Multiple autoimmune diseases

Posted by denadet @denadet, Jan 5, 2019

I was wondering if there were others with multiple diagnosis. I have 8 autoimmune diseases and 6 other long term illnesses. I can’t find anything on the internet for that many. Is that a wierd thing or just they don’t study that kinda thing.

@peach414144

After reading these articles over and again (Multiple Autoimmune factors) it has come to my conclusion that stress from an early age and mostly in a constant state (for a very, very long time) is hugely important. I can go into much detail but it is still important to know that I am a layman and not a professional. It appears to be that there has been little investigation into this particular category. Most people afflicted with these autoimmune health issues are embarased to reveal same as it is so very intimate and revealng. And many other factors included, on and on. This is a very interesting and revealing part of the autoimmune factors that I have not thought they to be a part of. Good information for thought. Thank you for this. Peach

Jump to this post

Just to set the record straight: I have Rheumatoid Arthritis, Psoriatic Arthritis and Hypotyroidism. So, at least three. And what about Pancytopenia? On and on with others, Diabetic, and seven more medical problems. Quite confusing. Trying to stay alive is three jobs in one. (Right now I am talking to the Shingles rash walking around on my skin}. Still trying to find a sympathetic doctor who cares seems to go nowhere. But taking care of the dog and cat is an enjoyment. Caring for them helps to take my mind off my problems. Living in another world.

REPLY
@peach414144

Just to set the record straight: I have Rheumatoid Arthritis, Psoriatic Arthritis and Hypotyroidism. So, at least three. And what about Pancytopenia? On and on with others, Diabetic, and seven more medical problems. Quite confusing. Trying to stay alive is three jobs in one. (Right now I am talking to the Shingles rash walking around on my skin}. Still trying to find a sympathetic doctor who cares seems to go nowhere. But taking care of the dog and cat is an enjoyment. Caring for them helps to take my mind off my problems. Living in another world.

Jump to this post

Peach414144 Peach, I, also have RA, PA, and Hypotyroidism. But I also have RyR2, FKTN, and Gelsolin. And now I have Shingles. What are the chances these are all tied together, and that Shingles is the parent mutator into all of these, including shingles? Anyone else have Amyloid with RA, PA, Hypothyroidism, RyR2, FKTN and/or Gelsolin and/or Shingles? Just asking a question?

REPLY
@gingerw

@kidsmomof9 I have a few autoimmune-related conditions. It has made me a warrior as I navigate this journey! Mine include systemic lupus, fibromyalgia, a rare kidney disease, multiple myeloma, osteoarthritis.

Would you care to share your autoimmune conditions!
Ginger

Jump to this post

@kidsmomof9 Really just a question here. I have a systemic form of Autoimmune, Amyloidosis Gelsolin. Every tissue and fluid I have has been invaded by mutated proteins. I have been previously diagnosed with "Upon my first diagnosis, Sjogren's, I was advised that having just one auto immune disease is rare and to expect them to find more. Yes, they did. Primary Biliary Cholangitis, Hashimotos, Gastroparesis, Ulcerative Colitis, peripheral neuropathy GERD, arthritis. My eyes are too dry and I can rarely drive, lost my teeth to dry mouth." But my current diagnosis includes possible forms of Amyloidosis which shows all these symptoms, and now I have shingles as well. It makes me wonder if these systemic (impacts the whole bank of body tissues and fluids) are what you have, although it is quite rare. I can name a dystopia of every tissue from my toes to my cerebrum which is a result of Gelsolin. It is not violent, but the impact can be fatal, especially as it invades hearts, lungs, brain, pancreas, kidneys, liver, etc..

REPLY

Wow ! Not something I am familiar with at all! Definitely something for me to research. Thank you!

REPLY
@oldkarl

Peach414144 Peach, I, also have RA, PA, and Hypotyroidism. But I also have RyR2, FKTN, and Gelsolin. And now I have Shingles. What are the chances these are all tied together, and that Shingles is the parent mutator into all of these, including shingles? Anyone else have Amyloid with RA, PA, Hypothyroidism, RyR2, FKTN and/or Gelsolin and/or Shingles? Just asking a question?

