I am new to this forum although I have been suffering with peripheral neuropathy for 2 years (none diabetic). Like most sufferers I have searched endlessly to find supplements that provide some relief and a possible cure. My search has proved how impossible this quest is and so expensive due to misleading adverts and down right scams.What would be really helpful if members posted their experiences with supplements they’ve tried , which were useless/helpful or obvious scams. I am sure there must be some helpful supplements out there and we would all benefit if these were posted on this forum.
Hubby has PN which is getting progressively worse. He is not diabetic. Acupuncture took away most of the pain but the numbness is progressively climbing up his legs. He also had it in one thumb. I worry about him stumbling. He takes Mentanx, R-alpha lipoic acid and I’m wondering if the lions mane would help. He doesn’t have CDIP so doesn’t qualify for infusions. I try to massage his feet and legs with essential oils at night but nothing seems to help helping his numbness. So sad….
Hubby has PN which is getting progressively worse. He is not diabetic. Acupuncture took away most of the pain but the numbness is progressively climbing up his legs. He also had it in one thumb. I worry about him stumbling. He takes Mentanx, R-alpha lipoic acid and I’m wondering if the lions mane would help. He doesn’t have CDIP so doesn’t qualify for infusions. I try to massage his feet and legs with essential oils at night but nothing seems to help helping his numbness. So sad….
@pghspinupgal
No, but I have not tried to find anything to control the numbness. I personally don't believe there is anything that helps. Although I have read a few people who claim they have gotten relief. But those claims are rare. My neuropathy is what it is and I've been told it's now permanent. I don't dwell on the possibility it will prevent me from walking although that is a possibility. I have only tried Neurontin, Lyrica and various opioids. None helped the numbness but the fentanyl patch helped the pain some back when I had pain.
I feel a positive attitude helps. Why worry about something that may never happen. If I get other complications I will deal with them as they occure. According to my doctors neuropathy has already caused my ED, bowel and bladder problems along with leg weakness. I'm going to concentrate on the present not anticipate future problems.
Best of luck to you,
Jake
i’m trying to be positive i really am, i was a very active wife mom, and my job, now my balance is wobbly im embarrassed to go anywhere , looks like im drunk or sumthin , im in alot of pain but only take gabapentin. My PCP won’t give me anything for pain so she referred me to a pain clinic and she didn’t wanna give me any pain medicine. She wanted to put me on some sort of patch that was lasted three days buprenorphine patch or something like that.? i refused , ny copper was very low , 5 normal is 140 i get iron infusions once a year , b12 shots , idk .. im soo hopeless .. I feel like nobody will listen and I’m being medically gaslit. and being denied pain meds bcuz of the way i look .
I am new to this forum although I have been suffering with peripheral neuropathy for 2 years (none diabetic). Like most sufferers I have searched endlessly to find supplements that provide some relief and a possible cure. My search has proved how impossible this quest is and so expensive due to misleading adverts and down right scams.What would be really helpful if members posted their experiences with supplements they’ve tried , which were useless/helpful or obvious scams. I am sure there must be some helpful supplements out there and we would all benefit if these were posted on this forum.
i’m trying to be positive i really am, i was a very active wife mom, and my job, now my balance is wobbly im embarrassed to go anywhere , looks like im drunk or sumthin , im in alot of pain but only take gabapentin. My PCP won’t give me anything for pain so she referred me to a pain clinic and she didn’t wanna give me any pain medicine. She wanted to put me on some sort of patch that was lasted three days buprenorphine patch or something like that.? i refused , ny copper was very low , 5 normal is 140 i get iron infusions once a year , b12 shots , idk .. im soo hopeless .. I feel like nobody will listen and I’m being medically gaslit. and being denied pain meds bcuz of the way i look .
Had two stents put in me two months ago on left leg. Now my right leg numb all the time . Going no where with this neuropathy. Pills and garbage never had this problem before. I’m lucky I get two hours of sleep a night.
I am new to this forum although I have been suffering with peripheral neuropathy for 2 years (none diabetic). Like most sufferers I have searched endlessly to find supplements that provide some relief and a possible cure. My search has proved how impossible this quest is and so expensive due to misleading adverts and down right scams.What would be really helpful if members posted their experiences with supplements they’ve tried , which were useless/helpful or obvious scams. I am sure there must be some helpful supplements out there and we would all benefit if these were posted on this forum.
