Share this:
Mom of three
@momofthree1

Posts: 13
Joined: Oct 29, 2012

Morphea

Posted by @momofthree1, Sun, Apr 1 8:27am

I was diagnosed with morphea on Friday and the dermatologist office had no literature to share with me. I can't be the only person to have this and the internet scared me to no end. Please anyone share with me if you or anyone you know have this. Thank you, Mom of three

REPLY

Hello @momofthree1 — Mayo Clinic has some information on morphea that might be helpful.

Morphea – Symptoms & Causes, Diagnosis & Treatment:
https://www.mayoclinic.org/diseases-conditions/morphea/symptoms-causes/syc-20375283

Mayo Clinic Q and A: Treatment often can keep morphea symptoms in check:
https://newsnetwork.mayoclinic.org/discussion/mayo-clinic-q-and-a-treatment-often-can-keep-morphea-symptoms-in-check/

I'm also tagging two other Connect members who have created discussion related to Morphea that went unanswered in 2013 & 2015. @nettie1862 and @paty1979 I would like to bring you into this discussion to see if you have learned any new information or have any suggestions that you can share with @momofthree1

I also found more information on the NIH Genetics and Rare Diseases Information Center:
https://rarediseases.info.nih.gov/diseases/10485/morphea

John

I know from many second opinions on vaarious diagnosis that you may want to research and then get second opinion. After everything I went through the only time I started getting better is when the hospital staff nurses identified infections. Things left unattended can really get away from you and start affectingh many areas and bloodwork.

Thank you, I am planning on getting a second opinion. I have been trying to get answers for over seven years. This is the third outbreak and the worse I have had. It seems to me that they happen when I am under a large amount of stress.

@johnbishop

Hello @momofthree1 — Mayo Clinic has some information on morphea that might be helpful.

Morphea – Symptoms & Causes, Diagnosis & Treatment:
https://www.mayoclinic.org/diseases-conditions/morphea/symptoms-causes/syc-20375283

Mayo Clinic Q and A: Treatment often can keep morphea symptoms in check:
https://newsnetwork.mayoclinic.org/discussion/mayo-clinic-q-and-a-treatment-often-can-keep-morphea-symptoms-in-check/

I'm also tagging two other Connect members who have created discussion related to Morphea that went unanswered in 2013 & 2015. @nettie1862 and @paty1979 I would like to bring you into this discussion to see if you have learned any new information or have any suggestions that you can share with @momofthree1

I also found more information on the NIH Genetics and Rare Diseases Information Center:
https://rarediseases.info.nih.gov/diseases/10485/morphea

John

Jump to this post

Thank you for the information you shared with me and the time you spent to do so. I appreciate you effect to help educate me very much.

@johnbishop

Hello @momofthree1 — Mayo Clinic has some information on morphea that might be helpful.

Morphea – Symptoms & Causes, Diagnosis & Treatment:
https://www.mayoclinic.org/diseases-conditions/morphea/symptoms-causes/syc-20375283

Mayo Clinic Q and A: Treatment often can keep morphea symptoms in check:
https://newsnetwork.mayoclinic.org/discussion/mayo-clinic-q-and-a-treatment-often-can-keep-morphea-symptoms-in-check/

I'm also tagging two other Connect members who have created discussion related to Morphea that went unanswered in 2013 & 2015. @nettie1862 and @paty1979 I would like to bring you into this discussion to see if you have learned any new information or have any suggestions that you can share with @momofthree1

I also found more information on the NIH Genetics and Rare Diseases Information Center:
https://rarediseases.info.nih.gov/diseases/10485/morphea

John

Jump to this post

You're welcome. I'm glad it helped a little. When you mentioned stress seemed to make it worse I did another quick search and found this site that may be helpful relating to stress.

https://sclero.org/scleroderma/causes/stress/a-to-z.html

John

Please login or register to post a reply.