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Morphea

Posted by Mom of three @momofthree1, Apr 1, 2018

I was diagnosed with morphea on Friday and the dermatologist office had no literature to share with me. I can't be the only person to have this and the internet scared me to no end. Please anyone share with me if you or anyone you know have this. Thank you, Mom of three

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KateG | @gingerbear22 | Feb 7, 2022
In reply to @johnbishop "Hi @gingerbear22, There has not been much activity in this discussion and the members who have..." + (show)
@johnbishop

Hi @gingerbear22, There has not been much activity in this discussion and the members who have posted about morphea have not been active since April 2020 when they last posted. I'm not sure if they are still following this discussion.

I noticed in your previous post in another discussion you posted that you had another biopsy and the result was lichen schlerosus, but you think it looks like photos you’ve seen of morphea. I did find some information that may offer an explanation of why the two may be confused.

"Morphea is a chronic inflammatory disease characterized by sclerosis of the skin. The term localized scleroderma is also used in some texts. This causes confusion with systemic sclerosis (scleroderma), often resulting in unnecessary evaluation and anxiety. It is the opinion of the authors that the term localized scleroderma should be avoided. Morphea itself has a spectrum of manifestations ranging from skin only to multiple organ involvement. Of note, organ involvement in morphea is distinctly different from systemic sclerosis" --- Morphea and Lichen Sclerosus | Fitzpatrick's Dermatology, 9e: https://accessmedicine.mhmedical.com/content.aspx?bookid=2570&sectionid=210426650

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I added an update post to LS thread. Thank you for the literature.

REPLY
katened1120 | @katened1120 | Mar 24, 2022

Hello,
My son was diagnosed with Morphea in 2015. He was 11, he is now 17. He has one lesion on his back. In the beginning he was put on methotrexate subQ. He hated that and was able after a year to change it to oral methotrexate. They say typical morphea goes into remission after 3 years at most but my son was on it for almost 5. When COVID hit I was nervous about him being on an immune suppressant and his Dr ok’d coming off of it. His lesion recently reactivated, which they say “can happen” before throwing him back on methotrexate we are trying topical meds. We are a month in and I’m not sure it’s having much effect but too soon to really tell. His lesion started as a small appearing bruise- after about a month with out it going away I was concerned, it then developed a pea size lump. I took him to pediatrician who said it was just a fatty lipoma- a week later it was the size of a quarter so I went back- at that point we were referred to derm. Who biopsies and diagnosed. Now it is about 5-6 inches long and about 2 vertically. It causes him no pain and prevents him from doing nothing. It has not limited him at all. Methotrexate needs to be taken with folic acid as it can deplete that. Only side effect he had was nausea that the folic acid and pen leukavorin (sp?) . I can provide pictures but I will leave it to you to decide if you’d want to see them. You can let me know. Good luck!!! (He also has focal segmented glom. Sclerosis, which they said is completely unrelated but I’m suspicious)

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