I am new to this forum although I have been suffering with peripheral neuropathy for 2 years (none diabetic). Like most sufferers I have searched endlessly to find supplements that provide some relief and a possible cure. My search has proved how impossible this quest is and so expensive due to misleading adverts and down right scams.What would be really helpful if members posted their experiences with supplements they’ve tried , which were useless/helpful or obvious scams. I am sure there must be some helpful supplements out there and we would all benefit if these were posted on this forum.
I’ve had neuropathy on my hands, feet and legs. I’m thinking of trying the scrambler treatment. Has anyone tried this? It’s supposed to scramble pain signals and get rid of pain or decrease it.
Welcome @extet, While there is no real cure for neuropathy there are many available treatments that offer some level of relief. It can be a confusing journey trying to find what helps each of us and there are a lot of members on Connect that have shared what has helped them. I shared my neuropathy journey in another discussion along with other members here - Member Neuropathy Journey Stories: What's Yours? - https://connect.mayoclinic.org/discussion/member-neuoropathy-journey-stories-whats-yours/.
The Foundation for Peripheral Neuropathy has a pretty comprehensive list of treatments including complementary and alternative ones here - https://www.foundationforpn.org/treatments/.
If you don't mind sharing, how long have had neuropathy and what symptoms do you have that bother you the most?
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Does anyone have experience with lions mane supplements? I’ve heard that it’s a great supplement for many things.
Welcome @jeannieflores, Here's a search of Connect showing posts by members discussing Lion's Mane and neuropathy - https://connect.mayoclinic.org/search/comments/?search=lion%27s%20mane%20+neuropathy.
If you don't mind sharing, what type of neuropathy and symptoms do you have?
Hubby has PN which is getting progressively worse. He is not diabetic. Acupuncture took away most of the pain but the numbness is progressively climbing up his legs. He also had it in one thumb. I worry about him stumbling. He takes Mentanx, R-alpha lipoic acid and I’m wondering if the lions mane would help. He doesn’t have CDIP so doesn’t qualify for infusions. I try to massage his feet and legs with essential oils at night but nothing seems to help helping his numbness. So sad….
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5 ReactionsYou might want to check out the complementary and alternative treatments listed on the Foundation for Peripheral Neuropathy - https://www.foundationforpn.org/wp-content/uploads/2020/08/Complementary-and-Alternative-Treatments-Revised-2020-final.-1.pdf
i’m trying to be positive i really am, i was a very active wife mom, and my job, now my balance is wobbly im embarrassed to go anywhere , looks like im drunk or sumthin , im in alot of pain but only take gabapentin. My PCP won’t give me anything for pain so she referred me to a pain clinic and she didn’t wanna give me any pain medicine. She wanted to put me on some sort of patch that was lasted three days buprenorphine patch or something like that.? i refused , ny copper was very low , 5 normal is 140 i get iron infusions once a year , b12 shots , idk .. im soo hopeless .. I feel like nobody will listen and I’m being medically gaslit. and being denied pain meds bcuz of the way i look .
I agree been searching for weeks. Toe pain is bad on me.
Had two stents put in me two months ago on left leg. Now my right leg numb all the time . Going no where with this neuropathy. Pills and garbage never had this problem before. I’m lucky I get two hours of sleep a night.
Is there anything that works for peripheral neuropathy?
I’ve had neuropathy on my hands, feet and legs. I’m thinking of trying the scrambler treatment. Has anyone tried this? It’s supposed to scramble pain signals and get rid of pain or decrease it.
Welcome @extet, While there is no real cure for neuropathy there are many available treatments that offer some level of relief. It can be a confusing journey trying to find what helps each of us and there are a lot of members on Connect that have shared what has helped them. I shared my neuropathy journey in another discussion along with other members here - Member Neuropathy Journey Stories: What's Yours? - https://connect.mayoclinic.org/discussion/member-neuoropathy-journey-stories-whats-yours/.
There are also many other discussions and member comments on what has helped. Here's a link to the list of discussions and comments - https://connect.mayoclinic.org/search/?search=neuropathy+what+helps.
The Foundation for Peripheral Neuropathy has a pretty comprehensive list of treatments including complementary and alternative ones here - https://www.foundationforpn.org/treatments/.
If you don't mind sharing, how long have had neuropathy and what symptoms do you have that bother you the most?