Mucous Membrane Pemphigoid

Posted by emmalouise @emmalouise, Jul 11, 2016

Need information on Mucous Membrane Pemphigoid.

Interested in more discussions like this? Go to the Autoimmune Diseases Support Group.

@jimhaz

Just recently I recieved a diagnoses of MMP the oral type. Where do I go from here? Had biopsy came back positive. Concerned about eye progression, because my wife is blind, this could make life difficult.

Jump to this post

Welcome @jimhaz. There are a lot of unknowns when you receive a diagnosis and don't know what could be next.
@terrydclaar may be able to share some experience with you. The International Pemphigus & Pemphigoid website has a lot of patient education, treatment and support information that you might find helpful.

Patients – https://www.pemphigus.org/patients/
Treatments – https://www.pemphigus.org/treatments/

Did your doctor provide any suggestions or answers for your questions?

REPLY
@johnbishop

Welcome @jimhaz. There are a lot of unknowns when you receive a diagnosis and don't know what could be next.
@terrydclaar may be able to share some experience with you. The International Pemphigus & Pemphigoid website has a lot of patient education, treatment and support information that you might find helpful.

Patients – https://www.pemphigus.org/patients/
Treatments – https://www.pemphigus.org/treatments/

Did your doctor provide any suggestions or answers for your questions?

Jump to this post

Dr. who found it was an orthodontist and doesn’t treat for MMP. Going to make appointment with Dr. at Mayo Clinic. Was there for another issue in Dec. Got great care.

REPLY
@jimhaz

Dr. who found it was an orthodontist and doesn’t treat for MMP. Going to make appointment with Dr. at Mayo Clinic. Was there for another issue in Dec. Got great care.

Jump to this post

@jimhaz Can you let us know how your MMP appointment at Mayo goes?

REPLY
Please sign in or register to post a reply.