Connect
Multiple medicine allergic responses
Didn't see any discussions regarding multiple medicine allergic responses. I am embarrassed to say, I am up to 24 allergic responses with medications. The allergic reactions are things I can't control such as high potassium, low sodium, noncardiac pulmonary edema. I feel like health care providers open the chart and see this, I get labeled as "crazy" and when I say I am starting to react to a medicine, noone listens. If I stop the med for my own safety, then I am causing a problem, even if my blood pressure drops due to side effects starting or I feel weak and sodium is dropping and is 130. I don't even want to use healthcare. It is exhausting advocating for myself. I was warned by a pulmonologist, my allergic reactions are dangerous because I rarely have a rash and therefore, treatment is delayed or felt not warranted.
Like
Helpful
HugInterested in more discussions like this? Go to the Asthma & Allergy Support Group.
Connect
@legeke
Medicine capsules contain gelatin. Alpha gal is allergic to gelatin as well as meat
-
Like -
Helpful -
Hug
2 Reactions@ccshel yes there is a lot of gelatin in many things. The lab normal is 0.3 and my level was 1.0. The GI doctor that ordered the alpha gal level counseled me to avoid mammilian meat, gelatin, etc. However, the immunologist said she isnt concerned until the level is 20 or higher. I do carry an epi pen, benadryl elixir ampules, albuterol inhaler. Luckily, I have only anaphylaxed twice. Both times after receiving antibiotics, which happened in the 90’s. Other reactions are electrolyte abnormalities which arent considered histamine related. The immunologist has been more concerned about mast cell activation syndrome and the addition of cromolyn really helped with the nausea andin the last couple weeks, my BP seems to be more stable and havent had dips in the 70’s; so, feeling hopeful.
-
Like -
Helpful -
Hug
1 Reaction