I have ovarian cancer

Posted by joannedb @joannedb, Jul 1, 2016

Hi I’m Joanne. New to this group and I have Ovarian Cancer. Looking to connect with others with OVC.

Hi, I just saw your message. It’s a scary cancer, as I’m sure everyone who has any form of cancer believes. I would like to talk to you and it is comforting to have someone who has the same cancer to talk with. I am out of chemo since Dev 2017. Still praying it doesn’t return every time I get my blood tests and Scan. Will find out Thursday May 9th.

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@rochellewisner

Hi, I just saw your message. It’s a scary cancer, as I’m sure everyone who has any form of cancer believes. I would like to talk to you and it is comforting to have someone who has the same cancer to talk with. I am out of chemo since Dev 2017. Still praying it doesn’t return every time I get my blood tests and Scan. Will find out Thursday May 9th.

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Good to hear from you! Let us know the results of Thursday.

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@starko

Good to hear from you! Let us know the results of Thursday.

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fingers crossed….have you had shingles vaccine? It's a good insurance for when your immune system is down…

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@falconfly

fingers crossed….have you had shingles vaccine? It's a good insurance for when your immune system is down…

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Shingles vaccine coming up. Thank You!
Does anyone know of the benefits of honey is controlling cancer? Google has many contradictory opinions on whether it is like processed sugar ( tabu for cancer patients ) or other opinions that boast of the positive benefits in preventing and containing cancer.

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Hi… my name is jeanne and I was diagnosed April 2018 with stage 3-4 ovarian cancer… had a debunking may 14, 2018… then landed up with sepsis 3 weeks later.. in icu for 5 days, then remained in hospital for 9 more days… left with an open wound that had to be changed twice a day.. finally started chemo in July… til November…had my ostomy removed in January… c diff delayed my Avastin infusion for a few weeks… now my ca antigen is over 100… after a low of 20… I have a good appetite, exercise and try to get enough sleep… I am giving it to God to help me heal…another avastin next week, then scanned June 3….drs say… try not to worry… trying not to ….anyone ever have an elevated ca and it be nothing??? glad to join group…p.s. I am with penn medicine…

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I know how you feel, my CA 125 is rising from 14 after chemo to 40, a steady incline. It’s a bad cancer to have and we can only keep on living everyday and yes it’s all in God’s hands.
If you ever want to talk, I live in Washington State 6 months and in Arizona where I go to Mayo for my care. It’s a wonderful place to be with this cancer. My name is
Rochelle.

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Hi Rochell, my name is Miyong. I am also snow bird from Wa. Just came back from Tucson. Completed chemo and my next check up is June 13th and I am concerned about aggressiveness of OCCC.

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@mommyjeanne3

Hi… my name is jeanne and I was diagnosed April 2018 with stage 3-4 ovarian cancer… had a debunking may 14, 2018… then landed up with sepsis 3 weeks later.. in icu for 5 days, then remained in hospital for 9 more days… left with an open wound that had to be changed twice a day.. finally started chemo in July… til November…had my ostomy removed in January… c diff delayed my Avastin infusion for a few weeks… now my ca antigen is over 100… after a low of 20… I have a good appetite, exercise and try to get enough sleep… I am giving it to God to help me heal…another avastin next week, then scanned June 3….drs say… try not to worry… trying not to ….anyone ever have an elevated ca and it be nothing??? glad to join group…p.s. I am with penn medicine…

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Hello @mommyjeanne3 and welcome to Mayo Connect and to the discussion group on Ovarian Cancer.

It sounds like you have experienced a lot of treatments in your journey with cancer. While you wait for others in this group (@rochellewisner @starko @falconfly @odette) to reply to your post, I'd like to say how happy I am that the Avastin has not affected your appetite or your ability to sleep and exercise.

Will next week's Avastin be your second treatment?

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@rochellewisner

I know how you feel, my CA 125 is rising from 14 after chemo to 40, a steady incline. It’s a bad cancer to have and we can only keep on living everyday and yes it’s all in God’s hands.
If you ever want to talk, I live in Washington State 6 months and in Arizona where I go to Mayo for my care. It’s a wonderful place to be with this cancer. My name is
Rochelle.

