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cheriroberts
@cheriroberts

Posts: 1
Joined: Jan 14, 2016

I have had a batch of seemingly unrelated symptoms. MS?

Posted by @cheriroberts, Jan 13, 2016

I have had a batch of seemingly unrelated symptoms for a few years; I am now wondering if I possibly have MS as that would explain most of the symptoms. I definitely have disc and spine issues that are being investigated right now as I am losing function in my left arm and hand, but some of the questions the neurologist asked me in my appointment yesterday made me think … For nearly a year I have had extreme, sudden and unexplained pain in my left cheek (trigeminal nerve maybe? Side note, I have had two teeth removed due to the pain thinking it was dental)…for a few years I have experienced what I have thought was something called ‘slipped rib syndrome’ which has been excruciating and I’ve seen a chiro for each time with little if any relief (MS Hug maybe? Side note, it’s not my gallbladder; that was removed in 2009)…tingling, burning and other pain in hands, feet, face and other varied areas…my left leg drags easily…I have urinary continence issues as well as bowel instability…my normally damn near perfect memory has been slipping badly for the past year and have had a lot of concentration problems for the first time in my life…vision issues, primarily in my left eye, but sometimes in both….I have the dropsies and have trouble gripping a lot lately as well … there is more, but … thoughts? I am wondering how to approach my PCP doc with this theory. Would the neurologist doing MRI imagining of my entire cervical, thoracic and lumbar notice anything related to MS if he isn’t specifically looking at the imaging for MS? Thoughts???

REPLY

Hi @cheriroberts, Welcome to Connect.
Here’s a list of symptoms commonly related to multiple sclerosis http://www.mayoclinic.org/diseases-conditions/multiple-sclerosis/symptoms-causes/dxc-20131884

A while back @lal2 had a similar question about symptoms possibly being linked to MS here https://connect.mayoclinic.org/discussion/are-my-symptoms-early-signs-of-multiple-sclerosis/ Maybe you could connect with her.

I think it would be worth talking to your PCP doctor about. Are you concerned if you tell him/her that s/he would disregard your suspicion?

Colleen
Connect Community Director

Have sharp pain on back right side of head, been going for months. what could be cause?

@carolyns

Have sharp pain on back right side of head, been going for months. what could be cause?

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Hi @carolyns, welcome to Connect.
Can you tell us a bit more about this pain? Then I can help connect you with other people in the community who may be in similar situations.

Colleen
Connect Community Director

@carolyns

Have sharp pain on back right side of head, been going for months. what could be cause?

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Yes the pain is a sharp pain on the back of right side of head about 2″ from middle of head. I am currently being treaded with relapsing MS, had be diag. about 20 yrs ago.

@carolyns

Have sharp pain on back right side of head, been going for months. what could be cause?

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Had MRI and spinal tap done in Dec. no new leasons on brain. Dr said spinal tap showed
to many antibodies in spinal fluid. Repeating MRI friday. Hope this will help fine the problem

Hi Carolyns – I moved your messages to this discussion thread hoping that you could connect with @cheriroberts. Both of you are facing the unknown which can be so frightening to be alone.

Keeping my fingers crossed that the MRI reveals some answers.

@colleenyoung

Hi Carolyns – I moved your messages to this discussion thread hoping that you could connect with @cheriroberts. Both of you are facing the unknown which can be so frightening to be alone.

Keeping my fingers crossed that the MRI reveals some answers.

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You can send my email address so we can keep intouch.ThanksCarolyn

I recommend using the Private Messaging function on this platform. It is safer than sharing email address publicly.

To Private Message a member, simply:
1. Click on their username. You’ll be taken to their profile page.
2. Click the envelope icon. This will open a message window.
3. Write your private message.

I think I have ms lm scard

@jessejames4534

I think I have ms lm scard

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Every day is hard to get through

Hi @jessejames4534
I’m so glad that you found us here at Mayo Clinic Connect. I’ve moved your messages to this thread so that you can talk with @carolyns @cheriroberts @indydorsey13 and others.

Have you been diagnosed with MS or are you going through testing at the moment? I can understand you’re scared. Tell us a bit more about what is going on.

Colleen
Connect Community Director

@colleenyoung

Hi @jessejames4534
I’m so glad that you found us here at Mayo Clinic Connect. I’ve moved your messages to this thread so that you can talk with @carolyns @cheriroberts @indydorsey13 and others.

Have you been diagnosed with MS or are you going through testing at the moment? I can understand you’re scared. Tell us a bit more about what is going on.

Colleen
Connect Community Director

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Im fixing to start testing but I really think I have ms my mind and body r
going crazy

@colleenyoung

Hi @jessejames4534
I’m so glad that you found us here at Mayo Clinic Connect. I’ve moved your messages to this thread so that you can talk with @carolyns @cheriroberts @indydorsey13 and others.

Have you been diagnosed with MS or are you going through testing at the moment? I can understand you’re scared. Tell us a bit more about what is going on.

Colleen
Connect Community Director

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I have had a mri on my brain they sent home after the test and they haven’t
told me anything yet l feel like lm going crazy

I am 36 & have had MS for 13 years. I can only say take it day by day. I don’t talk about it cause I feel like a burden. I live in my dark bed room & keep busy.
The good thing your in charge & the new medication & its treated very well compared to story’s of people that didn’t have all these new opinions. Best of luck to you.

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