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Myxofibrosarcoma: What treatments did you have?
Sarcoma | Last Active: Jan 12 8:38am | Replies (74)Comment receiving replies
Welcome @4me. I hope you don't mind, but I moved your post about being diagnosed with myxofibrosarcoma to this new discussion that @jonezzi started just 2 days ago:
- Myxofibrosarcoma https://connect.mayoclinic.org/discussion/myxofibrosarcoma/
Jonezzi, will appreciate meeting someone else with this rare cancer.
Replies to "Welcome @4me. I hope you don't mind, but I moved your post about being diagnosed with..."
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Hi Jonezzi
I also was diagnosed with Myxofibrosarcoma high grade tumor in my right lower calf.
I have had 2 surgeries.
During the 2nd surgery I also had radiation on my leg before the plastic surgeon did my skin graft.
Then I had an additional 6 weeks of radiation.
Which played havoc on my skin graft.
But happy to say that is done and my skin graft has healed. I was told chemo did not work on Myxofibrosarcoma by UCSF Stanford and UCD.
I have had 4 opinions.
Where was your tumor located.
It is very difficult to find someone with our cancer.
Looking forward to hearing from you.
4Me