New medication: Anyone taken Gabapentin for internal tremors?

Early in my LC journey I had a tilt table and ear, nose, throat study that detected "some level of dysautonomia", but then when I went to Mayo and had another tilt table my dysautonomia was not detected. Time separation about a year. I have been told that's progress in combating LC when dysatutonomia goes away.

I’ve been on gabapentin since 2020. I can’t tell if it has done anything for my internal vibrations. Still searching (with my doctor) for something that will irradiate those pesky vibs! 😂.

May I ask if you had/have any side effects from it?

Happy to hear you no longer are suffering from it.
I had Covid in Aug 22 but was just diagnosed with Dysautonomia just this past December (23). Praying this isn’t a permanent condition for me.

None that I’m aware. I’m on a relative medium dosage so that might be considered. After researching for years I’m of the conclusion the general medical field don’t have the answers to our dilemma. But I think they are getting close. We just have to hang on and live our lives the best we can.

I’ve been on Gabapentin since spring of 2020. It’s been essential for treating my dysautonomia. I’ve had a terrible time with it. I was too sick to take a tilt test. I’m exhausted being in the sympathetic system all the time. I have to work very hard with breathing and resting to get into the parasympathetic. Also, if my body starts something like coughing, it can just go on and on because nothing shuts it off - messed up signals between the parasympathetic and sympathetic. Gabapentin has been a life saver with that. Once I started taking them I could get my system to calm down enough to regulate better. I’m also on an experimental HIV drug protocol that has helped me so much. My blood pressure is mostly stable now, and before it would get horribly high, like 192/102, but then in the same day it would go down to as low as 56/40. I was so sick I couldn’t really get out of bed very often. I think I was at about 20% of my precovid energy. After about 1 1/2 months I had nearly 80% back. Of course, then I got Covid again. I’m know at 50-60%, and hoping that I’ll someday get back up to 80%

Ok, I’m pretty much going through the same with my sympathetic system. And you are so right it’s exhausting! My blood pressure doesn’t get too high, my problem is my heart rate. I can be sitting or even laying down and my heart rate will go up to the 120’s, but my blood pressure will stay relatively ok, around 126/80 or lower. With the Gabapentin, I am hesitant to take because of the possible side effects (just didn’t want to add more symptoms to my plate) but at this point I’m willing to try to get some level of relief.
Thank you for sharing your experience. I’m sorry your suffering as well, wishing you better health soon.

I started experiencing severe abdominal pain. I had little kids at that time, and the pain was as bad as any I had ever had. My gastro did all those tests and said they couldn't find anything. I went home feeling helpless. I kept thinking, what is different? It can't be my imagination.

So I went in line and looked the drug up. BLACK BOX warning, big as the sun... can cause severe abdominal pain! My gastro had my last of drugs. What I have jabbed is that we still have to self advocate abdominal research, because doctors don't always get things right, even though they have more info than we do. But they don't have our instincts.

Oh wow, sorry you went the that. But Thank you for sharing your experience too. It’s a crap shoot with medication, it might help with one symptom but cause a problem with something else. You’re absolutely right, we know when something is wrong with our bodies. Why symptoms are not showing up in test is a mystery.
It’s been two years for me and I’m tried of doctors appointments and test with no resolve. But it trying to keep pushing forward.

Thank you for your comment. One thing I am excited about is this doc, who is an ent, getting me tested for obscure thyroid conditions. This affects so many things in our bodies. Any doc can and should do these tests, but it is a tough thing to find. Dont give up on yourself!!! The doctors may not think you are worth the extra effort, but I am absolutely sure you are!

And watch out for meds because even docs who have your meds list, or who may have prescriped them for you, don't seem to register those meds sometimes. Just like my gastro doc missing the gabapentin issues, I had that experience with another ent. I was suffering from a very dry throat. It was awful. Ent tried me on reflux meds for a month. Then nasal spray for a month. The third month he said he was going to send me to a speech therapist to help me get rid of my throat clearing habit. Fortunately, I had seen an oral surgeon the day before. She said my mouth was so dry. I told her it was my meds. I asked, can that dry mouth make my throat dry too. Yes! She gave me xilital tabs. This cleared the problem 100%. I asked the ent what he thought about that and he said he thought it might be the problem, then went on to tell me which speech person he thought in should see. He had my meds list too. I wasted almost 3 months suffering because of his not thinking about my meds. Bottom line: we ALWAYS have to self advocate , and never assume any doc knows everything. I admit they have a tough job. But for me, my 2 incidents have left me very untrusting.