Colorectal cancer stage 3c: Need positive feedback

Posted by dianemarcia @dianemarcia, Jan 3, 2019

OK so I need chemo..stage 3c. Scared to death. Need positive please. Had surgery to remove mass. Found 8 lymph nodes out of 27 that were positive. Any advise?? Please! Dr. Said had to wait for body to recover from surgery b 4 chemo

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@Paula_MAC2007

Oh my, in reading my post is sounds so negative … it was meant to be informative and I missed the boat in not including positive info. I am feeling so very well and back at my exercise classes – yoga and pilates – almost daily now, which were so helpful to regaining my strength. I've learned to adapt my life to what I can and can't do as easily now. It's life 'AC' — After Cancer — as I call it.

I had been an advocate for my health, having an unusual lung disease. But my experience with cancer and the circumstances of 'finding' it – rather unusual – made me more active in my healthcare. So far, my cancer has not spread outside of my lymph nodes. Yeah!! My fabulous oncologist and his team monitor & review the tests with me, and I'm on meds for the sensory neuropathy which do help somewhat. All in all, life is good!

Musicflowers4u — The standard protocol for my situation is colonoscopies every 2-3 years; since my cancer, each time the doc has removed 1 or 2 small polyps. I've insisted on a colonoscopy every year, until no polyp is there, so that's what I'm having done. This requires buy-in from the doc, because the doc needs to believe it is needed. And it means a hassle with the insurance company which I understand their concern (there are real life-altering things that can go wrong with the procedure, thankfully somewhat rate).

My surgeon said he sees people like me every day — people who have no symptoms. That's getting to be so common. So you really do need to advocate for yourself. I'd love to see a blood test developed that can detect something unusual, that indicates an intestinal cancer. And get it taken care of very early.

Peace to all.
Paula

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@Paula_MAC2007, welcome back. I echo @hopeful33250's thank you.
I'm curious to know how your MAC lung condition fared through the cancer treatment. Did a weaken immune system cause any problems? When did AC (after cancer) start for you? After the last treatment? When was that?

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@Paula_MAC2007

Oh my, in reading my post is sounds so negative … it was meant to be informative and I missed the boat in not including positive info. I am feeling so very well and back at my exercise classes – yoga and pilates – almost daily now, which were so helpful to regaining my strength. I've learned to adapt my life to what I can and can't do as easily now. It's life 'AC' — After Cancer — as I call it.

I had been an advocate for my health, having an unusual lung disease. But my experience with cancer and the circumstances of 'finding' it – rather unusual – made me more active in my healthcare. So far, my cancer has not spread outside of my lymph nodes. Yeah!! My fabulous oncologist and his team monitor & review the tests with me, and I'm on meds for the sensory neuropathy which do help somewhat. All in all, life is good!

Musicflowers4u — The standard protocol for my situation is colonoscopies every 2-3 years; since my cancer, each time the doc has removed 1 or 2 small polyps. I've insisted on a colonoscopy every year, until no polyp is there, so that's what I'm having done. This requires buy-in from the doc, because the doc needs to believe it is needed. And it means a hassle with the insurance company which I understand their concern (there are real life-altering things that can go wrong with the procedure, thankfully somewhat rate).

My surgeon said he sees people like me every day — people who have no symptoms. That's getting to be so common. So you really do need to advocate for yourself. I'd love to see a blood test developed that can detect something unusual, that indicates an intestinal cancer. And get it taken care of very early.

Peace to all.
Paula

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Hi Paula: I really appreciate your input. Thanks so much.

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I was diagnosed about a month after you;
Stage 3C colon cancer. February 8, 2019 was when I had my routine colonoscopy after turning 50 only 2.5 months earlier. Had resection surgery February 26th and began FOLFOX chemo on March 28th. Finished 6 months of treatment August 28th and have gotten good results since then – thank God! Fortunately I was able to have my first Follow up Colonoscopy and CT scan early March before everything shut down due to Covid. Only two polyps were found and they were non cancerous. I was told my next colonoscopy won’t be for another 3 years now but I am not comfortable with that. I want to have one every year for the first few years after my diagnosis. I had no family
History and no symptoms. The fact that two polyps were removed makes nervous to wait 3 years before another colonoscopy. Am I being irrational???

Having cancer is not only physically challenging but also mentally challenging. I am blessed to have loving and supportive family and friends. I exercise daily, have started juicing veggies daily (about 30oz), I add chia and flax
Seeds to my meals and have reduced my meat intake. I love my wine And cheese and am not ready to give that up just yet. I am only 51 and am doing my best to stay positive. Would love to hear other thoughts and options With how to stay on top of it all.

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You seem to be doing all the right things. Great attitude.

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@colleenyoung

@Paula_MAC2007, welcome back. I echo @hopeful33250's thank you.
I'm curious to know how your MAC lung condition fared through the cancer treatment. Did a weaken immune system cause any problems? When did AC (after cancer) start for you? After the last treatment? When was that?

