I have ovarian cancer

Posted by joannedb @joannedb, Jul 1, 2016

Hi I’m Joanne. New to this group and I have Ovarian Cancer. Looking to connect with others with OVC.

@rochellewisner

Hi, I am Rochelle a year an a half after Chemo for stage 3c Ovarian Cancer . My last scan was clear, but my AC125 keeps climbing . Up to 35 now
It has me very nervous.

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Dont worry yet your still in the normal range…46 and under 🙂

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@lynann99

I also have ovarian cancer just started my 3rd round of chemo today. Would love to meet others to talk. I moved to FL a year ago from CT and most of my support is back in CT

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Hang in there! It gets better, especially when the chemo is done. After two months, my eyelashes, eyebrows are growing. Hair seems to be slower. Exercise had been my savior- whenever the chemo seemed too much to bear, I got on my treadmill for 30 minutes. It Works! Always made me feel better. I still do 30 minutes a day even though I have (supposedly) no cancer left in my body. It just feels good. Healing also involves getting rid of all sugar. Meditate. Find a hobby you love or an instrument you have always wanted to learn. Whatever, do not give up!

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@rochellewisner

Hi, I am Rochelle a year an a half after Chemo for stage 3c Ovarian Cancer . My last scan was clear, but my AC125 keeps climbing . Up to 35 now
It has me very nervous.

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If your CA125 has 4 consecutive rises, even if they are still within the normal range, it is time for a CT scan. Otherwise, no worries! One and a half years in remission indicates that you are platinum sensitive, that is why you are still cancer free!

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Where do you live now?

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@rochellewisner

Where do you live now?

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Not sure who you are addressing your question to…

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Hi, I'm Pam and I'm new 2 the group. I have stage 3 ovarian cancer; I've completed 3 chemo sessions, surgery and now in my 4th chemo session. I have 2 more chemo sessions 2 complete. Does anyone know if this will lead 2 remission?

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Hi Pam, I’m Rochelle. I had 6 rounds of Taxol and
Carbo platinum. It put my cancer in remission .
I hope it works that way with you.

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@pbprice

Hi, I'm Pam and I'm new 2 the group. I have stage 3 ovarian cancer; I've completed 3 chemo sessions, surgery and now in my 4th chemo session. I have 2 more chemo sessions 2 complete. Does anyone know if this will lead 2 remission?

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Hi Pam
I have completed my chemo, surgery, etc. just recently and am in remission. I was stage 3C. I think your success for remission may depend somewhat on your life style. No sugar. Go on a Mediterranean diet, exercise, meditate, get massages. Your chances of beating this thing are very good. Keep up your spirits. You Will win!

Liked by Pamela

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@starko

Hi Pam
I have completed my chemo, surgery, etc. just recently and am in remission. I was stage 3C. I think your success for remission may depend somewhat on your life style. No sugar. Go on a Mediterranean diet, exercise, meditate, get massages. Your chances of beating this thing are very good. Keep up your spirits. You Will win!

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Thanks for the encouragement! I'm during everything except meditate and massages, but will incorporate it in my schedule!

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@rochellewisner

Hi Pam, I’m Rochelle. I had 6 rounds of Taxol and
Carbo platinum. It put my cancer in remission .
I hope it works that way with you.

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Yes, my first 3 treatments did consist of Taxol, Carbo and Avastin; when I was first diagnosed my CA 125 was 2600, now it is 9.4; Thanks guys for letting me know, there's hope @ the end of the tunnel :<)

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@pbprice

Yes, my first 3 treatments did consist of Taxol, Carbo and Avastin; when I was first diagnosed my CA 125 was 2600, now it is 9.4; Thanks guys for letting me know, there's hope @ the end of the tunnel :<)

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Hi @pbprice, I'd also like to add my welcome. How are you tolerating the chemo? Any side effects that you find challenging?

Liked by Pamela

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Hello,
I am Madhu Rao, and diagnosed with endometrial cancer, and more recently with peritoneal carcinomatosis.
I am hoping to learn and get support from this group.

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@m1b1r9

Hello,
I am Madhu Rao, and diagnosed with endometrial cancer, and more recently with peritoneal carcinomatosis.
I am hoping to learn and get support from this group.

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Hello @m1b1r9 and welcome to Mayo Connect. I see that you have recently been diagnosed with peritoneal carcinomatosis after a previous diagnosis of endometrial cancer. How long ago were these diagnoses made? I can understand your need for support and information. It can be frightening to have two different cancer diagnoses, can't it? Has your oncologist offered any suggestions/treatments for the peritoneal carcinomatosis? I did find some information regarding treatment options offered at Mayo Clinic facilities. Here is the link to that information, https://www.mayoclinic.org/medical-professionals/cancer/news/cytoreductive-surgery-and-hipec-offers-effective-treatment-for-selected-patients-with-peritoneal-carcinomatosis/mac-20429726.

How long ago were you treated for endometrial cancer? Did you have surgery and chemo treatments?

You will find support and encouragement here on Connect.

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Thanks for your response@hopeful.
I had primary endometrial cancer, grade 3, stage 1a, and had complete hysterectomy in Nov 2017. Following this, I had brachytherapy, but chemo was not done, due to diagnosis not being clear about whether it was clear or serous cell type. So it was observation and monitoring CA125, which remained low and stable in 2018, but went up in february 2019, and then I was diagnosed with metastatic spread to liver, omentum, lymph nodes, and pelvic mass.
I have been told that HIPEC has not been done with uterine cancers in US, though I have read they are being done in other countries.
I had chemo with carboplatin and taxol, with no response after 3 treatments. Then avastin was added, and there was some decrease in the size of liver mets,
but mostly stable, with no further spread and my CA125 has gone down to 12. I am being continued on avastin every 3 weeks.
Molecular testing on my tumor does not show any tumor markers that can be targeted.
Feel pretty bad, because if I had had chemo right after my surgery, I would have had better chances of 5 year survival.
Now it has seeded in the peritoneum and in the liver. I understand it is treated same as advanced ovarian cancer. Do not know if anyone else is in a similar
situation, and what treatment has been helpful.
Thanks for reading my long history.

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@colleenyoung

Hi @pbprice, I'd also like to add my welcome. How are you tolerating the chemo? Any side effects that you find challenging?

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Believe it r not, I have done exceptionally well; there was no sickness r nausea @ first! In fact it felt like my body had been rejuvenated.
I felt a little drained of energy on my 3rd and 4th day after therapy but after that, I was up and running again. So thru all the treatments I haven't experience any severe r mild nausea. My only serious concerns now is my neuropathy has gotten worst (mostly on the left side of my body)

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