Financial strain of having multiple autoimmune diseases

Posted by mary1121 @mary1121, Aug 10, 2018

I have just been diagnosed with my 6th autoimmune disease. I am in a panic state. MS, Celiac,hypothyroidism, fibromyalgia and lupus. I want to get in with a functional doctor, but all of the ones that I have talked to cost between $10,000-15,000 upfront. I don’t know where to turn.

Interested in more discussions like this? Go to the Autoimmune Diseases group.

@johnbishop

Hello @mary1121 — I see that you are new to Connect and I would like to Welcome you. I know it can be distressing not knowing all the answers and what to do. I can tell you that you are not alone. It's good that you are looking for information and asking questions. That means you have a strong desire to learn more about your health and will help you be a better advocate for yourself.

I thought you might find the following TED Talk helpful.
What happens when you have a disease doctors can't diagnose TED talk by TED Fellow Jennifer Brea who became progressively ill with myalgic encephalomyelitis, commonly known as chronic fatigue syndrome.
https://www.ted.com/talks/jen_brea_what_happens_when_you_have_a_disease_doctors_can_t_diagnose

I’m not sure if it is an option for you but if it is, the Mayo Clinic is very good at diagnosing health issues that are difficult to diagnose. If you would like to seek help from Mayo Clinic, you can contact one of their appointment offices. The contact information for Minnesota, Arizona and Florida can be found here:

Mayo Clinic Contact Information: http://mayocl.in/1mtmR63.

John

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Hello all this is Beryl …..I was sitting here reading some of the posts and realized that it makes such a difference to see that there are lots of people in the same boat and worse…..I always felt a bit of a freak as people round you really don't know what the dickens is wrong with you …..I used to find myself floundering and making excuses for myself so it didn't feel so bad ……Now I don't Mayo Connect has given me confidence …..thank you guys for sharing and unfreaking me…..ha ha ……

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@beryl

Hello all this is Beryl …..I was sitting here reading some of the posts and realized that it makes such a difference to see that there are lots of people in the same boat and worse…..I always felt a bit of a freak as people round you really don't know what the dickens is wrong with you …..I used to find myself floundering and making excuses for myself so it didn't feel so bad ……Now I don't Mayo Connect has given me confidence …..thank you guys for sharing and unfreaking me…..ha ha ……

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I can really relate to that Beryl @beryl !!

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Thanks John ……hope you are not doing too much in the garden!! Beryl

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@beryl

Hello all this is Beryl …..I was sitting here reading some of the posts and realized that it makes such a difference to see that there are lots of people in the same boat and worse…..I always felt a bit of a freak as people round you really don't know what the dickens is wrong with you …..I used to find myself floundering and making excuses for myself so it didn't feel so bad ……Now I don't Mayo Connect has given me confidence …..thank you guys for sharing and unfreaking me…..ha ha ……

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@beryl we are all in the same ⛵ but we all need to keep rowing LOL

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@lioness

@beryl we are all in the same ⛵ but we all need to keep rowing LOL

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Yes Lioness I am doing my best….Beryl

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@beryl

Yes Lioness I am doing my best….Beryl

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@beryl thats all we can do

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@mary1121 Mary, are you anywhere near Massachusetts? If so, I'll give you contact information for a functional medicine doc who doesn't charge outrageous fees and participates in Medicare.

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@steeldove

@mary1121 Mary, are you anywhere near Massachusetts? If so, I'll give you contact information for a functional medicine doc who doesn't charge outrageous fees and participates in Medicare.

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Hello @steeldove
I am not familiar with the term, "functional medicine doc" can you explain what kind of the doctor that is and how it is different from other medical professionals? The name sounds very interesting.

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@hopeful33250

Hello @steeldove
I am not familiar with the term, "functional medicine doc" can you explain what kind of the doctor that is and how it is different from other medical professionals? The name sounds very interesting.

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@hopeful33250 I hope this helps: Various forms of alternative medicine, such as functional medicine and integrative medicine, have been quickly gaining popularity in the 21st century. Both disciplines are highly regarded by world-renowned health care practitioners such as Drs. Deepak Chopra, Mark Hyman and Dean Ornish. Many believe functional and integrative medicine are the future of medicine. Physicians are beginning to take a more holistic approach to treating patients, no longer just concentrating on treating a disease. Although functional medicine and integrative medicine have similarities and overlap in several areas, there are a few factors that make each discipline somewhat unique.

What is Integrative Medicine?

Integrative medicine is a holistic medical discipline which takes into account the lifestyle habits of a patient. The physician works to treat the whole person rather than just the disease. The mind, body, and soul of a patient are taken into consideration to promote healing and well-being.

Integrative medicine uses a combination of modern healthcare practices to diagnose and treat a patient. Treatments may include such modalities as acupuncture, yoga, or massage. This medical practice also focuses on the nutritional and exercise habits of the patient to curb factors related to obesity and diabetes. Integrative medicine physicians believe poor lifestyle choices are the root cause of many modern chronic diseases.

What is Functional Medicine?

Functional medicine embraces much of the philosophy of Integrative medicine as described above but also employs a systems-oriented medical approach that works to identify and understand the underlying or root causes of a disease. This discipline takes into account the personalization of healthcare, as each patient care plan is distinct and unique. The relationship between patient and practitioner effectively becomes a partnership; every aspect of a patient’s medical history is reviewed in detail. Much like integrative medicine, functional medicine treats the individual rather than the disease.

Often, individual genetic and environmental research is conducted to obtain a deeper knowledge of the patient’s health status. Understanding the biochemical individuality of a patient can lead to the underlying causes of disease and furthermore, the prevention of additional health risks in the future. Functional Medicine has gained much popularity, even spurring the creation of the Institute for Functional Medicine. Personalized medicine is without a doubt, the future model of medical care.

Interested in personalized medical care? Learn more here.

Although integrative medicine and functional medicine have similarities, there is one important distinction. Both practices focus on supporting the patient as a whole person; however, functional medicine strives to determine the root cause of each and every disease, particularly chronic diseases such as autoimmune and cardiovascular diseases as well as, diabetes and obesity. Rather than simply making a diagnosis and then determining which drugs or surgery will best treat the condition, Functional Medicine practitioners dive deep into the patient's history and biochemistry and ask why this patient is ill. Functional medicine is highly personalized and often includes a detailed analysis of an individual’s genetic makeup.

Healthcare is undergoing drastic changes in the 21st century. In as few as five years we will look back and ask ourselves how we could have been practicing medicine so primitively. Those practitioners who embrace the Functional and Integrative Medicine paradigms will be at the forefront of healthcare in the 21st century.

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Does anyone have problems with Oriencia effecting their Menieres Disease. Mine has escalated & lasts for days. Like I’m stuck in a Minieres attack. My RA hasn’t been successfully controlled & I’ve had so many side effects from the many treatments in the last 12 yrs? Help. My ENT & rheumatologist disagree.

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