Myelofibrosis*

Posted by wellness3070 @wellness3070, Jan 5, 2017

Anyone out there wishing to discuss above diagnosis?

Interested in more discussions like this? Go to the Blood Cancers & Disorders Support Group.

@colleenyoung

Hi @wellness3070. I'd also like to introduce you to other members who have myelofibrosis or are caring for a family member who does. @rcand10s @gael and @bjsdancer will you join us in welcoming our newest member?

Wellness, I echo Teresa's question. When were you diagnosed? Are you in treatment?

Jump to this post

Thanks for reply. I, too, am on Jakafi and have been treated for condition for about 3 years. My basic side effects are decrease in RBC production and a low Hemoglobin, causing chronic leg weakness. Otherwise, stable.Are other meds related to myelofibrosis ?

REPLY
@hopeful33250

Hello @wellness3070 and thanks for beginning this conversation. Please share with us your interest in this disorder. Is this a recent diagnosis for you? We look forward to getting to know you better and having others share with you from their experiences as well.

Jump to this post

I was diagnosed with myelofibrosis about 4 1/2 years ago. I formerly was diagnosed with essential thrombocytosis which I had for about 10 years . I am considered "stable " currently, and am at a moderate level of myelofibrosis . 4 1/2 years ago my medication was thus changed .

REPLY

Hi @wellness3070. I'd also like to introduce you to other members who have myelofibrosis or are caring for a family member who does. @rcand10s @gael and @bjsdancer will you join us in welcoming our newest member?

Wellness, I echo Teresa's question. When were you diagnosed? Are you in treatment?

REPLY

Hello @wellness3070 and thanks for beginning this conversation. Please share with us your interest in this disorder. Is this a recent diagnosis for you? We look forward to getting to know you better and having others share with you from their experiences as well.

REPLY
Please sign in or register to post a reply.