@freespirit60
Hi, and welcome. As Colleen says, there are so many resources for us here on Mayo connect. There are many of our members who have had MGUS for decades now. Like you, I was diagnosed in 2021. It was a weird time to be dealing with the diagnosis. I was just like pretty much everybody else and panicked when I got digging into Dr. Google. Since then, I have come to accept that I will probably die of something else before the unlikely event that my MGUS will morph into multiple myeloma.
I consider myself lucky that my MGUS was discovered accidentally. I believe that I get the best medical treatment of anybody I know because of the diligence of my oncology/hematology team. Bonus points because my PCP, who knew absolutely nothing about it, is now pretty well-versed and this can be a benefit to her other patients.
I have opted not have a bone marrow biopsy, but if my number started to go up, I would certainly do that. I am taking a fairly low dose of curcumin daily. My numbers went down to what they were when I was first diagnosed, but my last round of bloodwork they had bounced a little bit. Still well within a range that would be considered MGUS and not smoldering.
We are all so different and coexisting conditions also impact our overall health. I think it’s important not to use someone else’s data as a template for where we feel we need to be.
Thanks so much for checking in and I hope you keep in touch and let us know how you are doing.