More thyroid issues??? ( hypo to hyper)

Posted by mcmurf2 @mcmurf2, Jul 15, 2019

I posted several months ago with my labs and symptoms and history. Today, I got another epidural in my neck. When they checked my BP, it was low.. all 3 readings. ( now, I”ve tried to get into my health portal for that hospital and it is being a butt.. won’t let me in to get you the exact numbers), But they were in the 96??/ 60?? range. It has never been this low. Also,, I”ve lost 43 lbs since last fall. NOT trying. I can’t do anything but sit around due to my neck issue so it is not like I”m working it off…. starting to get a red flag. I also sweat a lot.. granted,, it IS hot and humid now,, but I can lay butt naked in front of the AC and sweat. I also take a lot of showers. ( and my feet are cold). Had to move my primary dr appt from this Thursday to next week. Don’t see the endo for my follow up for another 2 weeks… should I be concerned??? Also get headaches but think this is due to my neck.. they stay for 4-5 days… meds don’t help.

got ONLY the T3 results today. I"m down to 6.9. I don't know why the rest of the thyroid was not posted. I do see the endo on friday (IF it is not freezing rain)..

REPLY

so had my Endo appt today and also my ultra sound for the nodule on the thyroid. Nodule is unchanged. now. Doc says 'Your labs are a mess'. so, she ordered more labs.. FINALLY testing for Graves. Will know the outcome next wed. She gave me 3 options. 1. go on a med that may take 18 months for final results and only has a 20% success rate. ( can't remember the name). 2. kill the thyroid with radio active iodine. ( 3 month results) 3. surgically remove thyroid. (instant results.). number one is out! I"ve suffered over a year already. Two will probably be the option as it is winter and not much to do anyway. I am already scheduled for rotator cuff surgery on Jan 8th soooooo… hum,,, no need for 2 surgeries huh?

REPLY
@mcmurf2

so had my Endo appt today and also my ultra sound for the nodule on the thyroid. Nodule is unchanged. now. Doc says 'Your labs are a mess'. so, she ordered more labs.. FINALLY testing for Graves. Will know the outcome next wed. She gave me 3 options. 1. go on a med that may take 18 months for final results and only has a 20% success rate. ( can't remember the name). 2. kill the thyroid with radio active iodine. ( 3 month results) 3. surgically remove thyroid. (instant results.). number one is out! I"ve suffered over a year already. Two will probably be the option as it is winter and not much to do anyway. I am already scheduled for rotator cuff surgery on Jan 8th soooooo… hum,,, no need for 2 surgeries huh?

Jump to this post

I can only give my experience, but not an opinion on your thyroid. I was given no options, as they found the nodules on my thyroid while doing an ultrasound on my artery. I was told I had to have the surgery, which I did and now I live on Synthroid. During the surgery they damaged a vocal chord, which is common, as it is so close, and no voice specialist has been able to help me. I can no longer sing and sometimes my voice can barely do the job. But I keep talking anyway. I have had a sinus drainage ever since which has been maybe ten years and I sleep on two pillows and suck on a cough drop for relief. I cancelled my rotator cuff replacement in both shoulders because I can live with it at this level and I can't stand another surgery. My granddaughters will get my dishes down from the higher shelves.
I don't wash windows much. And I use a lot of IceyHot at night. I am sick of more meds that make me feel drugged. Dorisena

REPLY
@dorisena

I can only give my experience, but not an opinion on your thyroid. I was given no options, as they found the nodules on my thyroid while doing an ultrasound on my artery. I was told I had to have the surgery, which I did and now I live on Synthroid. During the surgery they damaged a vocal chord, which is common, as it is so close, and no voice specialist has been able to help me. I can no longer sing and sometimes my voice can barely do the job. But I keep talking anyway. I have had a sinus drainage ever since which has been maybe ten years and I sleep on two pillows and suck on a cough drop for relief. I cancelled my rotator cuff replacement in both shoulders because I can live with it at this level and I can't stand another surgery. My granddaughters will get my dishes down from the higher shelves.
I don't wash windows much. And I use a lot of IceyHot at night. I am sick of more meds that make me feel drugged. Dorisena

Jump to this post

wow.. and I actually put more thought into my choices and have changed my decision to surgery.. sigh….guess I"ll have more time to think about it. As for my (2nd rotator cuff surgery), I 'm not looking forward to the recovery, but with my goals and job,, would like to be pain free. I need knee surgery in the future and he won't do THAT until my shoulders can hold me up on crutches… ( sigh again). Is your voice horse or tired???…??? or what exactly is going on if you don't mind me asking?

