celiac disease controlled by diet. When I asked my family Dr. For a referral to a neurologist she told me that first I should see a Geriatrician and referred me to one. I moved before I saw anyone. Now I am looking for a family Dr. near Albany NY. And then will ask for a referral.
My Psychiatrist who I liked, and prescribed my psych meds knew I had trouble with my memory but never suggested it could be from the Klonopin, I also have trouble with day time sleepiness for which I take Provigil.
Oh what a tangled webb we weave when we practice psych meds !!

REPLY
@dorty

Hi,
I am 63 yr old female and have been reading the boards relative to effexor xr withdrawal (highest dose 2015 375 mg), slow taper to May 2018 took last dose of Effexor XR 37.5 mg May 28th 2018, I started to have some balance dizzy issues in April and then by first week in June I had horrible anxiety (not my usual, had to be from the Effexor withdrawal), nausea, jitters, balance, dizzy issues, depth perception problems, was sensitive to light and sound, thought I was losing my mind –long story trying to make this shorter. Over summer through present time I have had gradual relief, still have some balance, dizzy issues, depth perception and mental challenges, which brings me to my latest diagnosis in subject line. (I was and still am taking wellbutrin XL 300 mg/daily for depression). I am not depressed and my anxiety has been reduced greatly (I think in part due to stopping the Effexor quite honestly), not taking any additional medication for anxiety – don’t need it! Praise God!

One of the changes I noted as Effexor was tapered was cognitive decline. Having difficulty multi tasking , making financial spreadsheets, challenging to make sense out of complex situations or interrupting the difference between 3 different options for scheduling (as an example–these are all things I have been really good at — until April/May of this year). Met with neurologist, (primary care ordered brain MRI which was neg), he ordered over 20 labs and they were all within normal limits and he referred me to neuropsych for testing – showed deficits in visual spatial ability, graphomotor reproduction of complex visual figural information, weakness in divided attention in verbal fluency format, block patterns and abstraction ability. “not severe enough to warrant a diagnosis of dementia but not normal, so mild neurocognitive d/o; predominately executive and right hemisphere pattern of deficit present etiology not clear in light of normal MRI. They are thinking perhaps i am having ophthalmologic migranes/seizures (only experience in right field of vision) and this may be part of what is impacting my cognition.

I will have follow up more specific/detailed MRI in May 2019, in mean time I am “to remain concerned but not consumed over these results”, call or make appointment if symptoms increase, (balance, dizziness, cognition etc).

Long story shorter I know that wellbutrin is typically not prescribed for people with known seizure d/o; from what i have read and know (i am RN behavioral health) wellbutrin can lower seizure threshold. Can you help me find any research or information that may relate to effexor withdrawal and or wellbutrin potential impact on cognition or correlation with optical seizures impacting brain function. I will have follow up more detailed MRI..not until may 2019, . I have been trying to put most of this puzzle together myself, I had to request initial MRI in June, request referral to neuro, self referred to opthamology and found my prescription was way to strong — leading to some of my depth perception and balance problems — new script/glasses now helping somewhat.

I appreciate any feedback you may have. Thank you, Barb

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Hi @emyliander, how are you? It's been awhile since we heard from you.

@helenfrances, I'm so glad you got the technical issues worked out and were able to log back in. Happy to have you back.

@artscaping, let's get this discussion going again. I miss your posts and conversation here.

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@dorty

Hi,
I am 63 yr old female and have been reading the boards relative to effexor xr withdrawal (highest dose 2015 375 mg), slow taper to May 2018 took last dose of Effexor XR 37.5 mg May 28th 2018, I started to have some balance dizzy issues in April and then by first week in June I had horrible anxiety (not my usual, had to be from the Effexor withdrawal), nausea, jitters, balance, dizzy issues, depth perception problems, was sensitive to light and sound, thought I was losing my mind –long story trying to make this shorter. Over summer through present time I have had gradual relief, still have some balance, dizzy issues, depth perception and mental challenges, which brings me to my latest diagnosis in subject line. (I was and still am taking wellbutrin XL 300 mg/daily for depression). I am not depressed and my anxiety has been reduced greatly (I think in part due to stopping the Effexor quite honestly), not taking any additional medication for anxiety – don’t need it! Praise God!