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Hello @rochellewisner

I see that your CA numbers are rising. I'm sure this must be concerning to you. Has your doctor offered any suggestions to deal with these increased numbers?

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@rochellewisner

I know how you feel, my CA 125 is rising from 14 after chemo to 40, a steady incline. It’s a bad cancer to have and we can only keep on living everyday and yes it’s all in God’s hands.
If you ever want to talk, I live in Washington State 6 months and in Arizona where I go to Mayo for my care. It’s a wonderful place to be with this cancer. My name is
Rochelle.

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@rochellewisner, you'll notice that I removed your personal phone number from the message board. Connect is a public forum. We recommend sharing personal contact information using the secure private message function. I might also add that by sharing here is the forum, you are connecting with several people where all can benefit from group support.

Welcome to Connect, @miyonggilman. Will you return to AZ for your checkup in June or is your cancer care followed locally in WA when you're not near Mayo Clinic?

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@colleenyoung

@rochellewisner, you'll notice that I removed your personal phone number from the message board. Connect is a public forum. We recommend sharing personal contact information using the secure private message function. I might also add that by sharing here is the forum, you are connecting with several people where all can benefit from group support.

Welcome to Connect, @miyonggilman. Will you return to AZ for your checkup in June or is your cancer care followed locally in WA when you're not near Mayo Clinic?

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Hello All,
I have a question for those of you who are on Avastin.
My incredible Mayo oncologist recommended Olaparib as a post chemo/surgery medication for my stage 3C cancer, but I find the copay is $2200+ per month. Outrageous!
So…
Is bevacizumab (Avastin) equivalent to Olaparib? Cheaper?

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@colleenyoung

@rochellewisner, you'll notice that I removed your personal phone number from the message board. Connect is a public forum. We recommend sharing personal contact information using the secure private message function. I might also add that by sharing here is the forum, you are connecting with several people where all can benefit from group support.

Welcome to Connect, @miyonggilman. Will you return to AZ for your checkup in June or is your cancer care followed locally in WA when you're not near Mayo Clinic?

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I'll have my follow up care in Lacey Wa. Then go to Tucson in Oct. and continue whatever is necessary in this cancer journey. In Dec 18, I had surgery hysterectomy and oophorectomy at St Mary's in Tucson. My oncologist said, I am cured. My last CA 125 was 6. But being diagnosed with occc is never easy.

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@starko

Hello All,
I have a question for those of you who are on Avastin.
My incredible Mayo oncologist recommended Olaparib as a post chemo/surgery medication for my stage 3C cancer, but I find the copay is $2200+ per month. Outrageous!
So…
Is bevacizumab (Avastin) equivalent to Olaparib? Cheaper?

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Wow that is outrageous. How much copay is for Avastin? My gynaecologist also recommended it to me for maintenance. I'll discuss it at next appt with my new gynaecologist.

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@starko

Hello All,
I have a question for those of you who are on Avastin.
My incredible Mayo oncologist recommended Olaparib as a post chemo/surgery medication for my stage 3C cancer, but I find the copay is $2200+ per month. Outrageous!
So…
Is bevacizumab (Avastin) equivalent to Olaparib? Cheaper?

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I find the financial burden placed on people by the pharmaceutical companies during cancer treatment outrageous. When people are at their most vulnerable, they should be given the support they need to get well. I would contact your team at the Mayo Clinic and see if they can make any suggestions regarding the cost of this drug. If your doctor recommended it, then perhaps they can advise you on how to cover the cost. Wishing you success and good health!

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@miyonggilman

I'll have my follow up care in Lacey Wa. Then go to Tucson in Oct. and continue whatever is necessary in this cancer journey. In Dec 18, I had surgery hysterectomy and oophorectomy at St Mary's in Tucson. My oncologist said, I am cured. My last CA 125 was 6. But being diagnosed with occc is never easy.

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That is wonderful news! You must be stage 1 OCCC? It is an aggressive form of OC, but it would seem they caught it very early. Stay well.

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