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Neuro-musculature neurologist in Northwest AR?

Posted by reubenwithcidp @reubenwithcidp, Feb 6 10:58am

I am moving from the Dallas-Fort Worth area to Northwest Arkansas (Fayetteville area) and have CIDP. My current neurologist said to look for someone familiar with neuro-musculature issues, but neither he nor I could find any in the area. I'd appreciate any suggestions. I prefer not to have to drive to Little Rock but will need someone familiar with my CIDP. I did find two infusion centers for my IVIG in the area.

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Becky, Volunteer Mentor | @becsbuddy | Feb 6 10:16pm

@ reubenwithcidp Here are the links to 2 organizations that should be able to help you with doctors who may be specialists: GARD https://rarediseases.info.nih.gov/
NORD https://rarediseases.org
You can ask for a neuromuscular physician who is reasonably close to you. Most of them are at comprehensive medical centers or university hospitals. You may need to drive for the 1st visit and then see if it can be virtual.
Best of luck to you!

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reubenwithcidp | @reubenwithcidp | Feb 9 4:17pm

Thanks. I have reached out to GARD. NORD did not seem to have a lot of resources for CIDP. Given the similarity to GBS I may need to search for someone who is well versed in those treatments.

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lanalharris08 | @lanalharris08 | Feb 21 8:49am

I live in Fayetteville, AR and sadly, we have a concerning lack of specialists in Northwest Arkansas. It might be helpful to look for a neuro in the Tulsa or KC area, also. Tulsa is closer than Little Rock, and KC is only about a 3 hour drive. BTW...I'm also from the Dallas area originally (Greenville). Welcome to Fayetteville!

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Becky, Volunteer Mentor | @becsbuddy | Feb 21 9:57pm
In reply to @reubenwithcidp "Thanks. I have reached out to GARD. NORD did not seem to have a lot of..." + (show)
Profile picture for reubenwithcidp @reubenwithcidp

Thanks. I have reached out to GARD. NORD did not seem to have a lot of resources for CIDP. Given the similarity to GBS I may need to search for someone who is well versed in those treatments.

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@reubenwithcidp You might also try university hospitals and major medical centers. Just call and ask for the rheumatology department. Good luck!

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reubenwithcidp | @reubenwithcidp | Feb 22 2:27pm

Thanks to all for jumping in on this. I found some options and will reach out to the most likely doctors. This was very helpful and much appreciated!

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