Neuropathy pills: How to avoid scams?

Posted by wideawakechas @wideawakechas, Oct 26, 2021

Has anyone heard of or tried a pill treatment called Vita Soothe Pro? Nerve Savior?

Interested in more discussions like this? Go to the Neuropathy Support Group.

@bigjohnscho

I am new to this forum although I have been suffering with peripheral neuropathy for 2 years (none diabetic). Like most sufferers I have searched endlessly to find supplements that provide some relief and a possible cure. My search has proved how impossible this quest is and so expensive due to misleading adverts and down right scams.What would be really helpful if members posted their experiences with supplements they’ve tried , which were useless/helpful or obvious scams. I am sure there must be some helpful supplements out there and we would all benefit if these were posted on this forum.

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@kgitti
Has Topamax and gabapentin affeted your vision?
Jake

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@pghspinupgal

i’m trying to be positive i really am, i was a very active wife mom, and my job, now my balance is wobbly im embarrassed to go anywhere , looks like im drunk or sumthin , im in alot of pain but only take gabapentin. My PCP won’t give me anything for pain so she referred me to a pain clinic and she didn’t wanna give me any pain medicine. She wanted to put me on some sort of patch that was lasted three days buprenorphine patch or something like that.? i refused , ny copper was very low , 5 normal is 140 i get iron infusions once a year , b12 shots , idk .. im soo hopeless .. I feel like nobody will listen and I’m being medically gaslit. and being denied pain meds bcuz of the way i look .

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accupuncture helped me with pain - it's gone. I still have numbness. For the past 8 months I have been weating barefoot shoes exclusively and for the past month or so, I have been using magnesium lotion mixed with a drizzle of castor oil on my feet (careful, it makes them slippery). I have found both helped. I still have numbness but it seems to have improved.

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@bigjohnscho

I am new to this forum although I have been suffering with peripheral neuropathy for 2 years (none diabetic). Like most sufferers I have searched endlessly to find supplements that provide some relief and a possible cure. My search has proved how impossible this quest is and so expensive due to misleading adverts and down right scams.What would be really helpful if members posted their experiences with supplements they’ve tried , which were useless/helpful or obvious scams. I am sure there must be some helpful supplements out there and we would all benefit if these were posted on this forum.

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I was having really sharp pain in my feet at night for about 2 years, then about 6 months ago the sharp pain stopped, but continued to have pain and tingling in toes, especially big toe. Diagnosed with peripheral neuropathy. I don't want to use drugs so have been trying lots of creams, etc. with no luck. But someone in this group mentioned they had success with Ananda Professional CBD Topical Salve, so I ordered it.
Just this past week had so much discomfort I couldn't sleep so rubbed on some of the salve, fell asleep shortly and slept all night which is unusual for me. Did this for 2 nights and it was successful. The salve is about $25. I want to see if the magnesium creams that people recommend work and maybe a little cheaper, but if not at least I found something for relief.

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@ggayle

There was One Amazon thing that I ordered, which didn’t even work and I returned. The company offered me $50 to give it a good review.

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Which item was that? It’s bad companies give $ for a good review. Imho

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@bigjohnscho

I am new to this forum although I have been suffering with peripheral neuropathy for 2 years (none diabetic). Like most sufferers I have searched endlessly to find supplements that provide some relief and a possible cure. My search has proved how impossible this quest is and so expensive due to misleading adverts and down right scams.What would be really helpful if members posted their experiences with supplements they’ve tried , which were useless/helpful or obvious scams. I am sure there must be some helpful supplements out there and we would all benefit if these were posted on this forum.

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My wife has peripheral neuropathy, and she has found that the vitamins and supplements recommended by Mayo do seem to provide some relief from her worst symptoms, but only if taken daily.

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@bigjohnscho

I am new to this forum although I have been suffering with peripheral neuropathy for 2 years (none diabetic). Like most sufferers I have searched endlessly to find supplements that provide some relief and a possible cure. My search has proved how impossible this quest is and so expensive due to misleading adverts and down right scams.What would be really helpful if members posted their experiences with supplements they’ve tried , which were useless/helpful or obvious scams. I am sure there must be some helpful supplements out there and we would all benefit if these were posted on this forum.

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I have tried everything from supplements to electric pulse, spent hundreds of dollars, nothing I have tried has helped, if anyone knows of something that will help please let me and others know

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@billydobbs

I have tried everything from supplements to electric pulse, spent hundreds of dollars, nothing I have tried has helped, if anyone knows of something that will help please let me and others know

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Welcome @billydobbs, Sorry you haven't found something that provides some relief yet. Not sure if you have seen the Foundation for Peripheral Neuropathy website yet but it has a pretty comprehensive list of complementary and alternative treatments that neuropathy patients have found helpful - https://www.foundationforpn.org/wp-content/uploads/2020/08/Complementary-and-Alternative-Treatments-Revised-2020-final.-1.pdf.

What symptoms bother you the most?

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@ditucson

My wife has peripheral neuropathy, and she has found that the vitamins and supplements recommended by Mayo do seem to provide some relief from her worst symptoms, but only if taken daily.

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Would you please share more details on the vitamins and supplements that seem to be helping?

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@johnbishop

Welcome @billydobbs, Sorry you haven't found something that provides some relief yet. Not sure if you have seen the Foundation for Peripheral Neuropathy website yet but it has a pretty comprehensive list of complementary and alternative treatments that neuropathy patients have found helpful - https://www.foundationforpn.org/wp-content/uploads/2020/08/Complementary-and-Alternative-Treatments-Revised-2020-final.-1.pdf.

What symptoms bother you the most?

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Numbness and hardly any feeling in my feet plus some stinging and burning in my legs

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@bigjohnscho

I am new to this forum although I have been suffering with peripheral neuropathy for 2 years (none diabetic). Like most sufferers I have searched endlessly to find supplements that provide some relief and a possible cure. My search has proved how impossible this quest is and so expensive due to misleading adverts and down right scams.What would be really helpful if members posted their experiences with supplements they’ve tried , which were useless/helpful or obvious scams. I am sure there must be some helpful supplements out there and we would all benefit if these were posted on this forum.

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I agree 100% with you

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