Anyone want to talk about Myelofibrosis?

Posted by wellness3070 @wellness3070, Jan 5, 2017

Anyone out there wishing to discuss above diagnosis?

Interested in more discussions like this? Go to the Blood Cancers & Disorders Support Group.

@loribmt

Hi @dax1million I just wanted to check in with you to see how your husband is doing after this first chemo cycle. I’ve not heard of Vicaba. Could it be Vidaza?

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You’re so right it is Vidaza. He had his follow up with his wonderful doctor at Levine cancer center Charlotte. The doctor seemed please with his chemotherapy, he said it is doing exactly as he thought it would for the first round of treatment. He prescribed some medicines as precautions such as an antibiotic and anti fungal. He told us in the beginning the chemo would bring his numbers down and start to go back up. We left with hope that that he is responding and God answers prayers. Thank you Lori, so kind of you to inquire about him. His next appt with the doctor is May 6, I will let you know how it goes. Sincerely Elizabeth

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@dax1million

You’re so right it is Vidaza. He had his follow up with his wonderful doctor at Levine cancer center Charlotte. The doctor seemed please with his chemotherapy, he said it is doing exactly as he thought it would for the first round of treatment. He prescribed some medicines as precautions such as an antibiotic and anti fungal. He told us in the beginning the chemo would bring his numbers down and start to go back up. We left with hope that that he is responding and God answers prayers. Thank you Lori, so kind of you to inquire about him. His next appt with the doctor is May 6, I will let you know how it goes. Sincerely Elizabeth

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Hi Elizabeth! That’s really great news about your husband’s response to the Vidaza. It has a good track record. I know it can feel alarming to see those numbers going down but it is all part of a normal chemo cycle. The anti-fungal and anti-bacterial meds will act as a temporary immune system for him! So hang in there and give your husband an ‘air hug’ from me…yes, I’m a hugger. 😅
Next question is, how are YOU doing?

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