REPLY

I remind you that there is no guarantee that you will be pain free as a result of surgery, but perhaps if you are young you may feel a lot better. I had two knees replaced and the first one was pain free after a year, but now I have pain sometimes in the evening. The second surgery was pretty good until I had the back surgery and now I have pain often. I maintain a regular active life at age 84. I see people in church who never got off their walkers. I'll admit I don't have bad pain, but it is still difficult to put my socks on. Since the pain has lessened in my shoulders and I don't take anything for it, I don't need to have the ability to work hard as in the past, and so I am putting off shoulder surgery and living an easier lifestyle, not carrying heavy loads and such. My throat is hoarse at times but I also have sinus allergies which can make the throat sore. They put a camera down my throat some years ago to diagnose the paralyzed vocal chord. I had to give up choir. I do no speak in public because my voice quivers. They wanted to try surgery and put a piece in to shove the vocal chord over a little. I said, no thanks. I am heartbroken but at least I can stay on my feet and walk short distances. I manage my home alone. That's life! I would like to have better balance and sometimes I work on that. You would never know by looking that I am 84, so I am doing better than most. Dorisena.

REPLY
@mcmurf2

wow.. and I actually put more thought into my choices and have changed my decision to surgery.. sigh….guess I"ll have more time to think about it. As for my (2nd rotator cuff surgery), I 'm not looking forward to the recovery, but with my goals and job,, would like to be pain free. I need knee surgery in the future and he won't do THAT until my shoulders can hold me up on crutches… ( sigh again). Is your voice horse or tired???…??? or what exactly is going on if you don't mind me asking?

Jump to this post

@mcmurf2 I have two TKRs and never used crutches, I just do not handle them well. I have used a walker and then gone straight to walking unaided. You may never need crutches.
JK

REPLY
@contentandwell

@mcmurf2 I have two TKRs and never used crutches, I just do not handle them well. I have used a walker and then gone straight to walking unaided. You may never need crutches.
JK

Jump to this post

good point

REPLY

I checked with my daughter and it has been almost nine years since I had my thyroid removed. I complained about low thyroid for years and I did after the surgery, but now the doctors say I must stay at my lower dose to prevent risk of more cancer. Well, it can't be thyroid cancer again because it is gone!
So that is a main reason why I avoid sugar because it does feed cancer cells. This was my second cancer. My first cancer was a breast cancer lump which was removed and I had 42 radiation treatments. If I just had more energy to do more work, not as much as in the past, I would be quite happy. I have to blame the diabetes for some of that, I suppose. Dorisena

REPLY
@dorisena

I checked with my daughter and it has been almost nine years since I had my thyroid removed. I complained about low thyroid for years and I did after the surgery, but now the doctors say I must stay at my lower dose to prevent risk of more cancer. Well, it can't be thyroid cancer again because it is gone!
So that is a main reason why I avoid sugar because it does feed cancer cells. This was my second cancer. My first cancer was a breast cancer lump which was removed and I had 42 radiation treatments. If I just had more energy to do more work, not as much as in the past, I would be quite happy. I have to blame the diabetes for some of that, I suppose. Dorisena

Jump to this post

well,, I am lucky,, my issue is not cancer. But,, my next worry IS diabetes… I"m getting in range.

REPLY
@mcmurf2

well,, I am lucky,, my issue is not cancer. But,, my next worry IS diabetes… I"m getting in range.

Jump to this post

I have studied diabetes for many years, about my late husband who did nothing to help himself, and for me for the past 12 years. What I read over and over is to check your waist size and if it is over 35 inches, try to do something about it as it is a part of metabolic syndrome.
They do not recommend heavy dieting because they have learned that you need some good fat in every meal for metabolism. I was doing fine until I had my knee replacement and didn't work hard in the garden bending over that year. Fatter waist ever since! Before that it only took a few weeks bending over and planting and pulling weeds to get the waist smaller. Now I can't get into ready made dresses.
So I must eat low carb and try to be more active the rest of my life. I think I do better than my friends who don't study. Dorisena

REPLY
Please sign in or register to post a reply.