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Multifocal Adenocarcinoma of the lung, continual recurrences
We have multifocal adenocarcinoma of the lung. @linda10 and @sakota.- Please join me in this discussion.
For a short explanation of this tongue twister. Briefly, Multifocal Adenocarcinoma (MAC) of the lung is a clinical entity of multiple synchronous (less than 6 months) or metachronous (more than 6 months), often ground-glass opacities (GGO) on CT scan, typically indolent-behaving cancers. There is a scarce amt of clinical data to guide treatment decisions.
This came from http://ascopubs.org/doi/abs/10.1200/JCO.2017.35.15_suppl.e20041.
This means that more than one potential cancerous lesion, mostly ground glass, shows up at a time. For instance I had 3 cancerous lesions 10 years ago in my left lung and in the same area. They were all different sizes. They grow at different rates.
Multifocal adenocarcinoma is a very complex cancer because the medical profession doesn't know if the ground glass lesions are the primary cancer or small metastases of another primary cancer. They don't even know where they start..
Multifocal Adenocarcinoma has sub types and it's management is based on whether it's indolent or very virulent.
These are very simplistic explanations. Even doctors are confused by it and it's only been within the last twenty years that they have separated it from a Bronchioloalveolar Carcinoma (BAC).
The constant recurrences are the buggers. Not only do we have to constantly face lots of CT scans but when lung cells change, which they often do, we are in terror of another virulent cancer. I presently have several ground glass lesions. And I have had many that have disappeared. It's enough to drive you nuts and PTSD is exacerbated by the frequency of these devils.
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Vic- Somehow, from somewhere you picked up the virus at a miserable time. Not that there is a good time. You are now finished with your treatment for Covid. I know that you were ill at the time, but did you experience any side effects from the anti-viral? Can you tell if there is a difference now that you aren't getting it?
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1 ReactionYes, I watch Dr Poland. I have followed Covid closely since early 2020 because of my contacts in Italy. I was aware of aerosol impact early on and about importance of mask quality and fit. While now people understand about air and aerosols (they can hang in the air for hours), other means of contagion are no longer getting attention. My case demonstrates that other means are quite possible. And the viral load on surfaces? Must be lower than talking to a sick person. But still sufficient. No, I don't enjoy seclusion. Because I am considered immune compromised due to surgery, they recommend quarantine for 20 days - because a weakened immune system allows the virus to linger longer and mutate. But I was already isolated so no big deal.
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1 Reaction@vic83-haha, no space suit needed. Omicron is very very contagious. You can get it if it's in the air. You must feel extremely frustrated after being so careful and then, BAM.
Remember that no vaccine is perfect, nor is anything else that you try. If I were you I would continue to do what you have been doing. Am I right in thinking that you don't want to live in seclusion?
Are you watching Dr. Greg Poland's podcasts?
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1 ReactionHere is an update on my Covid situation. I am on my 5th and last day of antiviral treatment. My blood oxygen is great, my breathing much easier and my "congested" cough 95% improved. I tested positive (PCR test) for Covid 4 months after my third Pfizer dose and 30 days after my VAT surgery. Symptoms after surgery just changed into symptoms from Covid. Apparently, surgery weakens immune system (and I was under for 3 hours). What is also of note is that I had no contact with family/friends, and I always wore an N95 mask when leaving home, only curbside pickup of groceries/takeout, never entered any building but my own, never lingered in common areas and only occasionally passed someone on the stairs. I use a Merv13 filter with my independent air/heating unit. Therefore, I caught Covid through groceries/takeout food packaging or aerosols in my building. I will start again spraying disinfectant on all packaging. I am looking for a spacesuit.
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1 Reaction@merpreb, My team ran the tests for targeted chemo at the onset of my diagnosis in the event things started growing quickly at any point, then we’d know if it were an option for me. I understand from what my team has explained, some forms of adenocarcinoma can be aggressive.
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1 Reaction@jamineibs - Good morning. With multifocal adenocarcinoma surgery or targeted radiation - SBRT is the protocol. Chemo is usually preserved as life-extending after all other options have been used. It's the nature of our beast. Perhaps there will come a time when there is a test that can tell which lesions are likely to become cancerous and which are not.
We have some crazy cancer, right?
I believe they tested my genetics to see if I was a candidate for targeted chemo therapy and I wasn’t, but I do know someone that did very well with targeted chemo.
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1 ReactionMy Pulmonologist mentioned it to me as a future possibility. My tumor tissues were sent for complete analysis to identify any mutations that are known to be more sensitive to specific types of treatment (radiation, immunotherapy etc.)
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1 ReactionI am scheduled for third week of March for CT scan and Pulmonologist.
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1 ReactionYes and thank you so much. It makes sense to just watch and see whether the lesions disappear on their own or something more concerning happens.
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