Nebuliser suitable for saline and powdered glutathione

Hello I just learned I have the flare up from aspergilus not pseudomonas so my response about nebulizers is may be incoherent. I have a tiny mesh nebulizer- don’t even see the brand it just says mesh nebulizers. I use it very very rarely- weak, delicate, slow stream- and I use it only for sodium chloride. It easy to use and you can put it in a purse but I really don’t know how effective it is. I do not recommend it well at least this one unless there are other brands that work better.

Mesh nebulizers can be finicky. The Ombra system is a powerful jet nebulizer and what National Jewish Health recommends. I would call the Monaghan Company, makers of the Ombra, and verify that it can be used with glutathione.

Best,
Linda Esposito

I've been researching portable nebulizers for travel. I contacted VystaMed regarding the AvexMed Portable Nebulizer Machine and use with 3-7% saline solution. Their reply: 'We are sorry, this product cannot be used with 3% or 7% solutions'.

After further research, I discovered another device - the MicroVapor Pocket Neb Nebulizer. According to feedback on the COPD Foundation website, COPD360social community Q&A: 'The customer service person for MicroVapor confirmed that it’s fine for using their Pocket Neb with 7% saline solution, as long as you follow their instructions on cleaning, especially nebulizing distilled water afterwards to clean it out.

Hope this is helpful. Has anyone tried the MicroVapor Pocket Nebulizer? I'm about to order it.

Please tell us this works for you.
Thanks!

Will keep you posted. Apparently you need a prescription for this - which I'm now seeking. I don't think it's covered by medicare, so it will be out of pocket and around $90.

Links to the product website:
https://www.microvapordevices.com/pocket-neb

Link to COPD blog comments:
https://www.copdfoundation.org/COPD360social/Community/Questions-and-Answers/Can-anyone-recommend-a-travel-nebulizer-suitable-for-7-hypertonic-saline-.aspx

Hello Nancy, One thing I have learned in researching these pocket unit is that there is usually no way to disinfect or sterilize.
On microvapotdevices.com, the Pocket Neb product manual cleaning instructions say to can clean only with distilled water and wipe the outside with a cloth. No alcohol, boiling, or steam.
Have you considered whether that is safe?
Sue

Hi Sue. Thanks for your feedback. I'm new to all this and just finding my way. I'm 69 and was accidentally diagnosed with BE in late January, with confirmed MAC and aspergillus cultures in mid-April. I had/have no symptoms with the exception of an occasional but consistent dry chronic cough that I've had for a long time (and previously was attributed to silent GERD).

I have not yet started the Big 3 antibiotics, but expect to do so within the next few weeks. I have been nebulizing with 3% saline for last 2-3 weeks (alternating between 1-2x/day), but bring up very little mucus, and frankly find myself coughing more now. I also just purchased the Aerobika (which should arrive today). I bought the lifestraw jug, which I use to wash the nebulizer parts, and drink spring water. I've eliminated ice from my drinks when I'm out, and have special ice cube trays with lifestraw filtered water at home. I'm still trying to figure out showers etc. All the issues around water have my head spinning.

I have spent a lot of time on this group, on various webinars, YouTube videos, the recent patient conference, etc ... trying to educate myself (your posts and links have been very helpful).

Regarding the Pocket Neb, I spoke with them yesterday. The mouth piece is plastic and can be washed/sterilized. The medical cup requires just distilled water due to the delicate nature of the mesh, but is replaceable. Since distilled water has been previously boiled, why is that a problem? I'm not sure that I fully understand the issue - perhaps because I'm so early in my journey, and fortunately, not as yet, experiencing any of the devastating issues that have been shared within the various blogs. Your further guidance would be greatly appreciate.