New Member

Posted by swl1956 @swl1956, 1 day ago

Greetings! I've just joined here due to the American Cancer Society's CSN (Cancer Survivors Network) forum has announced they are terminating their website. It was a good one and I found it very helpful during my Pca journey thus far. I'm hoping the Mayo Clinic's site will be as good or better? Quick background; diagnosed fall 2023 with Gleason 4+3=7. Two biopsies confirming. Had MRI, bone scan, PSMA PET scan, and Prolaris genetic test all of which concluded no spread outside of gland. Was told I was a good candidate for focal therapy due to single lesion and in an optimal position. So I chose IRE Nanoknife procedure which was successful confirmed by imaging and biopsy however six months later PSA rose and another PSMA PET scan indicated activity in the pelvic lymph nodes. This initiated more treatment of 40 sessions pelvic IMRT total 80gy and taking Orgovyx and Zytiga for a prescribed 24 months. I'm a little over a year into the ADT and my PSA is .05 over the past few tests. The ADT with second gen Zytiga is beating me up a bit. I'm hopeful I'll start feeling better when this regimen finally ends and hope that it's been effective enough to keep my Pca in remission for a while?
Anyhow, I'm hoping I'll be welcome here.

Interested in more discussions like this? Go to the Prostate Cancer Support Group.

Of course you're welcome here. And... you bring with you an important lesson. Sometimes treatment doesn't work and you have to move on to the next tool in the box.

May the box always have more tools! 👍

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