← Return to Myelofibrosis*

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wellness3070 (@wellness3070)

Myelofibrosis*

Blood Cancers & Disorders | Last Active: Oct 5, 2020 | Replies (75)

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@stevehurlburt

Thanks….interesting. They were surprised it was not apparent in my fingers. Yes, I had a bone marrow biopsy and have discussed alternatives to Hydrea and even clinical trials. Interestedly enough, I found a trial, applied and was told I needed to be worse that a stage 1. Lol….so few of us have this and now they want only folks who are worse? Appreciate your feedback

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Replies to "Thanks....interesting. They were surprised it was not apparent in my fingers. Yes, I had a bone..."

Steve, when I was first diagnosed with MF after a biopsy, the first consultant I saw wanted to give me Hydrea. I said no – that I could not believe that something which did so much harm could be good for one! She 'sacked' me. Two subsequent consultants said they would not have prescribed it. I have continued with natural protocols and no drugs, successfully ever since – but with the help and advice of others doing the same thing. Much of it is experimentation to find out what works. The thing to hold on to is that if one becomes healthier it would not be too surprising if one becomes healthier (if you don't object to the obvious tautology here)!