Myxofibrosarcoma: What treatments did you have?

Hello Teresa
I am all done with my treatments. I finished May 2021.
I had 2 surgeries and during the 2nd surgery had radiation during the surgery and then they did my skin graft.
Then had 6 more weeks of radiation.
Doing cts every 3 mo. Because our cancer has a tendency to go to the lungs. And mri every 6 mo. I was told by UCSF,Stanford and UCD Chemo would not work on Myxofibrosarcoma on my leg.
Tha k you
Fir such a wonderful site
4me

Hi Jonezzi
I also was diagnosed with Myxofibrosarcoma high grade tumor in my right lower calf.
I have had 2 surgeries.
During the 2nd surgery I also had radiation on my leg before the plastic surgeon did my skin graft.
Then I had an additional 6 weeks of radiation.
Which played havoc on my skin graft.
But happy to say that is done and my skin graft has healed. I was told chemo did not work on Myxofibrosarcoma by UCSF Stanford and UCD.
I have had 4 opinions.
Where was your tumor located.
It is very difficult to find someone with our cancer.
Looking forward to hearing from you.
4Me

Welcome @4me. I hope you don't mind, but I moved your post about being diagnosed with myxofibrosarcoma to this new discussion that @jonezzi started just 2 days ago:
- Myxofibrosarcoma https://connect.mayoclinic.org/discussion/myxofibrosarcoma/

Jonezzi, will appreciate meeting someone else with this rare cancer.

Hello @4me and welcome to Mayo Connect. I'm sorry to hear of your diagnosis of Myxofibrosarcoma. As you were diagnosed in 2020, I'm wondering how you are doing now?

Here is some information from Mayo Clinic's website about this disorder.

--Myxofibrosarcoma
https://www.mayoclinic.org/diseases-conditions/myxofibrosarcoma/cdc-20387740
The article indicates that the usual treatment is surgery. Was this your experience as well? Have you needed any other treatments?

Yes I was diagnosed with Myxofibrosarcoma Sept 2020
In my right lower calf

@jonezzi, that is such a good question. Is chemo still necessary?

Unfortunately, myxofibrosarcoma (MFS) is known to be a cancer that often comes back after treatment. I wonder if your cancer team wants to throw everything at it to make sure that the cancer cells are not only removed locally with surgery and radiation, but also cancer cells that possibly have moved to further parts of the body. Then chemo is a good systemic therapy.

Did you have lymph nodes removed at the time of surgery? Do they know if the cancer is fast growing or has spread?

Has anyone out there had a sarcoma cancer? I am just wondering.