Myelofibrosis*

Posted by wellness3070 @wellness3070, Jan 5, 2017

Anyone out there wishing to discuss above diagnosis?

Interested in more discussions like this? Go to the Blood Cancers & Disorders Support Group.

Hi, Becky, I was having acupuncture plus some pretty vigorous massage. I also took osteopathy. He believes it is two spots in my spine where the vertibrae are trapping a nerve. He helps. I will tell more next week.

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@stimme

Hi, Becky, I was having acupuncture plus some pretty vigorous massage. I also took osteopathy. He believes it is two spots in my spine where the vertibrae are trapping a nerve. He helps. I will tell more next week.

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stimme, thank you for your contribution and I hope the acupuncture has helped. I came across this information and wondered if you or anyone here knows if this has developed as a myelofibrosis treatment:
https://nlm.life/25466670

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Dear Onamission, thank you. This looks rather exciting. As it is, I am my normal weight still. I do take pure curcumin in my liposomal vitamin C (which I make myself and which a number of intelligent researchers are saying very high dose vitamin C (IV or liposomal) will also counteract coronavirus!) plus medicinal mushroom capsules, Benfotiamine, Saw Palmetto, a D3/K2/Mg capsule, Mg & zinc tablets and Patrick Holford's Optimum Nutrition Formula. I was taking Serrapeptase but cannot currently afford this, good as it is recconed to be for eaing up fibrin. I also take selenium.
I am also building up the courage (and planning) to start the Breuss 42-day-fast with my doctor checking on my health!!

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@stimme

Dear Onamission, thank you. This looks rather exciting. As it is, I am my normal weight still. I do take pure curcumin in my liposomal vitamin C (which I make myself and which a number of intelligent researchers are saying very high dose vitamin C (IV or liposomal) will also counteract coronavirus!) plus medicinal mushroom capsules, Benfotiamine, Saw Palmetto, a D3/K2/Mg capsule, Mg & zinc tablets and Patrick Holford's Optimum Nutrition Formula. I was taking Serrapeptase but cannot currently afford this, good as it is recconed to be for eaing up fibrin. I also take selenium.
I am also building up the courage (and planning) to start the Breuss 42-day-fast with my doctor checking on my health!!

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… oh, and for muscle pain I use a CBD, MSM, Arnica, Turmeric, Rosemary, Eucalyptus etc cream called PURAGANIC – this is amazing. Every suffering person I have let try this agrees! I haven't had bone pain for a while, I have just realised! Perhaps I am doing something right? For nerve pain (spinal stenosis) I am afraid I take Ibuprofen (after food, of course) as this seems to be the only antidote to this!

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@stimme

… oh, and for muscle pain I use a CBD, MSM, Arnica, Turmeric, Rosemary, Eucalyptus etc cream called PURAGANIC – this is amazing. Every suffering person I have let try this agrees! I haven't had bone pain for a while, I have just realised! Perhaps I am doing something right? For nerve pain (spinal stenosis) I am afraid I take Ibuprofen (after food, of course) as this seems to be the only antidote to this!

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stimme, I researched Breuss 42 day diet and found a forum called cancercompass where the Breuss diet was the subject started in 2005 however one who started the diet never revealed if she completed it. I am a lay person but after reviewing the Bresuss diet I encourage you to avoid this incomplete diet. Your stable weight says keep doing what your doing. Your time is better spent incorporating components in the nim.life/25466670 link.

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Hello, Onamission, thank you for this attention. I haven't started the diet. I thought it was just laziness on my part – of course, it may be intuition. Meanwhile where do I find the link you mentioned. I googled it but came up with nothing except an experiment of bringing up a chimp like a human!!

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@stimme

Hello, Onamission, thank you for this attention. I haven't started the diet. I thought it was just laziness on my part – of course, it may be intuition. Meanwhile where do I find the link you mentioned. I googled it but came up with nothing except an experiment of bringing up a chimp like a human!!

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See if this works https://nlm.life/25466670

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Hi…I have a condition called Myeloid/lymphoid neoplasms with PCM1-JAK2. My first indication of something wrong was in the summer of 2017 My primary physician detected irregularities in some of my blood tests. He referred me to Dr. Punit Wadhwa of Frauenshuh Cancer Center where the term myelofibrosis was first detected. In May of2018,I had a bone marrow biopsy, which resulted in the above diagnosis. My doctor arranged for a consultation at Mayo with Dr. Animesh Pardanani. My condition was confirmed and I was told that there are less than 10 known cases of this combination in the US. I began to have Phlebotomies until my RBC came down. I began to take Jakafi in July 2018 and have been on it since. Within 2 weeks, my symptoms disappeared: night sweats, fatigue, weight loss. I have been on Jakafi and have felt good ever since. I have routine bloodwork every 2 months and see my hematologist at Frauenshuh 3 times a year. I don't know know how long I will feel this good, but I will happily take every day I am given.

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Hi, Edimari, if it works go for it. The important thing to remember is that the immune system is usually able to cope with most assaults. I read a book recently entitled The Healing Codes. In it, the two writers, a PhD and a Doctor explain clearly how it is that stress is at the root cause of 99% of diseases. It is simple: when we are stressed we go into fight or flight mode. This means that the blood leaves all the defences and goes to the muscles for immediate action. If the cause of the stress goes or actual physical action takes place then everything returns to normal, and the organs and immune system are once more protected. If, however, for some reason, we remain too long in stress then we do become vulnerable, The book gives exercises to overcome this. Perhaps this might help too!

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@stimme

Hi, Edimari, if it works go for it. The important thing to remember is that the immune system is usually able to cope with most assaults. I read a book recently entitled The Healing Codes. In it, the two writers, a PhD and a Doctor explain clearly how it is that stress is at the root cause of 99% of diseases. It is simple: when we are stressed we go into fight or flight mode. This means that the blood leaves all the defences and goes to the muscles for immediate action. If the cause of the stress goes or actual physical action takes place then everything returns to normal, and the organs and immune system are once more protected. If, however, for some reason, we remain too long in stress then we do become vulnerable, The book gives exercises to overcome this. Perhaps this might help too!

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stimme, your right about the effects of stress. According to "krispin magnesium" it causes a loss of magnesium which protects the body from stress so maintaining adequate magnesium levels should be priority one through magnesium rich foods and/or supplements. I noted earlier you had to stopped using serrapeptase because of cost. I found the dietary flavanoid quercetin possesses anti fibrosis properties and when paired with the flavanoid kaempferol each enhances the other. They are JAK and HDAC inhibitors. Problem is poor absorption. Good candidates for liposome delivery.

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