Diabetes Insipidus - Treatment with LDN?
Hi there, I was born with DI and it was well managed until my late 20’s. I have needed DDAVP less and less as time goes on. While that might seem like a good thing – as one unsympathetic Endo doctor told me; I have had an increase in migraines, exercise intolerance, dizziness, nausea, that whole thing. I switched to oral and break my pill up into 6ths when I need it. Sometimes it’s one every 24 hours, other times I go days without needing it. If I was free of any symptoms, this would be a gift – but I am just having the hardest time managing my disease.
Two years ago I was diagnosed with beginning stages of Hashimotos and it was thought that maybe that was causing some of the issues. But I changed my diet and got my antibodies down from 138 to 41 with most of my Hashimoto symptoms gone.
At this point, my naturopath thinks that my DI might be what is the autoimmune. There is emerging research that DI is thought to be an autoimmune more and more.
So, to my question. My Naturopath wants to put me on low dose naltrexone since there are findings that it reduces antibodies in autoimmune. She has used it to treat some of her other patients, including a teenage girl who had the bulging eyes of Graves and they were able to reverse it. This all sounds great but, because of my DI, I react to a LOT of medications. My DI has to come first and I am just wondering if anyone with DI has tried LDN? Any information would be great. It’s so hard to manage these migraines while trying to take care of my health. It’s 1 step forward, 2 steps back – over and over.