1. < MAC & Bronchiectasis

MRSA is not responding to antibiotics

Posted by joann @joanng, May 19 7:25am

Bronchiectasis issues-I've had MRSA since April 2024 in my sputum and bronchoscopy showed my airways filled with MRSA in July 2024. I was treated with bactrum, Linezolid, and vancomycin. Unfortunately, I had a severe reaction to the vanco and the other 2 did not work. My upper right lobe is completely dead and thoracic surgeon said surgery to remove this dead lobe would be risky 50/50 chance of survival. And he is not sure removing this lobe would even eliminate the MRSA. Infectious disease has released me back to pulmonology and PCP as they have no other treatment. pulmonology put me on Azithromycin 3 day dose. Has anyone else had success with another treatment plan to cure the MRSA?

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scoop | @scoop | May 19 10:53am

Sorry to hear you're dealing with MRSA. Have you sought a second opinion, perhaps at a large university teaching hospital? That's where most research is done. I've read a lot of positive reviews about Dr. Mitchell at University of Colorado for lung surgery. https://www.cumedicine.us/providers/surgery/john-d--mitchell

Perhaps page therapy might be helpful but I really don't have too much info on that. Hoping others will chime in with ideas for you.

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1 reply
joann | @joanng | May 19 9:31pm
In reply to @scoop "Sorry to hear you're dealing with MRSA. Have you sought a second opinion, perhaps at a..." + (show)
@scoop

Sorry to hear you're dealing with MRSA. Have you sought a second opinion, perhaps at a large university teaching hospital? That's where most research is done. I've read a lot of positive reviews about Dr. Mitchell at University of Colorado for lung surgery. https://www.cumedicine.us/providers/surgery/john-d--mitchell

Perhaps page therapy might be helpful but I really don't have too much info on that. Hoping others will chime in with ideas for you.

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Yes my Doctors are in a large teaching hospital, University of Rochester. None of my team of Dr's have had a patient with MRSA and all of my health issues and allergies to meds. When I asked all 4 Dr's what they did to treat their other patients with the same issues they replied they did not have another patient with the same health issues.
Current conditions are MRSA, Autoimmune, PMR, Cystic fybrosis-R, Bronchiectasis, sciatic nerve pain issues, back pain.
I'm not a candidate for surgery to remove the upper lobe due to long term steroid use. Just hoping someone in this group has the same issues I have with the MRSA and I am looking for an alternate treatment option.
Thank you for your reply.

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1 reply
scoop | @scoop | May 19 11:35pm
In reply to @joanng "Yes my Doctors are in a large teaching hospital, University of Rochester. None of my team..." + (show)
@joanng

Yes my Doctors are in a large teaching hospital, University of Rochester. None of my team of Dr's have had a patient with MRSA and all of my health issues and allergies to meds. When I asked all 4 Dr's what they did to treat their other patients with the same issues they replied they did not have another patient with the same health issues.
Current conditions are MRSA, Autoimmune, PMR, Cystic fybrosis-R, Bronchiectasis, sciatic nerve pain issues, back pain.
I'm not a candidate for surgery to remove the upper lobe due to long term steroid use. Just hoping someone in this group has the same issues I have with the MRSA and I am looking for an alternate treatment option.
Thank you for your reply.

Jump to this post

Lung Matters support group on Facebook has had a number of people post about MRSA in their cultures. Have you joined that group? You might discover some nuggets of information. You need to use the search bar on the top of the page to find the posts.

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1 reply
thomason | @thomason | May 20 5:55am

Hello Joanne. After radiation for throat cancer and having Covid, my vocal cords (VCs) paralyzed. For a year, mucus was trapped in my lungs, as the VCs diagnosis had not yet been made. During my journey, I had a bronchoscopy which found MRSA and other rare (they said) lethal bacteria. Hearing "MRSA" is very scary! At times, during that year, it felt like I was dying. Being on many different antibiotics did nothing to eradicate the MRSA. This, after many sputum tests. Long story short (sorry) I ended up getting a Trach tube to relieve all that mucus, and it has been a miracle. The mucus is right there to cough or suction out. The point is this: The last few pulmonologists and an Infectious Disease doctor told me that having MRSA in the sputum is perfectly NORMAL. It is to the point that we must rely on ourselves in many cases, to figure things out. I sure do not understand all the different opinions, advice, etc. I am keeping you in my thoughts and prayers for wisdom in your situation!

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1 reply
joann | @joanng | May 20 7:01am
In reply to @thomason "Hello Joanne. After radiation for throat cancer and having Covid, my vocal cords (VCs) paralyzed. For..." + (show)
@thomason

Hello Joanne. After radiation for throat cancer and having Covid, my vocal cords (VCs) paralyzed. For a year, mucus was trapped in my lungs, as the VCs diagnosis had not yet been made. During my journey, I had a bronchoscopy which found MRSA and other rare (they said) lethal bacteria. Hearing "MRSA" is very scary! At times, during that year, it felt like I was dying. Being on many different antibiotics did nothing to eradicate the MRSA. This, after many sputum tests. Long story short (sorry) I ended up getting a Trach tube to relieve all that mucus, and it has been a miracle. The mucus is right there to cough or suction out. The point is this: The last few pulmonologists and an Infectious Disease doctor told me that having MRSA in the sputum is perfectly NORMAL. It is to the point that we must rely on ourselves in many cases, to figure things out. I sure do not understand all the different opinions, advice, etc. I am keeping you in my thoughts and prayers for wisdom in your situation!

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thank you, the problem is I get physically ill and feel like my entire body was hit by a truck and extremely tired.
Thank you for your reply.

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joann | @joanng | May 20 7:03am
In reply to @scoop "Lung Matters support group on Facebook has had a number of people post about MRSA in..." + (show)
@scoop

Lung Matters support group on Facebook has had a number of people post about MRSA in their cultures. Have you joined that group? You might discover some nuggets of information. You need to use the search bar on the top of the page to find the posts.

Jump to this post

I will look for this on facebook. MRSA in lungs is ok if the coughing and body sickness can be controlled. Hopefully I will find something to bring to my DR's.
Thank you for your reply and idea about facebook.

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