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wellness3070 (@wellness3070)

Myelofibrosis*

Blood Cancers & Disorders | Last Active: Oct 5, 2020 | Replies (75)

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@onamission

Steve, please search on "toe discoloration hydrea". I'm postting an article that discusses and has pictures of hands instead of feet but your description seems to apply anyway. There may be a match for yours I haven't found. Why your still using Hydrea with a MF diagnosis is a puzzel. Was that diagnosis made from a bone marrow biopsy? Anyway, Hydrea is known to cause leg ulcers so contact your doctor for instructions.
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2885649/

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Replies to "Steve, please search on "toe discoloration hydrea". I'm postting an article that discusses and has pictures..."

Thanks….interesting. They were surprised it was not apparent in my fingers. Yes, I had a bone marrow biopsy and have discussed alternatives to Hydrea and even clinical trials. Interestedly enough, I found a trial, applied and was told I needed to be worse that a stage 1. Lol….so few of us have this and now they want only folks who are worse? Appreciate your feedback