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Kym
@kdimmerman

Posts: 3
Joined: Jun 03, 2016

Need 2nd Opinion Fast

Posted by @kdimmerman, Jun 3, 2016

I need to find an expert that can give me a second opinion fast. They did an MRI yesterday and have a tumor in the right front lob about 3 centimeters. They wanted to do surgery right then and there. I was baffled because we don’t even know what kind of cancer I have. I also was diagnosed with lung cancer 2 weeks ago – and we don’t know what kind of cancer that is either. Before I have the surgery I want to find someone at Mayo that is an expert in removing brain tumors and I want them to look at my tests to see if I have time to monitor this of if I really need to have the surgery right now. I have no symptoms – would have never know anything was wrong with me. Can anyone get me a referral or have a doctor connect with us?

REPLY

Hi @kdimmerman,
So sorry to hear about your situation. Please use the contact information to request a second opinion from Mayo Clinic http://mayocl.in/1mtmR63. Calling the numbers at the location of your choice is the most efficient way to get a referral.

I’m also tagging @cynaburst @neffjsn @travelgirl @audrapopp @dmedina71 on this conversation. You’re not alone.

Liked by Kimberly

@colleenyoung

Hi @kdimmerman,
So sorry to hear about your situation. Please use the contact information to request a second opinion from Mayo Clinic http://mayocl.in/1mtmR63. Calling the numbers at the location of your choice is the most efficient way to get a referral.

I’m also tagging @cynaburst @neffjsn @travelgirl @audrapopp @dmedina71 on this conversation. You’re not alone.

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I am not sure where in the U.S. you are located, but I agree with your instinct to get a second opinion. I would call Mayo and any other major cancer center that you could travel to: Dana Farber in Boston, M.D. Anderson in Houston, Sloan Kettering in NYC are others you might try. Best of luck to you. I think that if you call and explain the urgency of your situation, you will be able to send your scans and schedule an appt. pretty quickly.

?You can send your MRI results to the Barrow Neurological Institute in Phoenix–they do long distance second opinions, and they are a world-class organization. I live in Texas and got a second opinion from them a few years ago. They responded very quickly. It costs $100. You are under no obligation to have your surgery done at Barrow.

@grandmacheryl

?You can send your MRI results to the Barrow Neurological Institute in Phoenix–they do long distance second opinions, and they are a world-class organization. I live in Texas and got a second opinion from them a few years ago. They responded very quickly. It costs $100. You are under no obligation to have your surgery done at Barrow.

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Thank you!

Thank you everyone. I am in Minneapolis. We reached out to the Mayo clinic and unfortunately we couldn’t get in for about 10 days – way to long to put off the surgery. We have learned in a short period of time that brain tumors are aggressive and grow very quickly. It appears I have had mine for a month and so they are pushing to get this taken out in the next few days. We so many people having cancer doctors are overwhelmed and it’s almost impossible to get an appointment with someone who has the credentials that you really want to perform this type of major surgery. I don’t want just anyone cracking my skull open but I might not have a choice at this point. It’s the worst feeling.

@kdimmerman

Thank you everyone. I am in Minneapolis. We reached out to the Mayo clinic and unfortunately we couldn’t get in for about 10 days – way to long to put off the surgery. We have learned in a short period of time that brain tumors are aggressive and grow very quickly. It appears I have had mine for a month and so they are pushing to get this taken out in the next few days. We so many people having cancer doctors are overwhelmed and it’s almost impossible to get an appointment with someone who has the credentials that you really want to perform this type of major surgery. I don’t want just anyone cracking my skull open but I might not have a choice at this point. It’s the worst feeling.

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Wishing you the best during this very scary time. Know that you can always be admitted through the Emergency Room at Mayo if things are urgent. They have an ER just like every other hospital, and then you would get in faster.

@kdimmerman

Thank you everyone. I am in Minneapolis. We reached out to the Mayo clinic and unfortunately we couldn’t get in for about 10 days – way to long to put off the surgery. We have learned in a short period of time that brain tumors are aggressive and grow very quickly. It appears I have had mine for a month and so they are pushing to get this taken out in the next few days. We so many people having cancer doctors are overwhelmed and it’s almost impossible to get an appointment with someone who has the credentials that you really want to perform this type of major surgery. I don’t want just anyone cracking my skull open but I might not have a choice at this point. It’s the worst feeling.

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?Sending positive thoughts your way.

Liked by lynnkolars

Look into cyber knife…

@colleenyoung

Hi @kdimmerman,
So sorry to hear about your situation. Please use the contact information to request a second opinion from Mayo Clinic http://mayocl.in/1mtmR63. Calling the numbers at the location of your choice is the most efficient way to get a referral.

