NAION

Posted by eileenberta @eileenberta, Feb 28, 2025

Looking for NAION patients to connect with

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Hi @eileenberta I just saw your message while doing a search on NAION. I was diagnosed with NAION about a year ago and it has been a scary up and down journey. The medical community where I live does not know much about this disease and my Doctors are making it up as they go. I would very much like to share notes and experiences with you and maybe we can help each other. Good luck and I look forward to hearing from you.

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There are many, many ways to loose an eye. Did you loose one? What happened?

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