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Hello Colleen,
I finished chemo 2 years ago – AC (after cancer) began May 1, 2018. The following week, I had CT scans and blood work. Several new nodules appeared in my other lung. My pulmonologist and I decided to wait the 3 months until another scan, to see if the nodules changed – they did. The concern was spread of my cancer to my lungs. I had another lung biopsy; the outcome is that I had gotten a different NTM in my other lung and so I went back on the meds. So yes, my weakened immune system resulted in me picking up a different NTM bacteria! (Better than lung cancer.) I rarely went anyplace while on chemo so I think I picked up the new NTM in the hospital. I'll have more to tell you about this but am needed elsewhere just now.

So great to hear from you!!
Paula

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Hello Dianemarcia, my life was turned upside down on Feb 27 when I went to the bathroom in the morning and it was all blood. No other symptoms. Went to hospital and colonoscopy confirmed relatively small cancer lesion. 2 weeks later had right colectomy that also determined that cancer had spread to one out of 11 lymph nodes. Needed 6 weeks to recover before chemo. Had chest port inserted last week for chemo infusions. Today was my first treatment. Am on Folfox. spent all morning at infusion center then they sent me home with pump for another 48 hours. Will need to return to center on Saturday for them to remove pump. I'm scheduled for chemo every 2 weeks for 3-6 months. As I've heard from others, this is pretty standard stuff. I feel ok now but obviously it's too early to know what issues will manifest down the road. Most likely nausea, diarrhea, headaches, sensitively to cold, fatigue and neuropathy. They gave oral meds for nausea, need to watch what I eat and drink oceans of water. Hope your treatment goes smoothly and we both end up cancer free! kismak

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@kismak1918

Hello Dianemarcia, my life was turned upside down on Feb 27 when I went to the bathroom in the morning and it was all blood. No other symptoms. Went to hospital and colonoscopy confirmed relatively small cancer lesion. 2 weeks later had right colectomy that also determined that cancer had spread to one out of 11 lymph nodes. Needed 6 weeks to recover before chemo. Had chest port inserted last week for chemo infusions. Today was my first treatment. Am on Folfox. spent all morning at infusion center then they sent me home with pump for another 48 hours. Will need to return to center on Saturday for them to remove pump. I'm scheduled for chemo every 2 weeks for 3-6 months. As I've heard from others, this is pretty standard stuff. I feel ok now but obviously it's too early to know what issues will manifest down the road. Most likely nausea, diarrhea, headaches, sensitively to cold, fatigue and neuropathy. They gave oral meds for nausea, need to watch what I eat and drink oceans of water. Hope your treatment goes smoothly and we both end up cancer free! kismak

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Hi I have colon cancer too and metastasized into my liver . That was 8 months ago . One thing I have learnt is fluids . Drink a lot but I go for fluids 5 times a week . They really help

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Same as you! Remission 7 years! Good luck

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@wilcy

Same as you! Remission 7 years! Good luck

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I have stage 4 colon cancer and it metastatisize into the lover who’s is also stage 4 , I have been without and chemo for about 5 weeks now and it will be another 4/4 before I get it ,?
My chemo was 4 pills a night and iv chemo every week , I had to go off because I kept getting diverticulitis really bad .
Please take you time to heal ! Don’t Push it !
You are in the Lords hands now and pray please ,
My cancer is BFRA which is aggressive with no really outlook , I just went through a time now a bag .not reversable ! You can keep going Ihave and will kept fighting till there is no more hope
May ahold Bless you and know he does care ❤️❤️

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@duckduck2020

I have stage 4 colon cancer and it metastatisize into the lover who’s is also stage 4 , I have been without and chemo for about 5 weeks now and it will be another 4/4 before I get it ,?
My chemo was 4 pills a night and iv chemo every week , I had to go off because I kept getting diverticulitis really bad .
Please take you time to heal ! Don’t Push it !
You are in the Lords hands now and pray please ,
My cancer is BFRA which is aggressive with no really outlook , I just went through a time now a bag .not reversable ! You can keep going Ihave and will kept fighting till there is no more hope
May ahold Bless you and know he does care ❤️❤️

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Tk care!

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@duckduck2020

I have stage 4 colon cancer and it metastatisize into the lover who’s is also stage 4 , I have been without and chemo for about 5 weeks now and it will be another 4/4 before I get it ,?
My chemo was 4 pills a night and iv chemo every week , I had to go off because I kept getting diverticulitis really bad .
Please take you time to heal ! Don’t Push it !
You are in the Lords hands now and pray please ,
My cancer is BFRA which is aggressive with no really outlook , I just went through a time now a bag .not reversable ! You can keep going Ihave and will kept fighting till there is no more hope
May ahold Bless you and know he does care ❤️❤️

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Went thru stage 4 colon cancer then 2 years after the resection a tumor showed up in my liver. They removed half of my liver. Went thru chemo both times. That was over 20 years ago. Checkup every year since then, so far so good.
Hang in there. Treatment has much improved since then and I have to believe there is something that will keep you in remission for good.

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Was you cancer sgressive ? bRAF

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