One of the changes I noted as Effexor was tapered was cognitive decline. Having difficulty multi tasking , making financial spreadsheets, challenging to make sense out of complex situations or interrupting the difference between 3 different options for scheduling (as an example–these are all things I have been really good at — until April/May of this year). Met with neurologist, (primary care ordered brain MRI which was neg), he ordered over 20 labs and they were all within normal limits and he referred me to neuropsych for testing – showed deficits in visual spatial ability, graphomotor reproduction of complex visual figural information, weakness in divided attention in verbal fluency format, block patterns and abstraction ability. “not severe enough to warrant a diagnosis of dementia but not normal, so mild neurocognitive d/o; predominately executive and right hemisphere pattern of deficit present etiology not clear in light of normal MRI. They are thinking perhaps i am having ophthalmologic migranes/seizures (only experience in right field of vision) and this may be part of what is impacting my cognition.

I will have follow up more specific/detailed MRI in May 2019, in mean time I am “to remain concerned but not consumed over these results”, call or make appointment if symptoms increase, (balance, dizziness, cognition etc).

Long story shorter I know that wellbutrin is typically not prescribed for people with known seizure d/o; from what i have read and know (i am RN behavioral health) wellbutrin can lower seizure threshold. Can you help me find any research or information that may relate to effexor withdrawal and or wellbutrin potential impact on cognition or correlation with optical seizures impacting brain function. I will have follow up more detailed MRI..not until may 2019, . I have been trying to put most of this puzzle together myself, I had to request initial MRI in June, request referral to neuro, self referred to opthamology and found my prescription was way to strong — leading to some of my depth perception and balance problems — new script/glasses now helping somewhat.

I appreciate any feedback you may have. Thank you, Barb

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Greetings…welcome to our first reunion, Sarah, @emyliander, and Ellen @helenfrances. It certainly does seem like it has been a long time since we had an update and a timely conversation? Sara, @emyliander, how is your new home? Are you all moved in? I have to ask…..do you have a garden for your flowers? And I hope your daughter is tucked away at her special school or is COVID19 still mandating that she remain with you.

And how about you Ellen, @helenfrances? You, in June, were waiting to complete a withdrawal from Clonazepam and continuing to do research and some shared decision making about your road ahead with your neurologist.

I think in June, we were all talking about how cognitive impairment at the mild stage was affecting our lives. Do our life partners and families recognize our somewhat staggering memories? I think you were looking at a shared support group or class with your husband Sarah. And I was asking you to get a medicine review to make sure those stomach issues were being taken care of.

I will share with you a couple of medical hurdles that I find challenging right now. I found a tiny crunchy nodule on my sternum which ended up being squamous cell carcinoma and was promptly surgically removed. Now I wait like so many others who receive a cancer diagnosis of any kind.

You're not going to believe this one…..I sure didn't until I had spent several days in what I call an itch bomb. It is called neuropathic itch and does its annoying work inside your body. No matter how hard you try you can't scatch it because you can't reach it. So now I am being a guinea pig for different medications to see which might work best without side effects. At the end of two weeks, I make a switch and we see what happens with a new trial.

So…fill me in and fill me up with news and highlights. It seems like things are pretty quiet with the travel restrictions. I must admit I am hungry for a play at the Gutherie. Dinner at Sea Change…..actually sitting in a restaurant might also be nice. Shoot, I would even go to our adopted granddaughter's softball games if I could remember the day. And that is where I will end for tonight. I am noticing greater difficulty with recent memory especially when I am talking and lose my thought. I see people either trying to help me by feeding me the words or looking away as if they haven't noticed.

