Neuropathy Medications
Hello, read this artical from the FDA dated January 30th, 2020, about dangers of Gabapentin, Lyrica and other drugs. I thought it worthy of our attention : https://www.fda.gov/drugs/drug-safety-and-availability/fda-warns-about-serious-breathing-problems-seizure-and-nerve-pain-medicines-gabapentin-neurontin
Warmest regards, Sunnyflower 🙏
Interested in more discussions like this? Go to the Neuropathy group.
Hi and thanks for your helpful response
The Lyrica made me disoriented.. thought I was having another stroke. Called my oncologist
( treated my NonHodgkins Lymphoma and now my Polycythemia Vera) and he told me it’s not an uncommon side effect of the Lyrica and to stop it
No problems since
I’m making appt with dr who can prescribe the
med marijuana this week
None of my doctors, including my neurologist can prescribe it. Then I have to apply for a card from the state (NJ) before I can fill the prescription. Hope it doesn’t take too long
I hope you get relief and wish I had some special
magic formula to share with you
Awww, that's sweet @irishnanny3, thank you. Same goes for me…neither my neurologist nor my pain management Dr could prescribe so my general practitioner referred me to a prescribing Dr to get certified in NY. It was fairly simple and quick but, a little costly. About $250 for the Dr. and another $250 for the license. Then the product cost which you can shop for sales and may get a new customer discount. I will be interested in your experience, if you care to share. Good luck!
Rachel
Thanks for the info. I’m going in blind, but anxious to see how it goes
I’ll keep you posted
@jesfactsmon
I started a note last night, but had to stop for some reason, and didn't get back until now.
But I think I'll go to a different, more appropriate group, because it doesn't relate to neuropathy medication. I'm not sure where, but somewhere in the mental health group. I don't mind if everyone in this group reads it, but it's moving pretty far from the reason for this conversation.
Jim
@jimhd I'll look for it Jim, thanks.
@jesfactsmon The first psychiatrist I saw gave me the overall label of Major Depressive Disorder, as well as Depressive Bipolar and Atypical Depression. My highs would probably be classified as mild depression by normal people. The two are quite similar.
I've been rating my days on a scale of 1 to 10 at the recommendation of the staff where I self-admitted during my actively suicidal period, 10 being the best day of my life. 4 is preparing to die, I'm not sure how to label 1-3, 5 suicide is somewhat intrusive, 6 it's at the back of my mind, a good day.
I was at 4 for 7 or 8 years, and finally got up to 5 some time after 2010. I thought I'd never reach 6, but I did a few years ago, and I kind of migrate between 5 and 6 now. It's been 5 for a month. My therapist and I have conversations about it, but we don't think I'm at the level where I'm not safe, but I sure do think about it a lot. Life gets too complicated and then overwhelming. I've concluded that 6 is my new 9.
I wrote a rather lengthy message in the depression and anxiety group, responding to a person's recent post, Is depression permanent? I almost always seem to require a lot of sentences to express my thoughts. I should have been asleep long ago because I have to take the car to the shop – again – as early as I can.
Jim
@jimhd Ugh, I hope this doesn't mean you won't get to bed until after the car appt. I do know you are kind of a night owl. I get up between 2 and 2:30 am central time and you are often one of the few posting in the neuropathy discussions when I hop onto Connect usually by 3am or so. I responded to your post over in the depression discussion. Your descriptions so far of what you live with are pretty mind boggling to me. I will leave any further responses to you about this over on that other discussion. I really appreciate you Jim for being so open. I have come to appreciate you more generally as well. It's truly amazing how much fondness one develops for others here. Best, Hank
@rwinney Rachel I just sent you a private message. Hank
@jesfactsmon @rwinney First, Hank, I am glad I help you too!! I get sick of myself and my pain terribly. If I can get out of my sickness, and help you, then I am happy. Rachel, I was just thinking about you and if you are still managing to walk better. I have read your post, and marvel how strange the human body and spirit really are. You did all that walking on your get away, and now, are not able to again. I understand this totally, as I see the unpredictability of Neuropathy, totally. It kills me that you have trouble in so many places, and yet you have this flicker of hope that seems to shine most of the time. Two nights ago, I watched TV for hours, pain free. Last night, the pain was excruciating, even with the DRG. I do not begin to understand and do not even try to figure things out anymore. I think that as humans, we want to be in control, but there is no control with Neuropathy. I control only myself, and walk daily, and do specific foot exercises. I am exhausted still from surgery. I try to do my best, and that is all I can do. The Neuropathy is stronger than me. I just try to distract myself, and cry when the tears come. I am so sorry your ability to walk has lessoned. I think maybe you had this huge adrenal rush because you wanted to walk so very much on your vacation. Kind of a fight or flight reaction. Hank, I am glad that this Forum helps you. I do think you need all of us, as you have your burdens at home. Love to you both, Lori
@jimhd @jesfactsmon Guys, your frankness about your depression has helped me very much. Jim, your eloquence in describing yourself just blows me away. I have a history of OCD, and I know severe depression. I had years when I could not control my repetition of thought processes, and some were utterly senseless. OCD can make for very odd thoughts that do not want to leave, and it can be torture to have. Oddly though, I never thought I was basically a depressed person. I thought I had a brain that didn't work right, and a good psychiatrist taught me the ways in which it didn't. Now, due to the Neuropathy, I have entered more of a pure depression, not OCD. It feels very different. Now, my depression is due to pain beyond my pain threshold tolerance. And Jim, I hover at a 5, very often. Sometimes, even a 4. Very frightening. I loved life before sickness, and I keep hoping that my pain will improve. Who knows. Lori Renee
@lorirenee1 You nailed it Lori Renee! I could do that nature trail again if at the right moment, on the right day. Adrenaline is huge as well as distraction, as you and I both know. The unpredictability and lack of consistency makes me/us crazy. I'm happy you had a couple of free hours pain free. That is a rejuvenation and exactly what you needed. I totally get it and live it with you and others who read these posts. Neuropathy is getting the better of me lately and I hate every bit of that feeling. I'll keep working to try and defy this disease but, admittedly so, its friggin exhausting. My best to you Lori. Thanks for your words. XO
Rachel
Thanks for sharing. The pain is unbearable which is depressing me more and I am already classified as a manic depressive and extreme anxiety. How can I get help with the pain?