Connect
New Diagnosis Of HCM
Hello everyone,
I’m new to the group. My husband was diagnosed with hypertrophic cardiomyopathy (HCM) after his cardiologist detected a murmur during his routine yearly visit. He has a history of peripheral vascular disease (PVD) in both lower extremities, for which he underwent revascularization with nine stents in 2020. He has been doing surprisingly well since then, with good blood flow and no further blockages.
Following the discovery of the murmur, an ultrasound of his heart was performed, and the cardiologist recommended a follow-up MRI. The MRI revealed some thickening of the ventricular walls, along with near akinesis of the basal inferior wall. However, his ejection fractions were within normal limits. There is some aortic stenosis present, but no left ventricular outflow tract (LVOT) obstruction.
Importantly, he is currently asymptomatic. We received a call from his cardiologist informing us that the MRI results looked good. Our follow-up visit is scheduled for next week.
All in all this information has been very helpful with my anxiety. I am a retired nurse and understand what we may be facing.
Like
Helpful
HugInterested in more discussions like this? Go to the Hypertrophic Cardiomyopathy (HCM) Support Group.
Connect
@JustinMcClanahan Hi Justin,
No I have not been diagnosed with HC. I was diagnosed with an ectopic heart beat in 2016. It has not given me any grief apart from one episode where my heart rate jumped to 180. One tablet a day keeps this under wraps.
In January 2025 I developed plantar fasciitis, achilles tendinitis, and sudo gout three times within two months, abled by crutches to get around. A podiatrist designed orthotics, and things became less painful. In July, as I was walking (as I have always done) I noticed my calves getting
tighter and tighter and decided I had some sort of vascular problem which I then looked into.
Told by a top specialist at St Vincents Hospital Sydney, that they could not do anything to help me (apart from drugs) basically because my arteries were too far gone, I picked myself up of the ground (so to speak) and asked for another opinion from another top Sydney hospital and with a mother top specialist. There is nothing like hearing you have some light and hope! I underwent surgery last January, where he entered the arteries on my left leg. Shaved away some plaque and inserter four or five yellow balloons. The pulse in my foot came back and the blood flow improved whereby I notice normality once again. My right leg was operated on six weeks later, and the same happened, although there was one artery that could not be entered into.
Sadly, I have been diagnosed with the lipo gene and after ultra sounds two weeks ago, the plaque has started to build once again.
I am on Rosavustatin, blood thinners and a heart tablet to regulate the beat. All of which I am told is the most they can give me.
I am 77 years old, 5.6" tall and retired from our own business last week. My husband has alzheimers and I care for him at home. I have had the privilege of playing many sports at top level and exercising every day, had a super diet for the last fifty years, (controlling my asthma through this) a glass of red wine each night and a very healthy lifestyle around family and friends. I have so much to live for and want to experience the years ahead seeing my grandchildren grow up and being able to participate in life with them.
I would love to know if anyone has ever been able to combat the lipo gene and hence reducing plaque?
Thank you for your time
Sharon