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Multifocal Adenocarcinoma of the lung, continual recurrences
We have multifocal adenocarcinoma of the lung. @linda10 and @sakota.- Please join me in this discussion.
For a short explanation of this tongue twister. Briefly, Multifocal Adenocarcinoma (MAC) of the lung is a clinical entity of multiple synchronous (less than 6 months) or metachronous (more than 6 months), often ground-glass opacities (GGO) on CT scan, typically indolent-behaving cancers. There is a scarce amt of clinical data to guide treatment decisions.
This came from http://ascopubs.org/doi/abs/10.1200/JCO.2017.35.15_suppl.e20041.
This means that more than one potential cancerous lesion, mostly ground glass, shows up at a time. For instance I had 3 cancerous lesions 10 years ago in my left lung and in the same area. They were all different sizes. They grow at different rates.
Multifocal adenocarcinoma is a very complex cancer because the medical profession doesn't know if the ground glass lesions are the primary cancer or small metastases of another primary cancer. They don't even know where they start..
Multifocal Adenocarcinoma has sub types and it's management is based on whether it's indolent or very virulent.
These are very simplistic explanations. Even doctors are confused by it and it's only been within the last twenty years that they have separated it from a Bronchioloalveolar Carcinoma (BAC).
The constant recurrences are the buggers. Not only do we have to constantly face lots of CT scans but when lung cells change, which they often do, we are in terror of another virulent cancer. I presently have several ground glass lesions. And I have had many that have disappeared. It's enough to drive you nuts and PTSD is exacerbated by the frequency of these devils.
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@meka- thinking of you! You've got this!
@sakota- aww
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1 ReactionMerry said everything right. Am thinking about you too
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2 Reactions@meka- I've been thinking about you and wondering how you are feeling about these upcoming tests.I was going to post early but I over slept- not something that I do very often. Are you relieved? Anxious? You've worked hard to get to this place called "tests". You should be proud! You've got this, I know! I wish you all the best and will keep all my extensions crossed. You will definitely be on my mind!
Prayers for you! I hope you will find some answers
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1 ReactionUpdate, leaving tomorrow for tests on Friday and Monday. Decided to stay downtown at the Hilton garden inn, any energy would welcome, thanks so much!!!
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3 ReactionsMy husband and I have stayed at the Kahler Grand and also Kahler Inns and Suites. The last few times when staying at the Kahler Inn we were very unhappy with the cleanliness of our rooms. We are not picky people but after the last visit we complained. It is convenient though when going to numerous appts at the clinic. Since my husband had a liver transplant in June of 2018 we now stay at The Gift of Life Transplant House which is a wonderful place to stay.
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1 ReactionIt’s kahler inn and suites. Kahler grandhotel. And the kahler towers
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1 ReactionHampton is clean. Free breakfast shuttle service and special rate if you are going to mayo.
@merry. They are motels connected to mayo with walkways. Some of them are really expensive from what I have seen. I always stay at Hampton inn. South. They took care of me. Then last time a couple of ladies went to Hampton north to work. Soo I did too. I can find out more info about kaylers merry and let you know.
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