@blowerk1216 any other specific drugs for constipation. The 10 MG Oxy 4 times a day, plus the extreme pain over lumbosacral region, makes it very difficult etc Feel like a stuffed, bloated, ....When it swings over to bowel incontinence, i can't clean my self up & very dicey to go out in public. i have lost most of the feeling in my lower GI..... So i can't hold stool Overall, it's beyond a nightmare. My GI referral got messed up Too many snow birds here. Because of my fusion, i have much difficulty cleaning up & etc...I'm very depressed, but too many obstacles. But I'm trying to get help. Waitime for neuro, is at least 6 months Know it's futile, but i take senior fitness, chair yoga, have 1 to 1 with instructor. I used to be a work out junkie, was extremely active. but titanium makes everything extra difficult. Have a good PHD counselor.. My pain level is too high, i have to lay on my back, not able to turn over, bend etc.. Looking for a friend as well as advertise Have no real family or people able to assist. Thanks Lauren
@jimhd Have adhesive Arachnoiditis, long time & it's extremely awful I have severe pain from top of my neck down my entire spinal cord. I am fused from C3 thru my sacrum. I seem to be resistant to oxycodone. I get 10 MG every 6 hours. It really has MINIMAL affect. It's progressive & has destroyed last 26 plus years. Was completely paralyzed & I have total numbness & severe paresthesia down both legs ( from knee to toes) Also, now have bowel Incontinence ( as many as 7 to 8 times a day. My kidneys are poor & i am now broke & on Medicare & Medicaid. Had an RN BS & also masters in Health Care Administration Any suggestions on Bowel, severe constipation?? alternating with incontinence ? Plus I'm stuck , sometimes, having multiple Accidents & my fused spine, makes anything to do with this, a nightmare. I've got Relistor (for opioid induced constipation. Take MiraLAX & drink tons of water & etc... Because of adhesive Arachnoiditis, nothing works.. My fusion, makes it very hard, but i use enemas too I had wanted to do trial of pain pump. But i have severe rotator cuff issues, need a new shoulder etc... Any advice for relief constipation? Have tried lot's OTC
@jimhd Have adhesive Arachnoiditis, long time & it's extremely awful I have severe pain from top of my neck down my entire spinal cord. I am fused from C3 thru my sacrum. I seem to be resistant to oxycodone. I get 10 MG every 6 hours. It really has MINIMAL affect. It's progressive & has destroyed last 26 plus years. Was completely paralyzed & I have total numbness & severe paresthesia down both legs ( from knee to toes) Also, now have bowel Incontinence ( as many as 7 to 8 times a day. My kidneys are poor & i am now broke & on Medicare & Medicaid. Had an RN BS & also masters in Health Care Administration Any suggestions on Bowel, severe constipation?? alternating with incontinence ? Plus I'm stuck , sometimes, having multiple Accidents & my fused spine, makes anything to do with this, a nightmare. I've got Relistor (for opioid induced constipation. Take MiraLAX & drink tons of water & etc... Because of adhesive Arachnoiditis, nothing works.. My fusion, makes it very hard, but i use enemas too I had wanted to do trial of pain pump. But i have severe rotator cuff issues, need a new shoulder etc... Any advice for relief constipation? Have tried lot's OTC
@blowerk12 Do you know, if you have a spinal cord stimulator ? Do they ever give oral pain meds as well???Does the stimulator help with all the leg burning & the paresthesia's that accompany Arachnoiditis? I have severe & i also have torn rotator cuff, & don't want a new shoulder...i know that stimulator doesn't help shoulders Think it might help, but i would need some oral meds as well
@blowerk1216 Didn't work for me, but i got Relistor. Because of my high dose oxy, i still get extremely constipated. I drink all day & night. Since i have the suprapubic catheter, this is another problem I have many drug resistant UTI"s have issues of creating additional infections & need IV drug therapy 5 to 7 days.
Are you familiar with a product called (NEURO GO) electric foot device for Neuropathy? I'm treatment on my self as per a Nerve place in Conway, Arkansas that I started with doing Lazer top and bottom of my feet twice a day along with bottom side of both knees and lower back. I also have from the same place an electric 9 volt stimulater that has stick on patches morning tops and evenings bottom of my feet for 30 minutes time. The Lazer is for 1 minute top & bottom and knees, the lower back is 2 minutes. What do you recommend for treatment of Neuropathy? There is sooo many things for Neuropathy on the internet and they are just not worth trying!!!! PLEASE let me know your advice to my questions!!!!
Are you familiar with a product called (NEURO GO) electric foot device for Neuropathy? I'm treatment on my self as per a Nerve place in Conway, Arkansas that I started with doing Lazer top and bottom of my feet twice a day along with bottom side of both knees and lower back. I also have from the same place an electric 9 volt stimulater that has stick on patches morning tops and evenings bottom of my feet for 30 minutes time. The Lazer is for 1 minute top & bottom and knees, the lower back is 2 minutes. What do you recommend for treatment of Neuropathy? There is sooo many things for Neuropathy on the internet and they are just not worth trying!!!! PLEASE let me know your advice to my questions!!!!
