Monoclonal B-cells in kidneys- treatment is chemotherapy

Posted by sue1952 @sue1952, Jun 8, 2019

Good morning. I was diagnosed with a rare kidney disease that is typically secondary to Lymphoma, lupus or myeloma. After extensive testing and biopsies over 2.5 years, it was concluded, I did not have any of the cancers and the kidney disease is primary. The monoclonal -B cells clone themselves, as it says, and break down the filtering system in your kidneys. I
am in Stage 3 of kidney disease. Previous studies showed that treatment with CyborD was effective. Is there anyone else on this particular chemo? If not, I would just like to connect with others who are trying to continue with their lives while managing chemo and all that brings with it. I am 66, single, and still working full time. I used to be VERY active but am feeling isolated because working and managing this disease consumes my time and energy. In order to accommodate my weekly trips to Mayo (from the Cities), I needed to request a schedule change to four ten hour days. My weekends have been spent trying to get normal chores done and dealing with the side effects of the chemo. Would love to hear from and talk with others.

Interested in more discussions like this? Go to the Kidney & Bladder Support Group.

OMG! We all have our crosses to bear. I'm just glad God gave us the ability to seek out the experts to find the best medical science possible to treat our rare cases. Good luck to you!

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@maxwell123

OMG! We all have our crosses to bear. I'm just glad God gave us the ability to seek out the experts to find the best medical science possible to treat our rare cases. Good luck to you!

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@maxwell123, Have you seen this video? It might be good preparation for your consult tomorrow(?).
Regenerative medicine consultation service
https://www.mayoclinic.org/departments-centers/transplant-center/regenerative-medicine-consultation-service/gnc-20203917

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