I’m also tagging @cynaburst @neffjsn @travelgirl @audrapopp @dmedina71 on this conversation. You’re not alone.

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So sorry your here. I wish you the best. Please make sure the hospital is a national cancer treatment affiliate .

Praying all goes well for you.

Dear kd I am stunned to come across this in glancing at the digest. Please know your situation has reached my heart and I am praying for you mightily. I will watch for your updates. I can’t imagine how shocked you feel. No reply expected – wondering how you learned about cancer in lung – very smart to want more information before any big procedure! My thoughts and prayers are with you. Please keep us all posted when you can! : )

@jms7

Dear kd I am stunned to come across this in glancing at the digest. Please know your situation has reached my heart and I am praying for you mightily. I will watch for your updates. I can’t imagine how shocked you feel. No reply expected – wondering how you learned about cancer in lung – very smart to want more information before any big procedure! My thoughts and prayers are with you. Please keep us all posted when you can! : )

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You need a Biopsy on your brain tumor. I had my tumor removed four years ago at Duke by Dr. Friedman. He is wonderful in NC.

@kdimmerman

Thank you everyone. I am in Minneapolis. We reached out to the Mayo clinic and unfortunately we couldn’t get in for about 10 days – way to long to put off the surgery. We have learned in a short period of time that brain tumors are aggressive and grow very quickly. It appears I have had mine for a month and so they are pushing to get this taken out in the next few days. We so many people having cancer doctors are overwhelmed and it’s almost impossible to get an appointment with someone who has the credentials that you really want to perform this type of major surgery. I don’t want just anyone cracking my skull open but I might not have a choice at this point. It’s the worst feeling.

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@kdimmerman, although it was originally conveyed to you that an appointment at Mayo Clinic would take approximately 10 days, we stand corrected and that – in fact – we offer appointments with our brain tumor experts within 48 business hours at the Rochester, Florida, or Arizona campuses. We would like to investigate what happened and have sent you a private message.

To everyone else reading this discussion: We recognize that hearing you have a brain tumor is stressful and challenging. No doubt you will have questions about the diagnosis, treatment options and what will happen next. Experts at the Mayo Clinic can help you navigate your healthcare journey, answer your questions and guide you through the treatment plan. When you call at any of our 3 campuses, you will be offered an appointment within 48 hours http://mayocl.in/1mtmR63 Be sure to mention the Brain Tumor 48-access program.

Liked by jms7, shellsk24, Markelia

I am sorry I came to this discussion late. My wife had her discovery at a hospital in Chicago. They wanted to do immediate surgery. She opted for a second opinion. We made an appointment at Mayo and she had a stereotactic biopsy performed. This gave us incredibly valuable insight into her actual condition, type of brain tumor, etc. It was a crucial step in her care and although it irritated the folks at her first hospital, it was absolutely the right decision and option for her and her care. I cannot speak highly enough of the neuro-oncology team at Mayo!

When It comes to dealing with the complexity of the brain and body items it controls, I can’t buy haste over care, research, understanding, etc. I would always go for a second opinion in respect to brain surgery even with the advances that have been made in todays medicine. Supposing you sought the surgery without a second opinion and a mistake that a second opinion didn’t note paralized you for life. Would you be forgiving of the parilization or not having one? I think not.

Example: Forceps were misused at the time of my birth causing pressure on the brain. The element became or initiated Grand Mal epilepsy and slowly Status Epileptus, where I was rushed to the hospital for emergency brain surgery to save my life. In those days the lead surgeion came out to the resposible party, my parents and said “with the location of the pressure and tools we have, if we make the slightest mistake, Kay can be parilized for life, lose hearing, vision, senses, balance, etc. what do you advise us to do?” “Close him up my parents said, we’ll take him like he is.” They did that, but the third surgeon doing the closing up severed a vein and had to call the lead surgeon in to fix it. “Personally, I view it as a gift from GOD; since after the vein was corrected my seizures became controllable by different medications and dosages.”

The surgeons having given my parents the choice noted above was similar to a second opinion.

irvkay312

@colleenyoung

Hi @kdimmerman,
So sorry to hear about your situation. Please use the contact information to request a second opinion from Mayo Clinic http://mayocl.in/1mtmR63. Calling the numbers at the location of your choice is the most efficient way to get a referral.

I’m also tagging @cynaburst @neffjsn @travelgirl @audrapopp @dmedina71 on this conversation. You’re not alone.

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If you live in the
South , go to Duke

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