New Study

Mbryany
Thanks for sharing. My dysautonomia is the most difficult symptom of my LC. This sounds like a great opportunity. Can you tell us the full name of the study and where is the doctor investigator from or what medical center or location? Is enrollment going to be throughout various states?
I am anxiously awaiting the Yale study however a very similar study with same med out of California closed enrollment and although I haven’t seen results many of us think they may not have found a statistically significant difference and this is why they stopped enrolling. However I had a LC buddy who did do the Yale study and after 4 yrs feels better. We are not sure if she got the active comparator

I think a problem for a lot of us is we have no proof of having had Covid. My doctor would have helped me enroll in a university study, but I had only had a home test for my bout with Covid, and could not “prove” that I had ever had Covid.
Anyway, I hope some of these studies will give clues for treatment. It all takes so long, and many of us have already been suffering for years.

I know but fortunately my doctor performed an anti bodies test, even before I was vaccinated. My antibodies are high but I’m still suffering with symptoms.
But absolutely agree with you so many of us, for sooo long!
So sorry you’re going through this as well, wishing you a better health and recovery!

I’m sorry you too are going through this condition.
So the study I’m participating in is through NYU Langone here in NYC. He only said this particular study is for Dysautonomia suffers and being done though I believe he said three other medical institutions here in NY. And he did not give me the name of the study.
That’s great your buddy is feeling better after so long. I hope things keep going in an improving direction.
And yes unfortunately some of this studies or clinical trials are going to be trial and error, just hope they just keep going forward until treatment and/or recovery is established.

Any studies going on for those of us suffering from the Covid Vaccine? I have all the long Covid symptoms but very little information as to any studies.

I know I had Covid. Positive home test, plus ALL the symptoms. I was moderately ill for three weeks, and seemed to recover. But since the test was not recorded by a hospital or doctor, I cannot participate in any study.
Then, six weeks after I’d seemed to recover, I presented with all sorts of odd symptoms. For me mostly sensory. I have hearing loss, vision loss, tinnitus, hyperacusis, dizziness, and digestive issues.
When I was tested for antibodies, I no longer had any. It’s been over two years since my infection, so I suppose that is why. This virus does not seem (in some), to keep antibody protection.
I have friends who apparently have vaccine damage. No help for them either.
Still, at some point the studies may help us....if we last that long.

Sorry for your condition and suffering. I too have some of the same symptoms, I of course want to have hope of recovering but have also accepted what is. Not even sure at this point if it’s the virus still lingering in my body (as some medical professionals are theorizing) or just permanent damage after the infection.
It’s very frustrating and sad that you think once you get pass the initial infection you’ll be ok…nope! To know we would be sick and suffering years later.
Stay positive, enjoy lulls in the condition, pray and keep going forward in any capacity you can!
I wish you better health and recovery.

I try to stay positive, but since my condition is still worsening, it is hard.

I know exactly how you feel. I have my bad days too, unfortunately more than good ones. And you feel if or when this will end.
It is hard, fighting to keep going and get through. I try (I mean really try) and find happiness in the small things now a days. I hope you will too.

If I had the tiniest bit of improvement, I believe I could relax and accept a long recovery. As it is, I can’t help but project where I may be in three, six months! It frightens me, and I know I cannot heal if I am frightened.
I continue with different treatments, and hope for a breakthrough, but nothing yet.
Thank you for your kind thoughts❤️