My EP took me off Eliquis but I’m petrified I’ll have a stroke now

Posted by kmj126 @kmj126, Jan 1 8:09pm

I’m a 53-year-old female and I heard my first afib episode in October which lasted about eight hours of my converted with mediation. I haven’t had any episode since and I was given to echocardiograms and a two week Holter monitor and the doctor said because my chads score is 1 due to being female that I don’t need the blood thinners anymore. He said if I have another episode that we can further discuss what to do then but I’m definitely afraid right now that I’ll have a stroke. Does anyone that have had one episode of a fib not on a blood thinner?

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Profile picture for marybird @marybird

@chickenfarmer I had a Kardia 6L and kept it in the box it came in on my dresser- far as I know, it wasn't disturbed by anything. I didn't use it excessively, just occasionally when I was feeling palpitations and wondered if they could be A-fib- mostly just out of curiosity as I have a pacemaker with a remote monitor that sends reports to my pacemaker clinic/cardiologist on a regular basis and when an event occurs that's outside programmed parameters. So they know better than I do when my A-fib occurs and how long it lasts.
Anyhoo, my Kardia 6L died less than a year after I got it- my husband changed the battery and that didn't bring it back to life. Their customer service wasn't much help, and I decided I didn't need a Kardia mobile anyway, and tossed it. I'm reading yours and other comments about your Kardias doing the same thing and have to figure it must be a design problem.

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@marybird Based upon your experience I'm not so sure my theory about Kardias dying from being in my wallet is valid.

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Fewer drugs is usually a good idea. Bleeding risk from meds is more likely to result in death. Use of aspirin, even low dose 81mg aspirin, is not universally recommended now although it was in the past.

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Profile picture for chickenfarmer @chickenfarmer

@marybird Based upon your experience I'm not so sure my theory about Kardias dying from being in my wallet is valid.

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@chickenfarmer That's kind of what I was thinking too. There wasn't a Kardia 6L out there that was treated better than mine was, and it still died!

Interestingly enough, when we were in the market for another blood pressure monitor ( seems those things have shelf-lives too and ours was about 12 years old and was getting wonky) we found an Omron digital monitor with an arm cuff similar to the old one, except this model also had a Kardia mobile 2 L built into it, on sale. This model both checks the blood pressure and does EKGs simultaneously, or the owner can do either of those separately without the other reading. To use it, the Omron app is opened on the cell phone, which is placed on a cradle type holder on the monitor, and the user selects the "EKG and BP" or either one singly, places the fingers on the two pads on the top, and two pads on the side, and presses start to get the readings. The app records both readings, can store them, prepare the readings into a PDF format for transmission via email to a provider- just like the Kardia does.

I haven't used it a lot, I don't check my blood pressure as often as I should ( it's ok most of the time), and so it mostly sits on the dresser. I have been able to catch a few A-fib readings when I was experiencing the familiar symptoms and the A-fib lasted long enough. They looked like typical A-fib EKG readings, the heart rate was elevated ( around 120 BPM), and when I showed them to my cardiologist he verified these were A-fib. The thing with this device is that my A-fib/tachycardia episodes are for the most part short-lived, ( which is a good thing) generally less than one minute. So by the time I realize I'm experiencing those "flutters", pull the Omron device out of its case, set it up, set up the phone, ( with or without measuring the blood pressure at the same time which takes additional time placing the cuff on my arm) the tachycardia/A-Fib has stopped and I'm back in NSR. Happens almost all the time. I'm relieved and glad when it stops, so I've taken to considering the Omron EKG/Blood pressure monitor more of a terminating device for my A-Fib than one to record it. I feel the A-fib, run for the Omron/Kardia thingie, set it up for a reading and that guarantees I'll be back in NSR before I push that button. Almost as good reason for having one as using it for documentation of an arrhythmia!

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Profile picture for chickenfarmer @chickenfarmer

@marybird Based upon your experience I'm not so sure my theory about Kardias dying from being in my wallet is valid.

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@chickenfarmer Mary, Thx for the info. I wasn’t aware of the OMRON Kardia bundle so will consider it when I need another BP monitor. I’m very religious about taking BP measurement every day as I’m trying to keep under control for stroke risk among other things. I actually use an old CVS monitor that is probably 12 yrs old like yours. I also have an OMRON BP monitor but seldom use it- silly but it doesn’t fit in my bedside table. Actually I don’t really need a watch or KARDIA to know if I’m in AF, just check the heart rate and if it’s over 120 bpm and I feel fatigued then it’s AF. I’ve verified that with smartwatches as well as ECG. I use the Iwatch to detect ectopic beats which normally occur at 60-70 bpm.

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Profile picture for drdianeschneider @drdianeschneider

Hello,kmj126, I doubt that comments from a total stranger will relieve your anxiety, but the "5X" stroke risk w/ AF is highly overblown, since it does not take into consideration YOUR particular history. You are scaring yourself--stop thinking that "I'm gonna have a stroke now" simply because you had 1 episode of AF. The pharmacy industry makes a constant fortune from anticoagulants, and they have convinced cardiologists to push Eliquis etc. on everyone with AF. So if your drs. say you do not need it--believe them. You know there is a bleed risk on anti-coagulants, right? If you had a history of TIA's or strokes, had high blood pressure, diabetes, other conditions that increase stroke risk, or a high CHaDS/Vasc score, your doctors would have prescribed Eliquis (or other anti-coag). A number of doctors now believe that people who have low burden, ie., who only have occasional episodes of AF such as you, do not need anticoagulation because the risk of stroke in that case is so extremely low. My own risk was less than 1%, far less than the scare-statistic of 5% which I'm sure sells lots of Eliquis. (Yes, I am one who chose not to take Eliquis for 14 years because I had only 1 episode every 3-6 months.) Try to calm yourself, take some restorative walks, breathe deeply, pet your dogs and cats, and live your life each day free of fear or pressure about this issue, because anxiety itself will bring on atrial fib episodes. If your AF burden increases in future, believe me, the drs. will be pushing Eliquis on you. I hope the best for you!

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@drdianeschneider I was in AF 3% of the time and my cardiologist put me on Eliquis. Now I am in AF 30% of the time since I started taking it. Resisted going on it, now afraid to quit.

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If I get another episode, I will for sure go back on it.

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YES, WHEN 73, 1 EPISODE, SHOCKED OUT, ELIQUIS 4-5 YRS, MKINOR HEAD INJURY LED TO BRAIN BLEED, LEFT ELIQUIS IMMEDIATELUY, 4-5 YRS AGO, NO AFIB SINCE.

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Two approaches with one being to take a drug to reduce AF frequency and or duration. The alternative is to take a P2Y12 antiplatelet inhibitor such as prasugrel. The P2Y12 inhibitor minimizes blood clotting and the resulting damage. There are concerns with bleeding but from everything I have researched this happens most often with people who are also taking ASA or aspirin. Do not take Clopidogrel.
Prasugrel demonstrates superior platelet inhibition compared to clopidogrel:
82.5% vs 71.1% inhibition at 4 hours after loading dose 5
84.1% vs 67.4% inhibition at 30 days during maintenance 5
Reduced composite endpoint of cardiovascular death, nonfatal MI, or nonfatal stroke compared to clopidogrel 2, 6
Particularly effective in patients with diabetes mellitus

Prasugrel is not recommended for the wrong reasons for people over 75 years of age as it is thought to cause intracranial bleeding but when people do have a stroke and need a stent implanted in the brain it is Prasugrel that is usually proscribed.

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