← Return to New medication: Anyone taken Gabapentin for internal tremors?

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@anned22

I’ve been on Gabapentin since spring of 2020. It’s been essential for treating my dysautonomia. I’ve had a terrible time with it. I was too sick to take a tilt test. I’m exhausted being in the sympathetic system all the time. I have to work very hard with breathing and resting to get into the parasympathetic. Also, if my body starts something like coughing, it can just go on and on because nothing shuts it off - messed up signals between the parasympathetic and sympathetic. Gabapentin has been a life saver with that. Once I started taking them I could get my system to calm down enough to regulate better. I’m also on an experimental HIV drug protocol that has helped me so much. My blood pressure is mostly stable now, and before it would get horribly high, like 192/102, but then in the same day it would go down to as low as 56/40. I was so sick I couldn’t really get out of bed very often. I think I was at about 20% of my precovid energy. After about 1 1/2 months I had nearly 80% back. Of course, then I got Covid again. I’m know at 50-60%, and hoping that I’ll someday get back up to 80%

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Ok, I’m pretty much going through the same with my sympathetic system. And you are so right it’s exhausting! My blood pressure doesn’t get too high, my problem is my heart rate. I can be sitting or even laying down and my heart rate will go up to the 120’s, but my blood pressure will stay relatively ok, around 126/80 or lower. With the Gabapentin, I am hesitant to take because of the possible side effects (just didn’t want to add more symptoms to my plate) but at this point I’m willing to try to get some level of relief.
Thank you for sharing your experience. I’m sorry your suffering as well, wishing you better health soon.