Connect
New approach to Treating Drug-Resistant Epilepsy
Hi, good evening to all!
Just wanted to share with you this article about a new study by researchers at Mayo Clinic that brings new hope for those with refractory epilepsy.
https://newsnetwork.mayoclinic.org/discussion/new-study-in-brain-communications-finds-personalized-deep-brain-stimulation-shows-promise-for-drug-resistant-epilepsy/
https://www.cureepilepsy.org/news/mayo-clinic-study-highlights-a-new-approach-to-treating-drug-resistant-epilepsy/
Chris (@santosha)
Like
Helpful
HugInterested in more discussions like this? Go to the Epilepsy & Seizures Support Group.
Connect
@santosha Is this just a treatment for refractory epilepsy, or is this a treatment they are exploring for various types of epilepsy?
Hi @closetmonster93
Happy to hear from you again.
I understand that this new study specifically focuses on patients who have drug-resistant epilepsy.
Have a nice weekend!
Chris (@santosha)
Thought I'd invite into this discussion some others who've talked about drug-resistant epilepsy and may be interested in this article about a new study bringing hope for this type of epilepsy @auroralm @kimroepke @joseph1963 @jakedduck1 @earlylonghauler @lovingtruth83.
-
Like -
Helpful -
Hug
3 ReactionsGood information to know, as I have read the study, and it is being used for other neurological disorders and psychiatric disorders as well. Hopefully an option, for those of us that are drug resistant.
Thank you.
-
Like -
Helpful -
Hug
1 ReactionThanks for sharing this. I know that the study participants all had temporal lobe epilepsy. Since my seizures are not focal, I wonder whether or how this technology could be applied to people like me. My seizures are also very infrequent, making them difficult to study. I have massive tonic clinic episodes followed by 3 to 5 hours of unconsciousness, once every couple of years.
Thank you thinking of me, the article is an interesting read. My sons doctor is referring him to UCI for in-patient study. She said he would benefit better with possibly having surgery.
What about autoimmune refractory epilepsy? I have had refratory temporal lobe epilepsy for over 20 years. 4 years ago, diagnosed with GAD65 autoimmune mediated epilepsy or possibly encephalitis. Apparently, there is no cure. What's so frustrating is the lack of knowledge about my situation, and autoimmune epilepsy. Have tried just about every anti-inflammatory med available (steroids, Cellcept, various infusions (including IVIG, Actemra injections) and nothing helps. My doctors at NYU and Mayo are stymied,
particularly with respect to the GAD65 aspect . I rarely see autoimmune epilepsy discussed, much less in context of GAD65. Hopeless and defeated. Cognitive decline accelerates as brain damage from seizures and many strong meds continues.