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Myxofibrosarcoma: What treatments did you have?

Sarcoma | Last Active: Jan 12 8:38am | Replies (74)
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@hopeful33250

Hello @4me and welcome to Mayo Connect. I'm sorry to hear of your diagnosis of Myxofibrosarcoma. As you were diagnosed in 2020, I'm wondering how you are doing now?

Here is some information from Mayo Clinic's website about this disorder.

--Myxofibrosarcoma
https://www.mayoclinic.org/diseases-conditions/myxofibrosarcoma/cdc-20387740

The article indicates that the usual treatment is surgery. Was this your experience as well? Have you needed any other treatments?

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Replies to "Hello @4me and welcome to Mayo Connect. I'm sorry to hear of your diagnosis of Myxofibrosarcoma...."
4me | @4me | Sep 27, 2022

Hello Teresa
I am all done with my treatments. I finished May 2021.
I had 2 surgeries and during the 2nd surgery had radiation during the surgery and then they did my skin graft.
Then had 6 more weeks of radiation.
Doing cts every 3 mo. Because our cancer has a tendency to go to the lungs. And mri every 6 mo. I was told by UCSF,Stanford and UCD Chemo would not work on Myxofibrosarcoma on my leg.
Tha k you
Fir such a wonderful site
4me

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