My wife forgetting: Diagnosed with MCI

Posted by jimmars51 @jimmars51, Nov 29, 2020

She has been diagnosed with M C I for 18 months. More and more lately she will ask if we ate anything today. She very rarely cooks now and if i don’t schedule and make meals she goes without. I am trying best to stay up with everything, but its getting tough. Just need to “unload” and ask for ideas to be able to keep up. Lots more going on also.

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@teacher502

I am so grateful for the love that is so visible throughout these posts. Caregiving is a rewarding act of devotion and selflessness on a physical and emotionally draining adventure. The positive comments and the "creative adjustments" have lifted my spirits today! Thanks for all the ideas……and for the quick adjustments to situations that could have gone in a totally different direction. Lots of love and hope here today! I just want to hug someone!

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Hug returned.
Your words bout caregiving being a rewarding act of devotion and selflessness on a Physical and emotionally draining adventure bear repeating!!! From my standpoint as a LBD patient – I just. Want tot say a big thank you for what all of you caregivers do for each of us – everyday. Even if we cant say it.

Peace
Larry H

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@larryh123

Hug returned.
Your words bout caregiving being a rewarding act of devotion and selflessness on a Physical and emotionally draining adventure bear repeating!!! From my standpoint as a LBD patient – I just. Want tot say a big thank you for what all of you caregivers do for each of us – everyday. Even if we cant say it.

Peace
Larry H

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Big crocodile tears of Thanksgiving for your words….the energy you used to write this is evidence of your deep love for all of "us caregivers" Aka…best friends! This is a great journey and the saddest one of my life. It is a journey with so many unpredicted twists and turns that only someone with unquestionable, unconditional love could walk. The highs are amazing (those moments where personality returns) and the lows are deep struggles trying to understand how to help.
Larry, you are a great gift to so many of us. Grateful that God has allowed you to hold on to the ability to write about your journey "from the inside" while those of us "on the outside" reap the benefit of your words while we learn how to better understand the LBD journey we walk. It is quite probable that our hearts will continually enlarge as we reap the rewards of making the most of moments.
Prayers of Thanksgiving for you and the Mayo Clinic Connect that brings so much hope, encouragement amd strength to face each unpredictable day!
Jan

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@farmer0233

I have been going through another drug side effects. Thyroid medication, same side effects as the blood thinner Xarelto. I was ready for a nursing home because I was losing my memory and dizzy, blurred vision and double vision, couldn't drive. I have been off the thyroid for about 3 weeks and getting my life back. Still blurred vision but its better. MD including thyroid specialist are not listening. It was the thyroid and I have contacted FDA, doesn't look like they are investigating the issue. Just found out my neighbor is having issues with same medication. Eight prescriptions from October until July. Higher the dosage the worse the side effects.
Prayers
Don't give up.

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What is your thyroid medication called? This would be helpful to know. Thanks.

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Jimmars51. Hang in there. Don't let the uncertainty and the additional work such as scheduling and preparing meals. May wife has similar conditions which sometimes have me reeling. She was diagnosed with Alzheimer's Disease a year ago. The ups and downs with personality changes have my emotions going every which way.
I focused my thoughts on the need to take charge and focus on the new or expanded responsibilities such scheduling and preparing meals and activities. I've gotten focused so that I enjoy and look forward in doing these.
Be courageous, Jimmars51, and persevere. Make time to rest. Meditate (which I refer to as prayer with a personal God) and schedule times to relax.
Jimmars51, you are not alone. There are many here that are living similar experiences. Love to here about how you are doing.

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@victorkach

What is your thyroid medication called? This would be helpful to know. Thanks.

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Levothyroxine generic. LANNETT SANDOZ, ABBVIE. Plant in PA. Moving to Australia. Don't know who owns plant. I have been on. 75 Thyroid for 25 years. No problem until October 2020. Increases last prescription to .81. That made side effects worse.
Thank you

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@farmer0233

Levothyroxine generic. LANNETT SANDOZ, ABBVIE. Plant in PA. Moving to Australia. Don't know who owns plant. I have been on. 75 Thyroid for 25 years. No problem until October 2020. Increases last prescription to .81. That made side effects worse.
Thank you

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Thank you for the quick response with the details. I've been on Levothyroxin and, for a period, synthroid. Levo seems to have been more effective. I'm very sorry that this medication has become problematic for you. Are you considering an alternative approach for your thyroid condition?

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@victorkach

Thank you for the quick response with the details. I've been on Levothyroxin and, for a period, synthroid. Levo seems to have been more effective. I'm very sorry that this medication has become problematic for you. Are you considering an alternative approach for your thyroid condition?

