1. < Parkinson's Disease

My Parkinson's life is so confusing - this is not easy.

Posted by johnnyvsn @johnnyvsn, Oct 27, 2024

I was officially diagnosed with Parkinson's May of 2019. I have been taking Rytary since diagnosis and can say it really does help me feel "normal", but just for windows of time. Sometimes the windows lasts a very short time, sometimes longer. I am not as sharp minded as I used to be. I just don't understand how my body can feel so bad a lot of the time, then feel normal at other times. Does anyone else struggle with accepting this as just the normal life of a Parkinson's sufferer?

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jflamini | @jflamini | Mar 30 4:38pm
In reply to @eliz722 "I was dx w/PD 2021. I am sure I had it longer but disregarded the early..." + (show)
@eliz722

I was dx w/PD 2021. I am sure I had it longer but disregarded the early non-motor symptoms. I too take a lot of meds. I spend a lot of my time filling pill boxes, dealing w/insurance & physical therapy companies. I am now contacting home health care companies.
I will be starting Apokyn in about 1 week. Any comments abouut it? I have not been on Rytary
Would the person who will be starting Medical marijuana post what type they take& their pro's and cons on it. I am considering using it to reduce stress. My doctor's like the idea of medical marijuana vs taking a prescription medicine. The psychiatrist consdier it "more natural" She finally said to take the CBD w/o the THC. One of my issues w/it is that I can't just take it when I am stressed. I am not going to start it until I have been on the Apokyn for a while. Responses are appreciated

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My wife has been on Apokyn for several years with great results. As you are probably aware it is an injectable medicine so a little inconvenient but well worth it. It is easily injected into a little fat in the abdomen and responds in about ten minutes. If her muscles are feeling tight when we are out shopping, etc she injects in the car and are quickly ready to go. It complements her other medications very well. Best wishes, Joe

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