Has anyone implanted electro stimulation to alleviate neuropathy pain?

Posted by blowerk1216 @blowerk1216, Jan 25 5:00pm

Has anyone had electro stimulation implanted to alleviate neuropathy pain?

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Profile picture for laurenseavertson789 @laurenseavertson789

@blowerk12 Do you know, if you have a spinal cord stimulator ? Do they ever give oral pain meds as well???Does the stimulator help with all the leg burning & the paresthesia's that accompany Arachnoiditis? I have severe & i also have torn rotator cuff, & don't want a new shoulder...i know that stimulator doesn't help shoulders Think it might help, but i would need some oral meds as well

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@laurenseavertson789 I have a consultation on February 19 with a doctor who specializes in SCS implant.

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Profile picture for blowerk1216 @blowerk1216

@laurenseavertson789 I have a consultation on February 19 with a doctor who specializes in SCS implant.

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@blowerk1216 as I understand it you are mildly sedated and have local anesthesia it’s supposed to be quite painless

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Profile picture for laurenseavertson789 @laurenseavertson789

@blowerk1216 Didn't work for me, but i got Relistor. Because of my high dose oxy, i still get extremely constipated. I drink all day & night. Since i have the suprapubic catheter, this is another problem I have many drug resistant UTI"s have issues of creating additional infections & need IV drug therapy 5 to 7 days.

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@laurenseavertson789 I’m so sorry for all your troubles I feel like a fraud compared to you

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Profile picture for laurenseavertson789 @laurenseavertson789

@blowerk1216 any other specific drugs for constipation. The 10 MG Oxy 4 times a day, plus the extreme pain over lumbosacral region, makes it very difficult etc Feel like a stuffed, bloated, ....When it swings over to bowel incontinence, i can't clean my self up & very dicey to go out in public. i have lost most of the feeling in my lower GI..... So i can't hold stool Overall, it's beyond a nightmare. My GI referral got messed up Too many snow birds here. Because of my fusion, i have much difficulty cleaning up & etc...I'm very depressed, but too many obstacles. But I'm trying to get help. Waitime for neuro, is at least 6 months Know it's futile, but i take senior fitness, chair yoga, have 1 to 1 with instructor. I used to be a work out junkie, was extremely active. but titanium makes everything extra difficult. Have a good PHD counselor.. My pain level is too high, i have to lay on my back, not able to turn over, bend etc.. Looking for a friend as well as advertise Have no real family or people able to assist. Thanks Lauren

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@laurenseavertson789 I use Mobantik

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I had the 7 day trial for Medtronic spinal cord stimulator and it greatly relieved the pain I was experiencing from CRPS on my left side, mainly my knee. I had it implanted at the end of September, 2024, and then had to wait 2 weeks for it to settle in. That was a very painful 22 weeks. But 3 days after it was activated at beginning of October, 2024, I danced at my granddaughter’s wedding! Luckily I have a wonderful nurse who works for Medtronic who I can call if I any pain or problems with the remote that activates it. She adjusts it and I’m about 90% pain free for about 3 months. So from my experience it has helped a lot, even though it’s kind of a weird feeling when it’s stimulating.
Good luck. I went to a pain management clinic in my area where I was diagnosed (after about 6 years of increasing pain) and I kept researching until I found the SCS and eventually the surgeon in the clinic diagnosed me and suggested the trial. You have to advocate for yourself or if you’re lucky to have a family member or friend who can do it for you. I am almost 87 by the way. Pain is the worst!

