Need Help with Severe Lichen Planus
Hello everyone, My mother finally got a diagnosis a little over three months ago by dermatologist after a year of suffering with severe Lichen Planus. she is finally on medication, but is still dealing with severe complications. What feels like I have taken her to every doctor I can think of I even made arrangements in December to take her to you up UF in Jacksonville, Florida we live in Daytona Beach. At the time UF kept passing the buck back to her oncologist saying it was her cancer coming back. She was diagnosed with non-Hopkins in 2022. Her oncologist has been doing scans and she is still in remission and was trying to figure out what was happening as well, in the beginning we were back-and-forth with different oral specialist and rheumatologist. I’ve been told by a few people that it was probably the cancer or the treatment that trigger this auto immune. she is highly sensitive to steroids, the steroids causing other complications and it does not take away any lesions or pain, she’s still in a lot of pain and pain medication doesn’t work. She’s on hydroxychloroquine that has calmed down things just a little but her jaw has been tight due to the pain and not being able to eat for over a year, her oncologist ordered a feeding tube in October. we recently saw a ENT said they didn’t think can do anything, but they did prescribe a medication that deals with inflammatory that they usually give to people with rosacea to see that would helpit call Doxycycline. I even have a consultation with a twilight dentistry on 20th to see if that could help. Because we also think this was triggered she needed to get teeth pulled out pulled after treatment, During treatment she had all these wisdom teeth come out. I’ve been hesitant to post something on this form for a while, but I feel I need to at this point so I’m reaching out I need to know if there’s anything I’m missing a specialist a different type of medication or treatment. I’m trying to compact this down if I wrote everything that She went through the last few years it would be a book.
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@minnesota10 I forgot to mention one thing. Many years ago, when my lichen was very bad I had skin testing done for the chemicals or components to fills in my teeth. Believe me, I had a lot of metal fillings. I tested positive for many of the ingredients in the fill. I was told I should look into getting my feelings removed. I did and I did have my feelings removed and every time I had one or two done my mouth slowly felt better. Because there are other feelings that are safe for you just have to talk with the Doctor Who prescribed that test testing for all.
Like I said, try Tom’s Children’s strawberry, fluoride, free toothpaste. It has worked wonders for me.
Good luck