New Meet Up Group?
I’m thinking of starting up a MEET UP group for couples whose spouse has dementia. I want to include the spouses too! It can be lunch, dinner, or just cocktails. Our friends have been thinning out and I’m beginning to feel totally isolated and lonely as I’m a 24/7 caretaker.
I’m not asking you to join because I know we are all over the place and I am in Sarasota, Fl. I want your honest opinion on this. Do you think it would work and worthwhile to pursue?
Interested in more discussions like this? Go to the Caregivers: Dementia Support Group.
My mom has dementia and my dad is a very healthy 85 year old. He has lost many connections because he is a full time caregiver. If there was such a support group in our area, I would heartily encourage them to join. Hope that helps:). Good luck with it
@maryjow718 This is a terrific idea. Couples could come and go to these Meet Ups that occur on the same day and time each month. I'm not a 24/6 Caregiver and my partner does not have dementia. If he did I would want to go to this. I'm not aware of anything like this in other cities. If there are others in FL maybe you could ask for ideas and input from another organizer on how best to start this?
I can offer a slightly different idea. We have a husbands' group that has grown so large that it had to be divided into 2 groups. Participants are husbands whose wives have a form of dementia. Several participants have lost their wives; however, they continue to attend. At some meetings, a guest speaker is invited. Examples: physical therapist, geriatric medical doctor, eldercare attorney, etc. Meetings are held monthly, and are hosted by a local hospital. I think this same concept could be handled virtually.
I think it’s a great idea, because the person with dementia can be included. One place you can go together as a couple and not worry if you have to leave them alone.
I would love to be in a group like that however I’m all the way across the country in Washington.
You are very fortunate and your group as well, that you can leave your spouse alone or with a caretaker. Maybe it’s the stage John is in but I can’t go to mailbox without him, hence the idea of finding a group that we can all go. I figured it would help with socializing and for me as well! I’m so happy for you that the group was a success.
I would love to participate in a group like this - even if it had to be virtually due to distance. I think it’s a great idea!
@maryjow718 I'm in Sarasota Fl too. I wonder if we have crossed paths at caregiver support groups. I know the support group at SMH memory care offers a group for spouses and caregivers. I have met so many nice people at support groups in Sarasota/Lakewood Ranch. Some of us have gone out as couples to dinner. I go to the support group at YMCA Lakewood Ranch and Town Square. Message me. 941/228-6699
I think it is a wonderful idea. If anyone else lives in New orleans area, please spesk up-would love to meet!
This isn’t as spontaneous as a Meet Up might be, but we have something here called The Friends Cafe for caregivers to enjoy together with their loved ones with dementia. It’s a lunchtime cafe with a great meal and a program all can enjoy (music, etc). It’s sponsored by the folks that lead the support group in our county. The broader term is “Memory Cafe” and communities all over the world offer these gatherings. Not cookie cutter either. Many different types. Last year we had one in a barn partnering with an equine therapy program.