My results after 1 year of Evenity

Posted by hikernurse @hikernurse, Oct 22, 2023

I finished 12 months of Evenity in early October 2023 with thankfully zero significant side effects (a little tiredness, headache for a day or so) I am 67. My story is posted on my home page. I did maintain a good diet, exercised, walked, hopped, stomped, yoga, aqua dance, heel drops, stood on one foot whenever I could, ate prunes daily (5), eat my own L reuteri yogurt that I ferment, took algaecal plus (which only has trace strontium, not to be confused with strontium boost which I DID NOT take care for 2 grandchildren ages 2 and 4 twice a week. My point is I am pretty active. I had 4 previous separate fractures, 2 rib from hiking/biking falls and 2 wrists one from a fall off a few steps and another just weeks after my August 2022 DXA before I started meds. I was hiking in MT (mid September 2022) and turned to check on hubby and in an instant my foot hit a rock and I went down hard onto a rock. I shattered that wrist but had surgery and it healed. Started Evenity November 2022 (after covid) and after much research and medical opinions. Every morning I read the osteoporosis blogs from Mayo and have learned so much. Dr McCormicks Great Bones book is getting dog-eared.
I’m listening to Doug Lucas you tubes. We are all different but we are all trying so hard to help ourselves and really would rather not do meds but sometimes we just have to.

My bones did what Evenity said they would do. Spine went from -3.1 to -2.6 a 13.8% increase, femoral neck went from -3.3 to -3.0 a 7.5% improvement and total femur -3.0 to -2.7 a 5.4% improvement. Appointments and bloodwork in the next few days/week to see what’s next. I think I know the answer and I’m struggling. I believe it will be Prolia and I’m PANICKED about that. Concerned about time interval before starting. I will be having a CTX, not sure if that will help. I still have severe osteoporosis but the most important thing is I haven’t had a fracture!!

Any suggestions thoughts much appreciated. 

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@ekorre
well I already had 1 year of evenity with zero side effects and 22.8% gain in spine and 9% hip. the first year of alendronate held the gains and even increased them and the second year they began to decline. I have zero cardiac issues and had a coronary calcium score which was zero. I have exercised my entire life and continue to do so. A second round of evenity was recommended. This time I may follow with ONE dose of Prolia followed by reclast. Prolia concerns me greatly because of the rebound if you ever stop. I’m a ‘young’ 69 so not ready to commit to a lifetime of Prolia. Atypical femur fractures as well as osteo necrosis of the jaw concerns me or the need for dental work later as sadly I do have many crowns that are healthy now but not sure about the future. Best to you

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@hikernurse SAME I had a very good oral surgeon say to me that I've had a lot of 'good, expensive' dental work in my past but that means I'll probably need more in my future. I think the dentists feelings are even if the theoretical risk of the jaw necrosis is low, for some of their patients - me, maybe you - it's higher just because we spend so much time in those goddamn chairs.

For now I'm still trying to avoid the drugs although would love to get back to skiing in this lifetime and that's what the drugs promise.

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