Welcome @doctordeuce, You are so right about the fact that there are so many less than helpful devices on the market that are advertised as a cure for neuropathy. There is no cure but there are a lot of treatments that may be able to provide some sort of relief. We just have to find the one that works for us. The Foundation for Peripheral Neuropathy has a pretty comprehensive list of the different treatments if you want to scan through them to learn more - https://www.foundationforpn.org/treatments/.
While you wait for others to respond, you might want to scan through the more than 250 discussions here on Connect when searching for "neuropathy what helps" - https://connect.mayoclinic.org/search/.
My diagnosis is idiopathic small fiber peripheral neuropathy. Have you been diagnosed with a specific type of neuropathy? Do you have pain as a symptom?
Are you familiar with a product called (NEURO GO) electric foot device for Neuropathy? I'm treatment on my self as per a Nerve place in Conway, Arkansas that I started with doing Lazer top and bottom of my feet twice a day along with bottom side of both knees and lower back. I also have from the same place an electric 9 volt stimulater that has stick on patches morning tops and evenings bottom of my feet for 30 minutes time. The Lazer is for 1 minute top & bottom and knees, the lower back is 2 minutes. What do you recommend for treatment of Neuropathy? There is sooo many things for Neuropathy on the internet and they are just not worth trying!!!! PLEASE let me know your advice to my questions!!!!
Welcome @doctordeuce, You are so right about the fact that there are so many less than helpful devices on the market that are advertised as a cure for neuropathy. There is no cure but there are a lot of treatments that may be able to provide some sort of relief. We just have to find the one that works for us. The Foundation for Peripheral Neuropathy has a pretty comprehensive list of the different treatments if you want to scan through them to learn more - https://www.foundationforpn.org/treatments/.
While you wait for others to respond, you might want to scan through the more than 250 discussions here on Connect when searching for "neuropathy what helps" - https://connect.mayoclinic.org/search/.
My diagnosis is idiopathic small fiber peripheral neuropathy. Have you been diagnosed with a specific type of neuropathy? Do you have pain as a symptom?
@blowerk1216 Didn't work for me, but i got Relistor. Because of my high dose oxy, i still get extremely constipated. I drink all day & night. Since i have the suprapubic catheter, this is another problem I have many drug resistant UTI"s have issues of creating additional infections & need IV drug therapy 5 to 7 days.
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@laurenseavertson789 hi there I’ve been prescribed Mobantik that works well for me
@laurenseavertson789 hi there I have been prescribed with Mobantik which works well for me
@laurenseavertson789 have you tried Mobantik?
@blowerk12 Do you know, if you have a spinal cord stimulator ? Do they ever give oral pain meds as well???Does the stimulator help with all the leg burning & the paresthesia's that accompany Arachnoiditis? I have severe & i also have torn rotator cuff, & don't want a new shoulder...i know that stimulator doesn't help shoulders Think it might help, but i would need some oral meds as well
@blowerk1216 Didn't work for me, but i got Relistor. Because of my high dose oxy, i still get extremely constipated. I drink all day & night. Since i have the suprapubic catheter, this is another problem I have many drug resistant UTI"s have issues of creating additional infections & need IV drug therapy 5 to 7 days.
Are you familiar with a product called (NEURO GO) electric foot device for Neuropathy? I'm treatment on my self as per a Nerve place in Conway, Arkansas that I started with doing Lazer top and bottom of my feet twice a day along with bottom side of both knees and lower back. I also have from the same place an electric 9 volt stimulater that has stick on patches morning tops and evenings bottom of my feet for 30 minutes time. The Lazer is for 1 minute top & bottom and knees, the lower back is 2 minutes. What do you recommend for treatment of Neuropathy? There is sooo many things for Neuropathy on the internet and they are just not worth trying!!!! PLEASE let me know your advice to my questions!!!!
Welcome @doctordeuce, You are so right about the fact that there are so many less than helpful devices on the market that are advertised as a cure for neuropathy. There is no cure but there are a lot of treatments that may be able to provide some sort of relief. We just have to find the one that works for us. The Foundation for Peripheral Neuropathy has a pretty comprehensive list of the different treatments if you want to scan through them to learn more - https://www.foundationforpn.org/treatments/.
While you wait for others to respond, you might want to scan through the more than 250 discussions here on Connect when searching for "neuropathy what helps" - https://connect.mayoclinic.org/search/.
I don't have pain with my neuropathy, just numbness and some tingling. Early on in my quest to find something that would help I tried a Zopec DT-1200 for about 6 or so weeks but it didn't provide any relief for me - https://www.zopec.com/products/zopec-electrotherapy-for-neuropathy-and-pain.
My diagnosis is idiopathic small fiber peripheral neuropathy. Have you been diagnosed with a specific type of neuropathy? Do you have pain as a symptom?
@doctordeuce oh good evening I’m in Fayetteville AR
@johnbishop I have peripheral neuropathy and the tingling is combined with pain, often it’s too painful to stand and walk.
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1 Reaction@laurenseavertson789 sorry to hear of your situation