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I am using iodine and some other vitamins. Trying one thing at a time to make sure no reaction
I was on one thyroid and, not synthetic, all gave me sa and e side effects as the Xarelto blood thinner. Same plant that makes the pills in USA, owned by China. My neighbor informed me that she is having side effects from thyroid, have to check the company. Get blood test this week

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@victorkach

Jimmars51. Hang in there. Don't let the uncertainty and the additional work such as scheduling and preparing meals. May wife has similar conditions which sometimes have me reeling. She was diagnosed with Alzheimer's Disease a year ago. The ups and downs with personality changes have my emotions going every which way.
I focused my thoughts on the need to take charge and focus on the new or expanded responsibilities such scheduling and preparing meals and activities. I've gotten focused so that I enjoy and look forward in doing these.
Be courageous, Jimmars51, and persevere. Make time to rest. Meditate (which I refer to as prayer with a personal God) and schedule times to relax.
Jimmars51, you are not alone. There are many here that are living similar experiences. Love to here about how you are doing.

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My husband was diagnosed with Alzheimer's about two years ago. He doesn't have mood swings and is even tempered unless I wrongly push him on something. I've learned to back off. He loves to eat and is very appreciative. The last year or so I had an undiagnosed autoimmune disorder which sapped my energy and gave me a lot of pain. One of the symptoms was anorexia – a lack of appetite. I had no desire to eat, but made myself, while he loved to eat. I wanted to eliminate dinner, but knew enough, not to propose it to him. I cook from scratch. I make hearty soups and stews in a large enough quantity that we can have it for a few nights. Also, when I make a large quantity, I freeze some so it's there for times I don't have the energy to cook. My husband has a sweet tooth. I make muffins with wholesome ingredients and half the sugar which he has for dessert with yogurt on top. Sometimes he forgets he ate dessert. He enjoys smoothies – frozen bananas with protein powder, milk or soy milk and a little stevia, but no added sugar. Now he wants lunch. I ask him to help me with the preparations to keep him engaged and he enjoys making a contribution. Best to everyone, for all the work you do.

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@tunared

Other than a few eye drops, my wife is off all medications and doing a lot better. Going to the gym for 1-2 hours helps her (and me) more than anything a MD could prescribe.

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Just found another neighbor on thyroid medication, same side effects as I had. She is not doing well. Same situation as my MD. If you don't take the thyroid you will die. I have been off thyroid about a month and doing great. Blood test tomorrow.
Stay on top of issues, gym. Prayers

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My husband has MCI diagnosed this year, and severe COPD. He is now mostly confined to his favorite recliner, is fairly rational but needs a lot of help with meals and prompting to take his many medications. Any suggestions on how to manage his caregiving would be appreciated. I’m now doing all tasks around the house that he used to help with.

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@cloudycarol

My husband has MCI diagnosed this year, and severe COPD. He is now mostly confined to his favorite recliner, is fairly rational but needs a lot of help with meals and prompting to take his many medications. Any suggestions on how to manage his caregiving would be appreciated. I’m now doing all tasks around the house that he used to help with.

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Hello, @cloudycarol Welcome to Mayo Connect! I am sad to read of your husband's diagnosis but glad you found Connect. I'm Scott and I was my wife's caregiver for her 14+ year war with brain cancer.

I wish I had some magic answer to your question, but all I can do is relate what worked, or helped, for me. Outside help was not an option for us, so I had to figure out some hacks quickly since as you already know there are never enough hours in a caregiver's day!

The thing that helped me the most was to learn to ignore some things I had never done in the past. I came to embrace that there would always be a pile of dirty laundry to do, that my shirts didn't really need to be ironed, that the dishes could wait, and dust bunnies became my newest pet, rather than pest 🙂

I also pared back many things I had previously considered needs and relegated them to 'maybe someday if I have time'. I cut back on the menu options I'd consider cooking to focus on easy, realized 'minute mental vacations' were going to have to suffice, and that the number one item on my daily list was always going to be caregiving and my wife's needs that day (or hour).

I'm happy to answer any questions you might have regarding specific suggestion areas!

Strength, Courage, & Peace

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@IndianaScott

Hello, @cloudycarol Welcome to Mayo Connect! I am sad to read of your husband's diagnosis but glad you found Connect. I'm Scott and I was my wife's caregiver for her 14+ year war with brain cancer.

I wish I had some magic answer to your question, but all I can do is relate what worked, or helped, for me. Outside help was not an option for us, so I had to figure out some hacks quickly since as you already know there are never enough hours in a caregiver's day!

The thing that helped me the most was to learn to ignore some things I had never done in the past. I came to embrace that there would always be a pile of dirty laundry to do, that my shirts didn't really need to be ironed, that the dishes could wait, and dust bunnies became my newest pet, rather than pest 🙂

I also pared back many things I had previously considered needs and relegated them to 'maybe someday if I have time'. I cut back on the menu options I'd consider cooking to focus on easy, realized 'minute mental vacations' were going to have to suffice, and that the number one item on my daily list was always going to be caregiving and my wife's needs that day (or hour).

I'm happy to answer any questions you might have regarding specific suggestion areas!

Strength, Courage, & Peace

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Thanks.

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