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Profile picture for gmaj85 @gmaj85

I had the 7 day trial for Medtronic spinal cord stimulator and it greatly relieved the pain I was experiencing from CRPS on my left side, mainly my knee. I had it implanted at the end of September, 2024, and then had to wait 2 weeks for it to settle in. That was a very painful 22 weeks. But 3 days after it was activated at beginning of October, 2024, I danced at my granddaughter’s wedding! Luckily I have a wonderful nurse who works for Medtronic who I can call if I any pain or problems with the remote that activates it. She adjusts it and I’m about 90% pain free for about 3 months. So from my experience it has helped a lot, even though it’s kind of a weird feeling when it’s stimulating.
Good luck. I went to a pain management clinic in my area where I was diagnosed (after about 6 years of increasing pain) and I kept researching until I found the SCS and eventually the surgeon in the clinic diagnosed me and suggested the trial. You have to advocate for yourself or if you’re lucky to have a family member or friend who can do it for you. I am almost 87 by the way. Pain is the worst!

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@gmaj85 I am 81 with serious neuropathy pain. I have a consultation with a doctor who specializes in SCS implants on Feb 19. I am lucky to have plenty of family around to help advocate.

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I had 3 cervical spine surgery from c-4 to c7
With cage put in. A laminectomy and fusions done. All the MRI's I've had they are unable to see what's happening.
My neck was never fixed. I had 2 hematoma's when doing 1st and 2nd surgeries. Replaced with different cage on 3rd one.
Most readings were involved with Lumbar spine pain &/or.
Then found on many hospital sites that I shouldn't do. Do to the hematoma's, the laminectomy & fusions. 50/50 chance. Plus the big problems are more hematoma's & infection. Plus the issue of going up through the cage.
Really do not want to do it.

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Profile picture for John, Volunteer Mentor @johnbishop

Welcome @doctordeuce, You are so right about the fact that there are so many less than helpful devices on the market that are advertised as a cure for neuropathy. There is no cure but there are a lot of treatments that may be able to provide some sort of relief. We just have to find the one that works for us. The Foundation for Peripheral Neuropathy has a pretty comprehensive list of the different treatments if you want to scan through them to learn more - https://www.foundationforpn.org/treatments/.

While you wait for others to respond, you might want to scan through the more than 250 discussions here on Connect when searching for "neuropathy what helps" - https://connect.mayoclinic.org/search/.

I don't have pain with my neuropathy, just numbness and some tingling. Early on in my quest to find something that would help I tried a Zopec DT-1200 for about 6 or so weeks but it didn't provide any relief for me - https://www.zopec.com/products/zopec-electrotherapy-for-neuropathy-and-pain.

My diagnosis is idiopathic small fiber peripheral neuropathy. Have you been diagnosed with a specific type of neuropathy? Do you have pain as a symptom?

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@johnbishop Thanks for replying No I don't have pain, just numbness in my feet. Where did you have someone diagnose your Neuropathy???? I have a pacemaker and need to as my Cardiologist if the (NEURO Go) electric shock floor unit is okay to use with my pacemaker! Stay in touch as it is the best way to let others know of a new development!!!

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Profile picture for blowerk1216 @blowerk1216

@doctordeuce oh good evening I’m in Fayetteville AR

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@blowerk1216 THANKS for reaching out to me! I have only numbness in my feet no pain and that's good! Have you been to see a Doctor that treats Neuropathy?? I' m in Mountain Home so not that far from you. I started with Central Arkansas Advanced nerve and joint center in Conway. I was going there every week and at first 2 times a week, got to be too long a trip so I now go to a Spine center here they do the Lazer treatment on my feet also. I'm still a patient there, but only go for check ups every 90 days!!! Keep in touch!!!!

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Profile picture for doctordeuce @doctordeuce

@johnbishop Thanks for replying No I don't have pain, just numbness in my feet. Where did you have someone diagnose your Neuropathy???? I have a pacemaker and need to as my Cardiologist if the (NEURO Go) electric shock floor unit is okay to use with my pacemaker! Stay in touch as it is the best way to let others know of a new development!!!

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@doctordeuce, I was diagnosed by a Mayo Rochester neurologist in 2016 after having the symptoms for over 30+ years. Sadly he told me the same thing that all my primary care doctors told me after I was diagnosed with idiopathic small fiber PN - there is no treatment that will help with the numbness but there are treatments that can help if you have pain, which is what first brought me to Connect to learn what others with similar symptoms have tried.

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