Jump to this post

Please what is RyR2 and EKTN and Gelsolin? I need to know this in order to keep up. I do not answer other posts because I do not know the abbreviations. I am sure other people need to know this so they can keep up with the conversations. It is awkward to leave the site to look up the abbreviations and then to come back to the conversation. Please excuse my awkwardness and old age of 82 as I do mean well. With love, Peach

REPLY
@oldkarl

@kidsmomof9 Really just a question here. I have a systemic form of Autoimmune, Amyloidosis Gelsolin. Every tissue and fluid I have has been invaded by mutated proteins. I have been previously diagnosed with "Upon my first diagnosis, Sjogren's, I was advised that having just one auto immune disease is rare and to expect them to find more. Yes, they did. Primary Biliary Cholangitis, Hashimotos, Gastroparesis, Ulcerative Colitis, peripheral neuropathy GERD, arthritis. My eyes are too dry and I can rarely drive, lost my teeth to dry mouth." But my current diagnosis includes possible forms of Amyloidosis which shows all these symptoms, and now I have shingles as well. It makes me wonder if these systemic (impacts the whole bank of body tissues and fluids) are what you have, although it is quite rare. I can name a dystopia of every tissue from my toes to my cerebrum which is a result of Gelsolin. It is not violent, but the impact can be fatal, especially as it invades hearts, lungs, brain, pancreas, kidneys, liver, etc..

Jump to this post

Dear OldKarl, my eyes are so dry they are being treated by doctors and have also lost all teeth due to this. Gerd, two arthritis, Hashimotos, Rheumatoid and Psoriatic arthritis, Diabetes and right now the kidneys are ready for dialysis. These are among eight other medical problems to long to list. As well as now having Shingles. VERY IMPORTANT: Perhaps this Corona virus is prompting and producing the Shingles?

REPLY
@peach414144

Dear OldKarl, my eyes are so dry they are being treated by doctors and have also lost all teeth due to this. Gerd, two arthritis, Hashimotos, Rheumatoid and Psoriatic arthritis, Diabetes and right now the kidneys are ready for dialysis. These are among eight other medical problems to long to list. As well as now having Shingles. VERY IMPORTANT: Perhaps this Corona virus is prompting and producing the Shingles?

Jump to this post

Peach414144 What you name here fits well into the description of Gelsolin, as well. At this point, it is very important for you to be diagnosed in a molecular study. If you live anywhere near Emory or Duke, I would contact their med schools. They are among the best. Or Nashville (Tennessee University), etc.

REPLY
@gingerw

@kidsmomof9 I have a few autoimmune-related conditions. It has made me a warrior as I navigate this journey! Mine include systemic lupus, fibromyalgia, a rare kidney disease, multiple myeloma, osteoarthritis.

Would you care to share your autoimmune conditions!
Ginger

Jump to this post

Autoimmune diseases are no fun. Dorothy

REPLY
@oldkarl

@kidsmomof9 Really just a question here. I have a systemic form of Autoimmune, Amyloidosis Gelsolin. Every tissue and fluid I have has been invaded by mutated proteins. I have been previously diagnosed with "Upon my first diagnosis, Sjogren's, I was advised that having just one auto immune disease is rare and to expect them to find more. Yes, they did. Primary Biliary Cholangitis, Hashimotos, Gastroparesis, Ulcerative Colitis, peripheral neuropathy GERD, arthritis. My eyes are too dry and I can rarely drive, lost my teeth to dry mouth." But my current diagnosis includes possible forms of Amyloidosis which shows all these symptoms, and now I have shingles as well. It makes me wonder if these systemic (impacts the whole bank of body tissues and fluids) are what you have, although it is quite rare. I can name a dystopia of every tissue from my toes to my cerebrum which is a result of Gelsolin. It is not violent, but the impact can be fatal, especially as it invades hearts, lungs, brain, pancreas, kidneys, liver, etc..

Jump to this post

Hi Oldkarl and whomever else is reading this, this is Peach again. It seems we both have many of the same diseases (or problems) with our bodies. Some inherited, some where and how we live and eat and lifestyles etc., etc., etc. We know we are suffering mentally and physically yet we keep going on. Why? Many, many reasons why and perhaps so we can leave a legacy of trying to help others who are suffering. To let them know that they are not alone, that they are not the only ones. Would it be kind to place our brains into a human looking robot to live out the rest of lour lives without the many pains we are suffering with? Then to go into the hereafter living out the rest of our lives in a much more pleasant way. Instead of spending much monies on drugs, pills for pain which do hurt the body organs (and really do not do much for the pain itself) but to muddle the mind create the "THING" which will hold our brain (and soul)? Now I must come out of the deep abyss and be back to reality, "Ouch it does hurt so much".

REPLY
Please sign in or register to post a reply.
  Request Appointment