Learn how to use Mayo Clinic Connect
Request an Appointment
Anyone out there wishing to discuss above diagnosis?
… oh, and for muscle pain I use a CBD, MSM, Arnica, Turmeric, Rosemary, Eucalyptus etc cream called PURAGANIC – this is amazing. Every suffering person I have let try this agrees! I haven't had bone pain for a while, I have just realised! Perhaps I am doing something right? For nerve pain (spinal stenosis) I am afraid I take Ibuprofen (after food, of course) as this seems to be the only antidote to this!
Jump to this post
stimme, I researched Breuss 42 day diet and found a forum called cancercompass where the Breuss diet was the subject started in 2005 however one who started the diet never revealed if she completed it. I am a lay person but after reviewing the Bresuss diet I encourage you to avoid this incomplete diet. Your stable weight says keep doing what your doing. Your time is better spent incorporating components in the nim.life/25466670 link.
Hello, Onamission, thank you for this attention. I haven't started the diet. I thought it was just laziness on my part – of course, it may be intuition. Meanwhile where do I find the link you mentioned. I googled it but came up with nothing except an experiment of bringing up a chimp like a human!!
See if this works https://nlm.life/25466670
Hi…I have a condition called Myeloid/lymphoid neoplasms with PCM1-JAK2. My first indication of something wrong was in the summer of 2017 My primary physician detected irregularities in some of my blood tests. He referred me to Dr. Punit Wadhwa of Frauenshuh Cancer Center where the term myelofibrosis was first detected. In May of2018,I had a bone marrow biopsy, which resulted in the above diagnosis. My doctor arranged for a consultation at Mayo with Dr. Animesh Pardanani. My condition was confirmed and I was told that there are less than 10 known cases of this combination in the US. I began to have Phlebotomies until my RBC came down. I began to take Jakafi in July 2018 and have been on it since. Within 2 weeks, my symptoms disappeared: night sweats, fatigue, weight loss. I have been on Jakafi and have felt good ever since. I have routine bloodwork every 2 months and see my hematologist at Frauenshuh 3 times a year. I don't know know how long I will feel this good, but I will happily take every day I am given.
Hi, Edimari, if it works go for it. The important thing to remember is that the immune system is usually able to cope with most assaults. I read a book recently entitled The Healing Codes. In it, the two writers, a PhD and a Doctor explain clearly how it is that stress is at the root cause of 99% of diseases. It is simple: when we are stressed we go into fight or flight mode. This means that the blood leaves all the defences and goes to the muscles for immediate action. If the cause of the stress goes or actual physical action takes place then everything returns to normal, and the organs and immune system are once more protected. If, however, for some reason, we remain too long in stress then we do become vulnerable, The book gives exercises to overcome this. Perhaps this might help too!
stimme, your right about the effects of stress. According to "krispin magnesium" it causes a loss of magnesium which protects the body from stress so maintaining adequate magnesium levels should be priority one through magnesium rich foods and/or supplements. I noted earlier you had to stopped using serrapeptase because of cost. I found the dietary flavanoid quercetin possesses anti fibrosis properties and when paired with the flavanoid kaempferol each enhances the other. They are JAK and HDAC inhibitors. Problem is poor absorption. Good candidates for liposome delivery.
I couldn’t find any evidence-based mentions of serrapeptase being used to help treat myelofibrosis. I found no mention of it in the National Center for Complementary and Integrative Health (NCCIH) database. A few members like @steve1948 @hishamhussain and @marzz have mentioned using it for lung conditions with varying success (or lack thereof).
Have you spoken to your wife’s doctor about it?
I, too am looking for confirmation ref serrapeptase and myelofibrosis. I took a nice product for a while which I found at a very good price (relatively). Now I have just contacted my medical herbalist because I have found the following comparisons with pure serrapeptase. It does sound as if it ought to be beneficial, doesn't it!
… here is one comparison:
and another brand:
Confusing, don't you agree?
I have been hearing about quercetin. Never heard of kaempferol. Worth looking into – I will see what I can come up with ref liposomal inclusion! Thanks for this, onamission! Will let you know!
Confusing is the word. Around 2009, radiation treatments for throat cancer left a friend's wife with a feeding tube because of scar tissue. He called Arthur Andrews Medical to ask if their Neprinol product would reduce the scarring – don't recall if another of their products was used. After following their recommendations for months no improvement was experienced. She stopped using the product.
I found an interesting research paper which suggests that the best inclusive substance for both quercetin and Kaempferol is broccoli sprouts. Dr Mercola sells fermented broccoli sprout capsules bu I have ordered organic broccoli powder from Buywholesalefoodsonline
and intend to mix it with my liposomal solution. But how I will be able to tell the effect I can't say. I am rather erratic in my sense of wellbeing and can never pin down the reasons especially as I am already taking a host of supplements and no sign of consultation until January 2021!
Yes, fermented or not it appears utilizing your liposomal solution is the better approach. This link has quercetin as a component.
Hey, that is stunning! I don't think I have seen a detailed medical report of success by natural means in this condition before. I was diagnosed, myself, nine and a half years ago so must have had the condition earlier as I was only given a medical because of my age. My consultant, if he is not hosting me, says my condition hasn't worsened! So perhaps my combination of supplements (eight, containing 43 different substances plus liposomal vitamin C) is already working but I will certainly send this to my medical herbalist who is rather clever, himself, at digging out interesting references! I have already posted it on Cancer Compass! Many, many thanks and well done!
Create an account to connect with other patients and caregivers like you.Ask questions, get answers, and give and get support.Also follow blogs from Mayo Clinic experts.
Already have an account? Sign In