Post-concussion syndrome (PCS) & Healing

Posted by whiteseld @whiteseld, Jun 19, 2025

Hey All:
I have post concussive syndrome after an injury in November. Does this group have zoom mtgs?
Thanks in advance!

Interested in more discussions like this? Go to the Traumatic Brain Injury (TBI) Support Group.

Profile picture for mrhodes @mrhodes

I'm wondering if anyone has experience with, or has learned about, a recurrence of PCS symptoms well after the initial injury and concussion and after what felt like a "full recovery."

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I have experienced and still am exactly what you have described.

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Profile picture for maryjaneevelyn @maryjaneevelyn

Our 16 year old daughter ran headlong into a metal support beam in the dark, full speed, three months ago. She hit it across the face , directly over her nose and mouth. She suffered a concussion, whiplash and passed out for a "moment", had severe tooth pain in many teeth for weeks ( thankfully tooth pain has totally subsided), had a lot of bruising inside the mouth and around her nose, thankfully no broken bones, experienced dizziness and nausea at first, and severe headaches. They did a CT scan at the ER. She came out clear with that, thank God. We took her also to the chiropractor, and many times since. Our chiropractor has now mentioned the term "Post Concussion Syndrome" to us, after 3 months post injury, referring her to a neurologist clinic, which we are waiting to hear from. Our daughter has slept a LOT over the past few months, especially the first many weeks. Her symptoms have subsided mostly, but she continues to have headaches, every day, since her injury. Not constant, but comes and goes. We don't even know what brings them on. She cannot run or jog or even go for a brisk walk without getting a headache from the jarring of her head. We've had a lot of prayer for her and we'll continue in that, praying she continues to heal. We never anticipated these headaches to continue this long. We hope our insurance will cover what she needs, although we have no idea what that means. This is totally new to us and unexpected with her recovery. Hoping for some answers, and soon. She remains tired as well. ❤️‍🩹

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Hi, @maryjaneevelyn - just wanted to check in with you and see how things are going with your daughter who ran into the metal support beam?

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Our 15-year-old son suffered multiple concussions last fall from high school football. It has now been nearly a year, and we believe he is suffering from post-concussion syndrome. His primary symptoms include headaches, social anxiety, occasional fogginess, discomfort around loud noises, and tired eyes. Our next step is to see a neurologist. We welcome any comments, feedback, or next steps on how our son can best cope with these symptoms as he begins the new school year.

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Profile picture for swimman1 @swimman1

Our 15-year-old son suffered multiple concussions last fall from high school football. It has now been nearly a year, and we believe he is suffering from post-concussion syndrome. His primary symptoms include headaches, social anxiety, occasional fogginess, discomfort around loud noises, and tired eyes. Our next step is to see a neurologist. We welcome any comments, feedback, or next steps on how our son can best cope with these symptoms as he begins the new school year.

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Welcome to Mayo Clinic Connect, @swimman1. I moved your post here so you could chat with others who've discussed post-concussion syndrome.

Will he get a chance to visit with the neurologist before starting school for the year? What are his feelings about the post-concussion syndrome and managing his symptoms at school?

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Profile picture for Lisa Lucier, Moderator @lisalucier

Welcome to Mayo Clinic Connect, @swimman1. I moved your post here so you could chat with others who've discussed post-concussion syndrome.

Will he get a chance to visit with the neurologist before starting school for the year? What are his feelings about the post-concussion syndrome and managing his symptoms at school?

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His school has already started this week. We are planning the neurologist visit in the next week or so. Today is his 3rd day of the school year and he is showing some depression, as it was a struggle for him to get out of bed. We are trying to be positive for him and have him discuss his day and share his feelings with us at dinner.

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Profile picture for juliannm79 @juliannm79

I'm wondering about PCS myself. I had a retro sigmoid craniotomy 7 years ago- to remove an AN tumor. It left me with some balance issues, partial deafness, brain fog and fatigue. In April I fell and was diagnosed with a concussion. Now dealing with constant headaches- dull, usually top of head, intensified fatigue and very low moods etc... all, and more of which I understand is normal for brain concussion. I see an OT

As of late- I've notice an occasional stabbing pain in the left side of my head- which is the side of the brain surgery.
No one has suggested a neurologist. Am I over reacting to think seeing one would be a good idea? I'm not sure if I should go back to Mayo (where I had the surgery) or push for one in Mpls- where I live.
Feedback welcome and appreciated.

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@juliannm79 - how are you doing? Were you able to get any answers about PCS?

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Profile picture for Lisa Lucier, Moderator @lisalucier

@juliannm79 - how are you doing? Were you able to get any answers about PCS?

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@lisalucier Not really. I did find help with my doctor- after reaching out to Mayo who sent me back to my local doctor, who prescribed a low dose tricyclic. which helped the headaches. I'm still struggling with fatigue.
Thanks for checking back.

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my son has been dealing with PCS for a little over two years, we are just trying to have some clarity of what is typical and things we can watch for as we navigate this. I has been a rollercoaster and just trying to navigate in an area with little research for his age group.

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Profile picture for swimman1 @swimman1

Our 15-year-old son suffered multiple concussions last fall from high school football. It has now been nearly a year, and we believe he is suffering from post-concussion syndrome. His primary symptoms include headaches, social anxiety, occasional fogginess, discomfort around loud noises, and tired eyes. Our next step is to see a neurologist. We welcome any comments, feedback, or next steps on how our son can best cope with these symptoms as he begins the new school year.

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@swimman1 How is he doing? I don't have any insurance and neurologists don't respond when I message for information. 19 months with Post Concussion Syndrome here. I've found a lot of help reading descriptive posts. Like one lady had no insurance but had a retired DR at her church that was giving her suggestions - playing games on the internet. He said any game, because they all have a goal that you have to process out. So I do Words with Friends, Solitaire, Word Blitz, etc. Social anxiety is more of a problem now. It's the little setbacks that - whether a common slip or your braining having a small slip - feels like someone pulled the chair from out underneath you. I come down harder on myself. Recently, I had some people that knew I had a TBI intentionally give me the wrong information. They were joking, they said. They claim, they thought I was ok. I asked them - why would you give people false information when you know they were going to repeat it, if not to make them make a fool out of themselves in front of others? How is that a joke?

The headaches, eye pain/tired eyes, constant ringing is very draining. I feel like I haven't had a restful sleep in forever. My body feels on edge 100% of the time. I just can't relax. The loud noises are amplified and I sometimes I go into a small room for less distractions. Even the bathroom has become a peaceful place where I can shut out light contrasts, movement, noise, all the things in the house.

I hope you post replies on how your son is doing and what Neurologists have suggested. God bless.

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