How are your memories holding up………do you have any tricks or hacks to share? As Ellen says…write any time. And I say…..do it now or you just might forget. My very best to you both……..I would love to hear from you.

May you have peace and ease.
Chris

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@artscaping

Greetings…welcome to our first reunion, Sarah, @emyliander, and Ellen @helenfrances. It certainly does seem like it has been a long time since we had an update and a timely conversation? Sara, @emyliander, how is your new home? Are you all moved in? I have to ask…..do you have a garden for your flowers? And I hope your daughter is tucked away at her special school or is COVID19 still mandating that she remain with you.

And how about you Ellen, @helenfrances? You, in June, were waiting to complete a withdrawal from Clonazepam and continuing to do research and some shared decision making about your road ahead with your neurologist.

I think in June, we were all talking about how cognitive impairment at the mild stage was affecting our lives. Do our life partners and families recognize our somewhat staggering memories? I think you were looking at a shared support group or class with your husband Sarah. And I was asking you to get a medicine review to make sure those stomach issues were being taken care of.

I will share with you a couple of medical hurdles that I find challenging right now. I found a tiny crunchy nodule on my sternum which ended up being squamous cell carcinoma and was promptly surgically removed. Now I wait like so many others who receive a cancer diagnosis of any kind.

You're not going to believe this one…..I sure didn't until I had spent several days in what I call an itch bomb. It is called neuropathic itch and does its annoying work inside your body. No matter how hard you try you can't scatch it because you can't reach it. So now I am being a guinea pig for different medications to see which might work best without side effects. At the end of two weeks, I make a switch and we see what happens with a new trial.

So…fill me in and fill me up with news and highlights. It seems like things are pretty quiet with the travel restrictions. I must admit I am hungry for a play at the Gutherie. Dinner at Sea Change…..actually sitting in a restaurant might also be nice. Shoot, I would even go to our adopted granddaughter's softball games if I could remember the day. And that is where I will end for tonight. I am noticing greater difficulty with recent memory especially when I am talking and lose my thought. I see people either trying to help me by feeding me the words or looking away as if they haven't noticed.

How are your memories holding up………do you have any tricks or hacks to share? As Ellen says…write any time. And I say…..do it now or you just might forget. My very best to you both……..I would love to hear from you.

May you have peace and ease.
Chris

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@artscaping Hey Chris, my mom has had a few of those squamous carcinomas removed. She goes to regular dermatology skin checks, and she had one that she found removed just a couple months ago. When you catch them early, they are not deep and they get all of it with the Moes surgery. Would a cold ice pack help the itching? I know when my leg was itching inside my cast where I couldn't scratch, I would put ice on my leg above the cast and it helped.

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@jenniferhunter

@artscaping Hey Chris, my mom has had a few of those squamous carcinomas removed. She goes to regular dermatology skin checks, and she had one that she found removed just a couple months ago. When you catch them early, they are not deep and they get all of it with the Moes surgery. Would a cold ice pack help the itching? I know when my leg was itching inside my cast where I couldn't scratch, I would put ice on my leg above the cast and it helped.

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Hi there @jenniferhunter. You are right……those little squamous things are the ones that like to float around and multiple in your body. It's the basil ones that don't migrate; they just get bigger. So…..I do go twice a year to have everything to do with skin examined. I was such a CA beach girl ….you know, with the iodine in the baby oil.

Thanks for acknowledging the itch. And yes I keep ice gel packs in the freezer. They often mean the difference between sleeping and screaming. I am testing two new topicals……each one for two weeks. I also am using a compression sleeve on my arms so I can't attack them. I remember those itches inside the casts…….when things were healing.

Jay had the Moes surgery on his forehead. That worked well. How are you doing today? Riding the horse yet? I remember how good it smelled to go in the barn at 5:30 a,m, to treat Keo Raff's feet in the summer.

Thanks for checking on me. I so appreciate all of your assistance. Speaking of that, I have just had an amazing MFR treatment. When I understand it better, I will run it by you.
May you have peace and ease.
Chris

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