Neurological problems with MS

Posted by flowbluelady @flowbluelady, Dec 27, 2018

My 69 yr old husband has primary progressive MS. The majority of his lesions are in the brain which is causing some Parkinson's symptoms in addition to some really strange sensations in his head. Examples:. Feeling like water is sloshing in his head, feeling like water bullets are firing in his head and eyes. His neurologists do not see to understand how he is tortured by these sensations. The gabapentin he takes does not help. Are any members or someone you know experiencing anything similar?

Hello @flowbluelady, welcome to Mayo Clinic Connect. I'm tagging our moderator @kanaazpereira to see if we should move your post to the following discussion where it will have more visibility with members who share similar symptoms as your husband. You might want to read through the discussion and post other questions you may have.

Groups > Brain & Nervous System > Multiple Sclerosis (MS) – please introduce yourself
https://connect.mayoclinic.org/discussion/multiple-sclerosis-ms-please-introduce-yourself/

I did find a couple of other links that may describe some of the symptoms your husband is having that are associated with MS.

NIH – Paroxysmal symptoms in multiple sclerosis masquerading as transient ischaemic attacks
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3029382/

MS Focus Magazine – Coping with Paroxysmal Symptoms
https://msfocusmagazine.org/Magazine/Magazine-Items/Coping-with-Paroxysmal-Symptoms

Have you mentioned to the doctors that the gabapentin is not helping?

John

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@johnbishop

Hello @flowbluelady, welcome to Mayo Clinic Connect. I'm tagging our moderator @kanaazpereira to see if we should move your post to the following discussion where it will have more visibility with members who share similar symptoms as your husband. You might want to read through the discussion and post other questions you may have.

Groups > Brain & Nervous System > Multiple Sclerosis (MS) – please introduce yourself
https://connect.mayoclinic.org/discussion/multiple-sclerosis-ms-please-introduce-yourself/

I did find a couple of other links that may describe some of the symptoms your husband is having that are associated with MS.

NIH – Paroxysmal symptoms in multiple sclerosis masquerading as transient ischaemic attacks
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3029382/

MS Focus Magazine – Coping with Paroxysmal Symptoms
https://msfocusmagazine.org/Magazine/Magazine-Items/Coping-with-Paroxysmal-Symptoms

Have you mentioned to the doctors that the gabapentin is not helping?

John

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@johnbishop

Thank you for the links. I will check them out. This is my first attempt at connecting with an online group. I look forward to connecting with others who migjt can provide helpful info.

Yes, the doctors know the gabapentin is not helping the symptoms I mentioned. They have played around with his dosage to see if it does. However, he continues to take it because it does help with other symptoms. His next appt is next month, and we will address it again.

Thanks again for your info.
Betty

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