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Multifocal Adenocarcinoma of the lung, continual recurrences
We have multifocal adenocarcinoma of the lung. @linda10 and @sakota.- Please join me in this discussion.
For a short explanation of this tongue twister. Briefly, Multifocal Adenocarcinoma (MAC) of the lung is a clinical entity of multiple synchronous (less than 6 months) or metachronous (more than 6 months), often ground-glass opacities (GGO) on CT scan, typically indolent-behaving cancers. There is a scarce amt of clinical data to guide treatment decisions.
This came from http://ascopubs.org/doi/abs/10.1200/JCO.2017.35.15_suppl.e20041.
This means that more than one potential cancerous lesion, mostly ground glass, shows up at a time. For instance I had 3 cancerous lesions 10 years ago in my left lung and in the same area. They were all different sizes. They grow at different rates.
Multifocal adenocarcinoma is a very complex cancer because the medical profession doesn't know if the ground glass lesions are the primary cancer or small metastases of another primary cancer. They don't even know where they start..
Multifocal Adenocarcinoma has sub types and it's management is based on whether it's indolent or very virulent.
These are very simplistic explanations. Even doctors are confused by it and it's only been within the last twenty years that they have separated it from a Bronchioloalveolar Carcinoma (BAC).
The constant recurrences are the buggers. Not only do we have to constantly face lots of CT scans but when lung cells change, which they often do, we are in terror of another virulent cancer. I presently have several ground glass lesions. And I have had many that have disappeared. It's enough to drive you nuts and PTSD is exacerbated by the frequency of these devils.
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Hi I'm Nancy.... I was diagnose with two kinds of Lung cancer (mesothelioma and small cell cancer. Meso is in my left lung. I have ct scans every three months. I have had chemo for my right lung, was allergic to it and then Immune therapy that made me hurt all over. Then Predisone for severral months to stop the pain. Only reason for the radiation is to stop the bleeding in my right lung. I can't do anything else, I will be 87 next month and don't t know or care which one kills me. All this started just four years ago. My husband worked in the plastering industry from 1955 to 1980 and brought hi stuff in his clothes. Fifteen years later he had cancer with several surgeries later he died at age 90 in 23018. So whatever happens.....happens. Nancy
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1 ReactionHi merry. How are you. I just finished reading in connect about radiation damaging the heart. It mentioned about breast cancer but was wondering if this also included radiation for lung cancer on the left lung. I go too mayo in April for my ct scan so was wondering if this is something I need to discuss prepare mysel for or what. I already had one heart attack and this was before the copd and lung cancer. This is never ending. Think of everyone and my prayers are with you all. Joan
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1 Reaction@sakota- Good morning Joan! I haven't heard from you in a while. How are you feeling? Has there been any decision about your left lung yet?
@cornucopia- Good morning and welcome to Mayo Clinic Connect. I am a fighter and put a lot of faith and trust into my doctors and science. What has drawn you attention to Multifocal Adenocarcinoma of the lung-continual recurrences group?
How wonderful! You are obviously a fighter and that plus modern medicine will create miracles for you.
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1 Reaction@sakota- Happy New Year! How is your fatigue? Has your bladder infection cleared up?
@sakota- Hi Joan. It's always so good to hear from you. I'm on a 6 month check up as there are a few suspected lesions in my left lung too and many, many small ones. In 6 months if anything has moved it will probably be zapped and not biopsied. This is what is very hard about Multi-focal adenocarcinoma, the roller coaster ride. Have you been in an exercise program at all? That would help with fatigue. Also it hasn't been a year yet since your surgery has it? But even if it's been a bit over that you would at times still feel tired.
Now bladder infections can really cause fatigue. Are you being seen by a doctor for it? If you are on antibiotics they are big culprits for fatigue. My last bladder infection was a doozy, very high fever too. Here is a recent conversation about bladder infections that you might want to join in:
https://connect.mayoclinic.org/discussion/chronic-bladder-infection-using-a-gentamycin-bladder-wash/?pg=1#comment-354311
I hope that you will be able to enjoy the holiday- get well soon!
Hello. And a merry christmas to everyone. I should be thankful for all my blessings. But somedays. I am so tired cant do much anymore i try to do things but its getting. Worse. Its back to waiting game for lung cancer. So they say its changed in your left lung but its too small yet to do a biopsy so come back in 6 months for ct scan. I know there are a lot of people who are worse off than i. Also now im dealing with bladder infection and its hard to get rid of. I am just so tired
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1 Reaction@teresalane- Hello. I haven't heard from you in a bit and am wondering how you are holding up in this crazy season.
@teresalane- Good morning Teresa. I am so happy that you responded! I hear you about the holding pattern. This report sounds just like mine. My next one is early next month. It's great to advocate for lung cancer. One way is to check in on us here at Mayo Connect in this group; if not responding to someone's post than to start a new discussion, perhaps about an experience that you would like to share.
I'm glad that you acted to have your skin cancer treated. You can post your experience right here in the Cancer group. Will you need any treatments for it?